Looking for an integrative oncologist... - Advanced Prostate...

Advanced Prostate Cancer

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Looking for an integrative oncologist/PhD in mid-Atlantic area

michaelpenny111 profile image
15 Replies

I had a radical prostatectomy in 2018 with some positive margins and a Gleason 7. At the time it was worrisome for me but my psa was undetectable until May, 2023. Now it has risen to .2, not that high really....I live close to the University of Virginia, and they are wonderful....but they're not current, or at least I don't think they are, with developing research and alternative methodologies. Maybe what I'm really looking for is a PhD in the field whom I can sometimes see remotely instead of traveling all the time. Any suggestions?

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michaelpenny111
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15 Replies
caltexman profile image
caltexman

Get a PMSA test and get salvage radiation if recommended. You need an oncologist not a PhD.

michaelpenny111 profile image
michaelpenny111 in reply tocaltexman

Thank you very much for responding. I appreciate that.

Tall_Allen profile image
Tall_Allen

Johns Hopkins has some of the best oncologist's in the world. IDK why you want an integrative oncologist.

michaelpenny111 profile image
michaelpenny111 in reply toTall_Allen

Good question. Maybe I don't want an integrative oncologist. Mostly I don't want to miss out on anything that might reduce the risk of illness or death from prostate cancer. Here at UVA they recommended a psma test, which I am getting in a couple of weeks. If anything shows up, they recommend radiation as a first line treatment. Before any of that happens, I know there are non-invasive diagnostic tests which might help guide treatment, or at least offer alternatives to radiation.

Maybe I am just looking for a researcher who accepts patients, and not an integrative oncologist, but someone with more knowledge of current research developments. Can you suggest what I should be looking for?

Thank you for the input on Johns Hopkins. I will check them out.

Thank you so much.

Michael

Tall_Allen profile image
Tall_Allen in reply tomichaelpenny111

Johns Hopkins is usually on the cutting edge.

Papa1 profile image
Papa1 in reply toTall_Allen

Who would you recommend at JHU?

Tall_Allen profile image
Tall_Allen in reply toPapa1

Carducci, Pienta, Denmeade are all good.

michaelpenny111 profile image
michaelpenny111 in reply toTall_Allen

Thank you so much, Allen.

DesertDaisy profile image
DesertDaisy in reply tomichaelpenny111

Many medical oncologists are also researchers.

michaelpenny111 profile image
michaelpenny111

Thank you so much, Allen. I guess you're really tall, eh?

Atdabeach profile image
Atdabeach

Johns Hopkins also operates Sibley Hospital in D.C. and Suburban Hospital in Bethesda, both a bit closer to you than Baltimore. I've been treated for PCa at Sibley for the past 2+ years, and would recommend them without reservation.

michaelpenny111 profile image
michaelpenny111 in reply toAtdabeach

oh thank you for that. May I ask who worked with you at PCa Sibley or Suburban Hospital? Yes they are both closer and I have friends who live in Bethesda and the Chevy Chase area.

Atdabeach profile image
Atdabeach in reply tomichaelpenny111

I called Hopkins (Brady Urological Institute, 443-341-0737) as soon as I got my diagnosis. They sent me to Dr. Gerald Andriole (urologist, might be retired now), who set me up with testing, including MRI and PSMA PET scan, along with second opinion on my biopsy slides. Then I was quickly referred to Drs. Aditya Halthore (radiation oncologist) and Channing Paller (medical oncologist), who have managed my treatment. Sibley also has a proton center, which I opted for. I've been very satisfied with all aspects of my treatment!

michaelpenny111 profile image
michaelpenny111 in reply toAtdabeach

Great. Thank you so much. I really appreciate that.

Derf4223 profile image
Derf4223

IDK why you want an "integrative oncologist". You want someone who handles cases like yours frequently and successfully. If your case is something they cannot handle or they are out of SOC arrows, you need to get into an appropriate trial and hope for the best.

Not what you're looking for?

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