Hi All: I just wanted to say hello to... - Advanced Prostate...

Advanced Prostate Cancer

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Hi All

Apollo123 profile image
12 Replies

I just wanted to say hello to everyone that helped me when I was first diagnosed and got me through such a terrible few initial months where I thought advanced prostate cancer = immediate death. I’ve learnt to live with it and I’m used to this new normal. I’m still on Zytiga, Pred and Zoladex as my initial treatment and my PSA remains a steady 0.01. I get tired I’ve had muscle wastage but nothing that stops me getting out and about. I’m 3.5 years in and I’m still positive about the future, new treatments are being published all the time. I still get nervous every time a PSA test is due! I just wanted to share this to help anyone newly diagnosed and to say thank you to the whole community on here for getting me through my darkest times. This is an excellent site👍

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Apollo123 profile image
Apollo123
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12 Replies

Great post Apollo123. Pluck the day !😎

Magnus1964 profile image
Magnus1964

Great point of view, keep on fighting.

ron_bucher profile image
ron_bucher

Speaking of potential new treatments:

fiercebiotech.com/research/...

larry_dammit profile image
larry_dammit

I’m with you, every day is special. Regaining muscle mass slowly. This group of guys are my rock in the storm as well. Fighting the monster 🙏😡🙏

PeakClimber profile image
PeakClimber

I had identical initial reaction as well as fear of every next test, and I'd guess many here have the same. Thanks for expressing the experience. If you're able it sound like adding some resistance training could

help. I'm still in my first year but the folks on this site have been a tremendous source of info and compassion.

RonnyBaby profile image
RonnyBaby

We are a community and we try to support each other.

You're a part of it and it is always appreciated when one of us shares something positive or promising.

We all know the initial dread when we got the 'news' ....

Garbonzeaux profile image
Garbonzeaux

Amen Apollo!

I didn't discover this site until about a year in, having already had RP, chemo, and a year of Lupron. Wish I'd found it much sooner, as the advice of our brothers would have helped me immensely to get through those trying times. Even so, I have learned more from them than from all my Drs and in-person support groups put together.

Fight on.

barrybayarea profile image
barrybayarea

Thank you for your note, encouraging for people like me, still in the first year of the Zytiga and Pred. Indeed it was a scary first few months, specially when my OC, in the first meeting said, you have 6-months to 15-years. Immediate reaction was panic! Being a single dad to a 11-year-old, I had to do get things in order for my son. Now 7-months later, with PSA down from 0.2 from 42, I feel more hopeful. The side effects are not so cool and the fact that I have to live with them is not comforting but then I am alive ;)

Curehunter profile image
Curehunter

Great news Apollo123.

I am in month 3 of my DX and am also on Zytiga and pred, hence your post is of great inspiration to me. I wish you many more healthy years.

j-o-h-n profile image
j-o-h-n

Our aim is to please A Chicken....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 05/20/2020 6:42 PM DST

timotur profile image
timotur

Eyes ahead, lean forward, you got this!

Boywonder56 profile image
Boywonder56

⛵.....same.....keep rowing.....b.w

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