Got a battery of tests going on to understand why my immune system is not as good as our blog’s humor guy (starts with a J)
In reviewing some of the ancient history I found that my PSA was 1.14 in January, 22.
In late July, 22 I had a brain MRI but my legs blew up a week later to twice their size. It turns out one of the bulky lymph nodes had wrapped around my ureter causing one kidney to fail. Rescued later with a stent.
So in six months you have very symptomatic metastatic prostate cancer. It might have been that way for a year, but a CT scan a year before showed nothing. Of course it took another two months to get all the scans in and see the oncologist in October. Then I received the definitive diagnosis of an extremely rare extremely aggressive cancer variant. I think my PSA was around 4 or so at the height of my cancers’s spread.
If your cancer expresses low PSA you are probably hosed as far as getting some advance warning to head it off. But it does work for garden variety cancer. Personally I think my future gallium PSMA scans will alert before my PSA rises.
Anyone else wish to compare notes on their low PSA cancer as to treatment, prognosis, etc. I recently got a clean scan after 2 years of Abby and Lupie, and only one chemo. Praise the Lord!
That’s the rub which is good! I have heard these types of cancers respond well to treatment.
Oh, conspiracy theorists, I had my fourth COVID booster three months before all HECK broke loose.
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Age 70, I had a PSA test that showed a 'score' of 8.5 and never got more than 10. I then had the biopsy and found Gleason of 4+3 and a bone scan and PSMA that showed metastases in head, ribs, pelvis, pubic bone and a diagnosis of stage 4.
So PSA a very poor indicator in my case. Went on ADT - Abiraterone, prednisolone and prostap and PSA immediately went to <0.01 and has stayed there for 4 years.
I stopped taking this last April as causing a lot of bone pain, tiredness and QoL nil. Feel much better and PSA still nil.
So for me, PSA not a very helpful measure and I wouldn't have got access to PSMA test without private healthcare. I'm just pleased that the bone scan showed hotspots on the bones before I had surgery.
Stephen, thank you for sharing your story. I hope that Abby knocked out your cancers completely. It’s totally awesome! Please let me know if your PSA rises the slightest and any metastasis that result. I’m no doctor but you have gotten there before me and I would like to follow how it goes. I’m an engineer who employs logic and analytical thinking. I really think your case is remarkable and attests that these extremely low PSA cancers with extremely aggressive characteristics respond well to hormone treatment. I’ve literally been hammered to take a vacation and I won’t. The reasoning is due to proportionality. The low PSA cancers can operate without generating a significant rise in PSA, not enough for an oncologist to keep the cancer in its former box.
God bless you Stephen! Have a great day. think positive that you are going to beat this sucker!
Yup, I got the polio vaccine in 1960 and now I have prostate cancer--damn vaccines. Being very, very heavily exposed (wet to the skin) from Agent Orange wasn't the cause, I'm convinced now it was that damn Polio vaccine... or maybe the DPT vaccine, or that flu vaccine I got 8 years ago.... hmmm
This is bad stuff we are dealing with. Sorry about your experience. When I asked my PCP if I should get another CoVID booster, he said keep wearing your mask. I met a man a couple weeks ago convinced Agent Orange was the initiator.
That’s right, men decked to the hilt with cancers everywhere having undetectable PSA. I believe I saw several examples in Dr Kwon’s Combat War Manual Part V.
Thanks for that link. I heard from one patient that Mayo had scanners for such detection ten years before they came out commercially. How true is statement is I would not know.
I think the BAP blood test is good to have with PSA , indicates bone activity where the “ other phosphate test “ chemo brain sorry can’t remember the test , everyone gets it in a metabolic panel. If Mets are forming the BAP bone specific phosphates will increase. BETTER than flying bling. I also have very PSA but when it’s up it’s no bueno. The MO and others won’t prescribe it, you need to push for it .
just so you know your prostate cancer was there years ago. It is a very slow growing cancer. To go from 1 cell to measurable tumor takes years. Covid vaccine unrelated. I also had a not low PSA when diagnosed with Gleason 8 cancer. That came back 5 years after removal. Then I did 2 years of antitestosterone therapy and radiation. Now 1 year out with no sign of disease.
I’ll accept that as valid. However the fact that the cancer doesn’t express PSMA makes for difficult detection before its metasticized all over. Thanks!
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How should I interpret this PSA reading?
My starting PSA....
My son’s PSA rose a bit today. 
Another Old Codger just learning of this site
Great news to share!
