Support Group: Hello Thanks to all... - Atrial Fibrillati...

Atrial Fibrillation Support

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Support Group

ruskin10 profile image
18 Replies

Hello Thanks to all who commented re AF/Dementia (Casualty BBC)

Did anyone go to the Support Group at Liverpool Heart and Chest Hospital last Thursday. I would like to have gone - its about 12 miles from me - but was having a minor op that day and didnt make it Be interested how these things go.

Pat

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ruskin10 profile image
ruskin10
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18 Replies
jennydog profile image
jennydog

I didn't know that there was a support group at LHCH. Nobody told me. I had an ablation there last August and have had 2 follow-up visits since then.

ruskin10 profile image
ruskin10 in reply tojennydog

I got an email from AFA telling me

karl1524 profile image
karl1524

Hi, yes I went, it was a good session, Dr Gupta spoke and we also had input from an anti-coag expert, I found it very useful

ruskin10 profile image
ruskin10 in reply tokarl1524

Did they say if there was another coming up?

in reply tokarl1524

I am so very disappointed not to have been made aware of this meeting as Dr Gupta was the primary EP who performed my Ablation last August...Next time hopefully..

Carol.

karl1524 profile image
karl1524 in reply to

Hi Carol sorry you missed it, I have just checked the info pack that I took from the meeting and it states that the next one is Saturday 13th June at 2pm and the subject matter is cardioversion - cheers - Karl

mavisrich profile image
mavisrich

No not able to go unfortunately. It is a long way from Rhyl and not too sure of the way to the hospital. We are very poorly served here in North Wales regarding support groups. When I asked about one I was asked why we needed one and I was told I must be too worried about my AF!! I feel support groups are there to share experiences etc and dearly wish we had one here. p.s.Love this site it helps so much

karl1524 profile image
karl1524

Yes, they plan to repeat every couple of months with a different expert speaker at each session, if you call LHCH, they will give you the next dare

jennydog profile image
jennydog

One of the problems with LHCH (Broadgreen, Liverpool) is that it is an absolute pig to find and access, particularly from North Wales.

I now know how to do it by train ( £7.80 return from Flint ) I will happily give details to anyone who is interested.

I am, however, thoroughly miffed not to have been alerted about this meeting.

Rellim296 profile image
Rellim296 in reply tojennydog

What's the nearest station?

Rellim296 profile image
Rellim296 in reply toRellim296

Google is telling me to walk half a mile from Broad Green station.

jennydog profile image
jennydog in reply toRellim296

Hi Relim, it's Broadgreen on Merseyrail. From Lake District go to Warrington Bank Quay then swap platforms onto Merseyrail. This is far easier than the escalators at Liverpool, Lime Sreet.

It's a 10 min walk from Broadgreen Station.The hospital guide states that it's a 20 min walk but even I can do it in 10. There are no taxis there. The station has an underpass. Walk up to traffic lights, left turn then hospital on the right. But then you have to find the meeting's location. If it's near to outpatients' dept then you can walk across the lawns on the diagonal path where there are park benches for the weary.

.

Rellim296 profile image
Rellim296 in reply tojennydog

Thanks for that. I can get to Warrington very quickly on a pendolino. Musn't nod off though, as the next stop is Euston.

davegm profile image
davegm in reply tojennydog

I knew nothing of it either.

You would think that patients/ former patients would be advised as a matter of course. I probably wouldn't have attended though!

Hello,

Where are the comments about Casualty please

jennydog profile image
jennydog in reply to

See post AFib/dementia posted a few days ago.

ruskin10 profile image
ruskin10 in reply to

They should be in the general posts

Didn't know about it

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