Hi all.: Just saying hello. 59 year... - Advanced Prostate...

Advanced Prostate Cancer

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Hi all.

Macfilmcamera profile image
15 Replies

Just saying hello. 59 year old Scot, living in London, diagnosed with stage 4 metastatic cancer (lymphs and spine) at start of year. Currently undergoing radiotherapy (day 30 of 39 tomorrow !).

On hormone treatment, Apalutimide and 3 monthly injections.

Best

Mac

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Macfilmcamera
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15 Replies
Giuliamen profile image
Giuliamen

Hi Mac! My dad got a very similar diagnosis, could I ask if you experienced any symptoms at all? they suggested there’s no need to do radiotherapy as he isn’t currently experiencing back pain. Thanks, and best of luck in your journey!

Broccoli24 profile image
Broccoli24

Hi Mac, and welcome in. Good luck with the rest of your radiotherapy. There are a lot of knowledgable guys on here who’ve been through what you’re going through, so do ask questions if you have any.

16starsky profile image
16starsky

Hi Mac

MyHusband was diagnosed over 6 years ago with Met PC, mets to lymph nodes and spine like yourself. We were told no RT once it had escaped and in the bones. We are also in Uk, are you having this treatment privately?

Offered to us for pain only.

HealerWithPrayer profile image
HealerWithPrayer in reply to16starsky

Hi, I understand it must be tough to go through as a family. And your husband is a strong person to go through this. In our case, after the hormonal medication became resistant, the next round of treatment will be Lutetium which we are wating for. I wonder if this is also suggested in your husband's treatment? Thanks. Sending support to the family.

16starsky profile image
16starsky in reply toHealerWithPrayer

We will be offered Javenta chemo next.

Lutetium is not offered on NHS we would need to pay privately

At around £110,000 for 6 cycles.and a scan.

Thanks for your reply

lcfcpolo profile image
lcfcpolo in reply to16starsky

Same for me. Radiotherapy not offered by the NHS in 2020. I even asked at a private hospital and they said no. It must be a new thing. Good luck to you Mac. It certainly sounds like your oncologist is going for it in terms of offering aggressive treatment.

Tall_Allen profile image
Tall_Allen

Sounds good! I'm surprised NHS approved apalutamide.

SKKALH528 profile image
SKKALH528

Welcome, Mac! My dad was diagnosed stage 4 metastatic PC this summer and is currently doing ADT and just started radiation this past week. How are things going so far?

FortyWinks profile image
FortyWinks

Welcome, not a club you want to be part of but very supportive. A serious RT schedule and hoping you getting some benefit.

NRH_Beach profile image
NRH_Beach

welcome to a very solid source of information. I am about 5.5 years into a similar journey. I had a radiation designed to focus on the mets. At the tine it was called SBRT. I was initialky in a clinical trial for Aberaterone - an have responded well to it since.

Mrtroxely profile image
Mrtroxely

Sounds like your in good hands.Sounds like they giving you all the treatments to help.

Have they managed to give you scans?

MRI

Bone scans

Pmsa pet scans

Think different NHS hospitals have access to different resources and funds.

Hang in there, it's a rollercoaster, but it calms down...

Stereo1 profile image
Stereo1

Hi Mac and merry Christmas to you.

This diagnosis and treatment will certainly change your life. I’m almost two years in from my diagnosis (about 1.5 from actual stage 4 diagnosis). I have learned the body heals and side effects of surgery and radiation can pass. Life is worth fight and I hope you respond as well as I have to hormone treatments.

This site will help you understand where you are and what to expect. I’m thankful for this resource. All the best to you. Fight hard and live your life to the fullest.

dhccpa profile image
dhccpa

Welcome aboard! Are you on ADT as well, or just Apalutimide?

JohnInTheMiddle profile image
JohnInTheMiddle

Hi MacFC! ⚽

Let me guess, you had a backache? And then the unwelcome surprise? My wife and I have a 16 year old. Such a thing for a Dad and Mom with child or children at home. I'm coming up to 3 years since DX of a Stage IVb PCa situation. So far so good. Stick around, why dontcha? 😃 (And yeah, for me it all started with a backache. Maybe you're diagnosis was different.)

j-o-h-n profile image
j-o-h-n

Greetings Macfilmcamera, Please do not take offense to this post/observation.

It always bewilders me that members (new or old) ask a question(s) and our member(s) response to it (them) that when we ask them a question(s) in return they don't answer it (them).

Comprende? LOL

Good Luck, Good Health and Good Humor.

j-o-h-n

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