Thanks to all of you who replied to my post. You’ve all been very helpful.
I have a question to ask. I have to take a dose of Ramipril, if my blood pressure rises to 180 for a day.I don’t have to take it every day, as my blood pressure is usually normal. I have just looked at the NICE drugs reaction chart and it says Ramipril and Sotalol can cause hypotension. It’s not got a red line besides it, so it’s not classed as a serious reaction. Just wondered if anyone else is on Sotalol and has taken Ramipril and had their blood pressure go very low.
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Sixtychick
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I had an ablation and had loads of scans and other things to check my heart before I had it done. I know Sotalol can’t mix with a lot of medications , either prescribed or over the counter and I have a list of drugs that I got from the NICE website, which I keep on my phone and check it if I have to take something new.I wish I could come off it altogether. I nearly did stop it. I got down to 20 mg in morning and evening and then when this BP thing happened, they put it up again.
The Dr puts the drugs up which come from the Heart Specialist. Better to have an urgent consultation with a specialised - heart. Or you ring his practise and have an over the phone consult.
I got our Healthline involved and NZ Heart Foundation who had worked under him.
She rung him and she gave me terrific and important advice like
separate CCH from BB DO NOT TAKE THEM TOGETHER
REDUCE BISOPROLOL
and I did so it finally got back to my Dr too.
The thread comes apart when the Dr simply puts up the dose. Sometimes it is reducing the med. SixtyChick.
Take care.
When and if you go to hospital they take away all the drugs and restart the process of starting again. 24hr Heart Monitor is best. It shows hw each drug affects your Heart.
In 2021 I had 3 different times with Heart Monitors.
They put my Sotalol up again at the Heart unit I was in, where I had my ablation. I do not have to take any blood pressure tablets, unless my systolic blood pressure stays over 180 for more than a day. So far, it’s always come down to normal after a while. I will be having a phone appointment next month, with the Doctor who did my ablation.
I always say Dr, as they are Drs, but it is actually an EP that did my ablation. He told me he’s done well over 2000 ablations, so is well experienced, so 🤞🤞🤞he’s done a good job.
I didn't get to ask my surgeon how many Thyroidectomies he had done as he is a General Surgeon. He also does colon cancers and breast cancers.
He insisted having my voicebox checked prior and he had 1.1/2 salind drips through up to an hour then a bag of blue dye 1 hour before op for thyroid.
It was in my wee @ 20 mins.
He was very careful no parathroid damage or voice box or oestophagus.
From 2005 R Breast o cancer in situe in milk duct, I have had no problems since.
He's retiring in December and I know that I won't get the medical care as I have been lucky to have from him.
I bought him a "You're the best"! cup. Amnd to the lass scanning my carotid arteries who called in her boss when a shadow was seen in my thyroid r lobe.
Drs do a general practice 6 year medical course. Surgeons earn MR when on top they do the specialist 3 year I think qualifications.
But I find my lady surgeon Mrs Eva FONG also Dr in Urology and Gynaecology do you call her MRS.
My tall fair surgeon chaooy & Irish will be sadly missed. He never handed me over to the Dr, an Endocrinologist for future tests yearly in case thyroid cancer returns.
It does say that any increase in Sotalol should be carefully assesed like in hospital and there you have all the tests available like kidney testsm 24hr Heart Monitors etc.
I did have quite a few blood tests while in the hospital on Monday and all were ok, apart from the sodium and urea levels, so the GP practise rang me a short while ago and asked me to make an appointment to check my blood pressure and take a blood test for the electrolytes in 3 weeks time.
I do check my urine, if I feel I have a UTI and then I go to the Drs, if it’s positive. I have blood tests once a year, as part of a heart check, they do at my Drs surgery.
But I ManageMyHealth and we are encouraged to do that.
Like last GP visit and the last visit a month ago I took in a urine pot. Had the nurse strip test it. GP didnt read her comment. Took a week to get it sorted as sh is a casual worker. Protein and Bacteria she said so I immediately started on my Amoxil-Clav one of my 'on hand' antibiotics. The GP commented - "you know when you have an infection UTI don't you." I said I get it checked by nurse before I take them. That I had a list and you have a list re culture.
So he gave me a "on hand" supply of Amozil-Clav.
So 3-mthly I ask for blood test.
I have 6-available thyroid tests for TSH T4 some include T3 and some include Thyroglubin serum and antibodies.
That is ManagingMyHealth. We have a system whereby Clinic send notice to look at my MMH portal to see results, clinical letters etc. I have to ask for a copy of clinical letters as I can't seem to open them unless put up on Lab Test.
When I go to Doctor as I leave I book another appmt for a month forward. If I don't need it I cancel it.
It's not easy here especially when internally diagnosed, I had to follow every mention of what is next and when will this be. My Stroke, AF Rapid and Persistent and within 4 days being diagnosed with possible cancer (and it was) I was ringing up the original Ward or Drs etc for biopsy. No followup to Stroke Ischaemic - Embolic.
To have my yearly Thryroid Cancer check it would take 4 weeks to arrange. I pointed out to my surgeon that it should be written up in the last year's report so I had something firm to go on.
I guess really I am lucky that it is the surgeon who ultimately looks out for me and not the Endocrinologist I didn't want and fought her directions all the way from "you must wait 6 months. fr thyroidectomy". I was done with back up from surgeon and anaesthetist. Done in 4 months.
But sadly the surgeon is retiring in December. I have made careful instructions to put directions always in his last report of a check. Pointing out that this will be a 'life examination'. He agreed.
