NOCTURIA POST RT 5-6 x Night, Orgovyx... - Advanced Prostate...

Advanced Prostate Cancer

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NOCTURIA POST RT 5-6 x Night, Orgovyx Finished TX one month ago -still having SE's.

JWS13 profile image
21 Replies

Finished 20 TX IMRT & 4 months Orgovyzx

I finished RT 3 months ago finished -4 mos of Orgovyx one month ago.

RT-Now having Nocturia -getting up 5 x a night -taking 2 flomax a day -need tips how to reduce number of x going?

a. how long does it generally take for the radiation inflamed uretha to calm down and go back to 2 x a night bathroom baseline ?

2. Finished 4 months of Orgovyz one month ago.

a. Still having post -treatment side effects -even though finished taking the hormone drug a month ago- (i.e. still getting hot flashes, inflamed joints and muscles, headaches, weight gain, etc.) even though I am not on the drug...how long doesit take for Orgovyx to be completely out of my body and it's Side effects to stop.

Thanks all responses welcome...

62..Gleason 4-3, PSMA -No Mets, ECE, 20 TX IMRT, 4 months Orgovyx.

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JWS13
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21 Replies
MJCA profile image
MJCA

It’s been many years since I had radiation. Nocturia was a definite issue. I was still working in corporate senior management; I needed to be clear minded and alert. My PCP prescribed sleeping pills; which 17 years later I still take along with flomax. I know many are reticent to take more meds, this assisted my situation. Best of luck.

JWS13 profile image
JWS13 in reply toMJCA

which sleeping pills? did it work? did flomax help or mainly sleeping pills?

MJCA profile image
MJCA in reply toJWS13

The sleeping pill, name brand Restoril, generic name is Temazepam. I take 15 mg. I know the sleeping pills assist more in my sleep than flomax.

Tall_Allen profile image
Tall_Allen

Nocturia diminished for me after a month. I started with 2 Flomax (both at night), but switched to Rapaflo, which worked better for me. There are about a dozen such alpha-blockers- find one that works for you.

A week out of 33 VMATs, Im now back to one time during the night.

Compared to 4 to 5 times 2 weeks ago!!!

Was it the Probiotics? I dont know.

JWS13 profile image
JWS13 in reply to

what's the name of the probiotics? did they work?

in reply toJWS13

Walgreens 20 billion.

CurrentSEO profile image
CurrentSEO

If you do not take cialis, you can try to take 5mg nightly. Did a big difference for me.

Benkaymel profile image
Benkaymel

I've been taking tamsulosin (one each night) for a year which deals with my slow flow rate but does nothing for the nocturia frequency which is between 3 and 6 times a night.

My problem is I'm a very light sleeper and once awake after a few minutes I feel the need to pee. I think some sort of sleep aid is the answer as well of course as stopping drinking by around 6pm.

dixiedad profile image
dixiedad

I've been off of ADT for over a year and still getting hot flashes. Permanent menopause.

JWS13 profile image
JWS13 in reply todixiedad

is your testosterone level normal?..are you getting other side effects...joint pain,headaches, gaining weight, fatigue or just hot flashes?

dixiedad profile image
dixiedad in reply toJWS13

I have the standard boobs, belly, and butt of gynecomastia. ☹

Can't lose weight, and I tire easily. Still walking and working out with 13 lb dumbells. I've gained muscle mass and increased bone density by 5%.

in reply todixiedad

So you look like a Renoir model!!🫣

dixiedad profile image
dixiedad in reply to

Except for the penis. 😁

j-o-h-n profile image
j-o-h-n in reply todixiedad

You mean they had penis' .... golly gee george

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 07/10/2023 6:39 PM DST

in reply toj-o-h-n

Well never know, legs were always crossed.

j-o-h-n profile image
j-o-h-n in reply to

Of course we never will..... since those paintings were known as the Bizzare Renoir......

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 07/10/2023 10:06 PM DST

in reply todixiedad

I responded that as I was looking in the mirror@@😂

Mgtd profile image
Mgtd

Two weeks out of 20 sessions of radiation. Take one Flomax pill at nighttime around 8 or 9. It has done nothing to the number of times I need to urinate but has stopped the burning.

Meeting with my MO NP on Weds so I will ask to either increase to two a day or if other meds or other stuff will reduce the number of times. Prior to radiation I was 1 sometimes 2 a night. Now I am in the 5 X range.

I stopped caffeine tea and now only do herbal teas. No other caffeine. I made the switch prior to the beginning of radiation. It has lessened daytime urinating.

JWS13 profile image
JWS13 in reply toMgtd

mg..let me know after you meet with urologist what he told or gave you to reduce the number of times....thanks..appreciate it...best..jws

Mgtd profile image
Mgtd

Like you I am 21 days out of 20 sessions of radiation. First two weeks were tough with diarrhea and night time peeing. Like you I also was peeing 5 times a night. My RO Dr had given me FlowMax to take one pill at night. Did a good job of eliminating the burning but did nothing for the night time peeing.

Last week I had a follow up appointment with MO NP and we discussed this peeing issue. She sent me for some blood work and consulted with the MO Dr. She called me at home and told me to go buy some Saw Palmetto. I have been taking it for about a week. Last night I only had to pee one time.

So the bottom line is I have no idea if time had solved the issue or the Saw Palmetto had an effect. I did notice after taking it that my peeing had gone from 5 to 3 to 1 times in less then a week.

I can live with one time a night.

Your mileage may vary!

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