Care AF patient pack : thank you. - Atrial Fibrillati...

Atrial Fibrillation Support

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Care AF patient pack : thank you.

jennydog profile image
20 Replies

I sent for a Care AF patient pack last week when I saw them featured on this forum. It arrived this morning and I want to expressed my grateful thanks for such a sophisticated and comprehensive aide. Many thanks.

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jennydog profile image
jennydog
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20 Replies

Hi Jennydog

How do l get one please?

jennydog profile image
jennydog in reply to

Go to info@afa.org.uk . They also have a patient website at careaf.org..

in reply tojennydog

Thanks Jenny

feejbee profile image
feejbee

I'll second that. Very helpful and informative .I gave it to my father to read as he's just been diagnosed with AF. My mother had AF as well - I wonder how I came to have it !!!!

PhyllisK profile image
PhyllisK

May I also say thank you for the Care AF patient pack, it really is useful to have such excellent information contained in the pack.

Bryonny profile image
Bryonny

I would like to add my thanks too I received my pack today and looking forward to using it.

rosyG profile image
rosyG

It's good to hear people like it- we were fortunate that Jo jerome asked us, ( Eileen and I-) to give the patient input on it as it was very interesting and I know I learned a lot as we had some very good clinicians to work with.

I think the section on diet and exercise is very good - hadn't seen this set out before- also the idea of records and a diary, so we can take details needed to our next appointments, is good.

jennydog profile image
jennydog in reply torosyG

Rosy, I really do agree with that. I keep saying how important it is to keep a diary to record dates, attacks, medication changes etc. I give my doctors a photocopy of my diary and they seem to like it. I have a ( tatty ) foolscap sheet showing ablation date, medication, bp etc. Y ou cannot possibly remember all these things. Now I've been given a proper diary in a very posh case.

I was amazed at the quality of it all.

Enjoy profile image
Enjoy

Just received mine as well. What an abundance of information and advice. I would like to thank everyone involved.

Thanks Jenny, will send off for a pack today.

stokenorth profile image
stokenorth

I received my pack last week. It is so informative and helpful in plain speaking that we can all understand. Well done for a really good information pack. Well worth having and it's free.

lingooz profile image
lingooz

Hi how can I get one ? Please

jennydog profile image
jennydog

The leaflet with the pack states " if you wish to request more Care AF patient packs please contact info@afa.org.uk." their website is careaf.org.

Finvola profile image
Finvola

Thanks jennydog - just ordered mine.

jennydog profile image
jennydog

Finvola, I'm confident that you will be impressed. it's a great thing to have, all enclosed in a smart file with bound edges and velcro fastening.

lizzily profile image
lizzily

My grateful thanks also. It would have been so helpful to have been given one of these packs when newly diagnosed and with that in mind I intend to show it to the nurse who does the INR's at my surgery.

rosyG profile image
rosyG in reply tolizzily

Lizzily the surgery can request in bulk- I asked for 100 for our support group- so do pass the word around

EileenMary profile image
EileenMary in reply torosyG

I have read all about the AF care pack and went on the site and think I have ordered mine. When I get it I will see if my surgery would like a bulk order, is it all free? Sounds so good. Eileen.

jennydog profile image
jennydog in reply toEileenMary

Yes, it's free. It's an expensive thing to produce, obviously. I'm sure that you will impressed and glad to have one.

Best wishes.

lizzily profile image
lizzily

Thanks Rosy, will do. It really is a great resource. I'll wave my pack under everyone's noses at my surgery and take it from there.

Kind regards, Liz

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