You will be heard if you keep following up. And you must. Ultimately go private I guess.
We have world news of a guy waiting for bowl cancer operation with a young family. Sad cause he died because he couldn't afford the new meds.
Must be off to take my 2nd pill Diltiazem a CCB my life saver to bring down my Heart Rate.
Sorry to hear of all your problems. Hope things go ok for you.
I think it’ll take a lot of time and money to fix our NHS.Just hope our new Labour government manage to do something about it. The NHS is short of staff as well. Time will tell.
You’re brave to go away to Japan on your own, I couldn’t do that. I hope you have a good time.
I'm well travelled since working in UK for 6 years. But COVID and stroke etc has stopped me going.
1st time from July 2019 when I did a 12day Russian River Cruise from beautiful St Petersburg then up the network of rivers to Moscow and the Red Square.
Direct flight near here Kerikeri - Auckland and then flight AirNZ Ak - Tokyo. Stay 4 nights - taxi to Tokyo Hotel, 4 nightsOsaka , 4 nites Kyoto the cultural city. Then home to my JAZ woof woof.
I don’t like flying. We spent many years caravanning, when we had the kids, then we decided to sell it and start going on cruises and we’ve been on 12 cruises, so I’ve been to lots of places abroad, including St Petersburg. I don’t think cruise ships go to Russia at the moment.
We stopped going on cruises when the travel insurance got more expensive for me, when I developed AFib. Also I was worried that if I had an Afib episode, they would take me off the ship, as I have instructions to go to A&E, as my blood pressure and heart rate soar and the if ships Doctors couldn’t deal with it and they sent me to hospital, I worried about how would I get back to the ship, if it had gone to another place, so we bought another caravan instead and we’re enjoying going away in that, once or twice a month, usually between beginning of April and end of September, until my husband gets too old to deal with towing it and setting it all up. Should have probably have another 8 or 10 years, hopefully.
I fly and then cruise. Mum and I went to Alaska. At Seward got the cruise boat (small boat) through the glacier park. An Orca jumped up beside the boat. Wow like a blow up kids flat.
I drove from the ferry from Capital, Skagway- White Horse - Dawson City then to Canadian border after another car ferry to where Huskies drove the sledges and across to across to Fairbanks - National Park Denali and down to Anchorage. Anchorage to 30miles North of Artic Circle. Eskimoes and culture. Back to Anchorage. Mum was 89.
I have a 5m Camper as well. 1st one 10 years 2nd s,c 11 years. JAZ & I explore North Island.
Once or when your AF is controlled you should have confidence again.
Symptoms are stopping my walk or exertion for a few seconds or minutes. I have never been to A&E or rung my St Johns bell at home for AF.
Rapid and persistent from the diagnosis but now controlled.
Sounds like you’ve done some interesting things. I had an ablation in September last year, so hopefully it will stop AFib from returning.🤞Enjoy your holiday.
Yes, my personal experience is I've been duiagnosed with a
1) A severe dllation of my Left Atrium. (I guess this means enlarged). It gave me AF Rapid and Persistent.
2) Slight leak to my tricuspid valve.
3) Right Ventricle is regurgitating due to no.1.
My Systolic function is normal with normal pressure but in 2022 a new diagnosis of soft heart murmur.
The 1st Scope in 2021 showed an overall enlarged heart. (with Day H/Beat 186 on Metropolol with pauses at night).
The 2nd Scope after controlled by Diltiazem and Bisopolol that it is now normal.
That's good news.
I recommend a 24hr Heart Montor before and after a change of med.
The improvement has been much improved since I am controlled for Rapd H/Rate Day and BP with systollic earlier this morning of 110/69.. systolic was getting up to 160/90.
So structural damage is enlargement from normal, leaky valves or regurgitation. Also I guess thickening of the heart muscle, etc.
I have permanent atrial fibrillation after 2 ablations. Hypertension with normal ventricular size. Normal LVEF. Normal bi atrial dimensions. Mild aortic stenosis and moderate tricuspid regurgitation. So I guess I do fit in the mild range of structural abnormality.
I gather the cardio’s are increasingly looking for TR and finding it in my age group, with a view to transcatheter repair or replacement if or when it becomes severe. Do you know of anyone who has TR intervention with benefit?
Reading about TR stands for Tricuspid regugitation.
The surgery is named TV. I read all out it. Go into Google. It does talk about stenosis and heart murmur. Depends whether you are breathless, coughing, etc. I don't but I did with ACE meds, and breathless and pauses with Metoprolol - the first line after stroke when I said NO. The Dr in 2008 did not have caution on my records so the Endocrinologist on the Stroke Ward at my time ignored me. When I complained she never apologised.
Yes then the damage was done with 1 long year 5 months of H.Rate Day of 186. Never could exert myself.
We can't sue Drs etc in NZ. An apology and not ny writing.
Specialists and Drs ought to watch you carefully with stenosis. Steps to take care of it - the flap doesn't open fully has a high success rate otherwise I guess you demise in theatre! Way to go eh!
Got your Will ready and relax.
Interesting about your demise and being cremated etc.
As a Baha'i lass I need to be buried within 2 hours of my place of death. Overseas well buried there. And buried within 3 days no body preservation. Natural to natural.
You hav boys and more boys!
The 17 year young is young and it will be good to get you out and about.
I'm upright and walking but can't walk far.
Being about your age we must agree that life is worthg living and that's why I'm off to JAPAN in early October. Yes on my own. No one wants to come.
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