Advice on next stage of treatment? - Advanced Prostate...

Advanced Prostate Cancer

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Advice on next stage of treatment?

Runner1957 profile image
7 Replies

Have just updated my Bio after being diagnosed with Metachronous metastatic prostate cancer.

After several months of slowly increasing psa had a dramatic increase in past 8 weeks. Latest PET and MRI show a lesion on the left iliac bone and possibly future spots which may develop.

Due to the NHS lead time for a PET scan I use a private consultant and PET scan provider. He has prescribed going back on ADT with possible addition of palutamide or Enzalutamide . He does not think, in my current position that adding Docetaxel would help, but maybe later. At this stage he also thinks using radiotherapy (SABR) will improve thing versus the potential side effects but could be used in the future.

I have an appointment with my NHS Oncologist next week to discus the above with him and agree the treatment plan. My GP (family doctor) is happy to arrange for me to start ADT which I am doing so after the NHS appointment.

Should I be including Docetaxel at this stage as I think it needs to be taken before starting ADT?

Any advice or shared experience appreciated.

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Runner1957 profile image
Runner1957
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7 Replies
CAMPSOUPS profile image
CAMPSOUPS

Metachronous metastatic prostate cancer (mmPCa) is when prostate cancer recurs after initial treatment. It's different from synchronous prostate cancer, which is when metastatic disease is present at the time of diagnosis.

Sorry. My initial diagnosis was fully metastatic so I'm not very up on reoccurrence treatments.

But I did want to put in that definition for others to see. Those are some terms I hadn't heard before.

Hope you find a treatment path that works well for you.

Runner1957 profile image
Runner1957 in reply toCAMPSOUPS

Thank you, we learn new information everyday.

dhccpa profile image
dhccpa in reply toCAMPSOUPS

Thanks

Big_Mcc profile image
Big_Mcc

I have mmPCa too, discovered after a psma scan in oxford. My NHS oncologist put me back onto Decapeptyl SR 6 monthly injections for life plus 6 rounds of Docetaxel. Psma came down from around 5.5 to 0.09 at last test. When this fails he proposes Enzalutamide and when that fails, a further 6 rounds of Docetaxel. After that he suggested hospice as no further treatment would be available on the NHS.

Runner1957 profile image
Runner1957 in reply toBig_Mcc

Thanks hope for a long future for you

Big_Mcc profile image
Big_Mcc in reply toRunner1957

I hope your future has a brighter outlook. I think we are all praying for a miracle breakthrough treatment but realistically, not in my lifetime. I am grateful for the life I have lived and more and more curious what the final passing on will be like. The last great adventure in life. Live long and prosper lol

j-o-h-n profile image
j-o-h-n in reply toBig_Mcc

Hello Big_Mcc,

I figure you're 71 years old now.......and my guess would be you'll be around to be more and more grateful for your life especially since you'll be around until your in your 90's. Figure that the last great adventure in your life will be laughing at yourself for wearing two different shoes at your wedding.

Good Luck, Good Health and Good Humor.

j-o-h-n

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