Hot Flashes and Veozah: I am 19 months... - Advanced Prostate...

Advanced Prostate Cancer

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Hot Flashes and Veozah

Huzzah1 profile image
18 Replies

I am 19 months into my 2 years on ADT + Zytiga & P. 6 months into it, I started experiencing severe hot flashes. Severe = Full body sweats, dripping off my brow, palms wet and needing to mop it off my chest or change my shirt. Every 1 -2 hours. I tried 4 antidepressants that didn't work. I then started Acupuncture, this was most effective until I took a 3 week holiday overseas. When I started back, it didn't seem to have the same effect.

I then decided to try Veozah. It's been life changing. My HFs are down by more than 90%. I no longer carry a bunch of handkerchiefs with me and don't always need to know where my portable fan is. The only downside is the cost as it is not covered by insurance as it has not approved for use by men for hot flashes. It's $570/month. I started thinking that if I woke up every day and was asked to pay $18 to Not have hot flashes all day and night, would I do it? Heck yes!

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Huzzah1 profile image
Huzzah1
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18 Replies
mrscruffy profile image
mrscruffy

I live in AZ so most every day is hot so flashes are just part of living here hahaha. I mitigated the hot flashes with working out at gym 5 days a week. Haven't had one in ages

Huzzah1 profile image
Huzzah1 in reply to mrscruffy

Yes, working out is a must while on ADT. I’ve been a regular at the gym 3-4 days a week. Was also doing a fast 4 miles walk every morning until my knee balked. I’m have a full knee replacement in just over a week!

mrscruffy profile image
mrscruffy in reply to Huzzah1

Good luck with the knee replacement, I need two but have been putting off for last couple years, guess time to look at getting it done

Huzzah1 profile image
Huzzah1 in reply to mrscruffy

I am having the newest version of the surgery - Quad Sparing. The standard procedure has the big zipper you see on folks that goes 10" down the middle of the leg, they cut the quad muscle and tendon resulting in all that soft tissue damage that needs to heal. In Quad Sparing, they make a 4" incision on the inside of the knee, move the quad and patella out off to the side and do the surgery. the same attachments are used. It's a lot more technical and takes longer but recovery is much quicker. I'll find out soon!

mrscruffy profile image
mrscruffy in reply to Huzzah1

Keep us advised. Sounds intriguing

j-o-h-n profile image
j-o-h-n in reply to Huzzah1

Tell doc, to make sure you don't catch kneemonia....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 01/20/2024 4:28 PM EST

JWPMP profile image
JWPMP

Any side noticeable side effects?Jim's MO doesnt want to prescribe it due to the lack of clinical trials on men doing ADT HT. I think its merely FDA red tape and could sure be helping a lot of men NOW. Would like to see if his pcp would prescribe it.

Huzzah1 profile image
Huzzah1 in reply to JWPMP

I haven’t noticed anything. I know they say to watch the liver numbers which I’m doing anyway.

JWPMP profile image
JWPMP in reply to Huzzah1

Thank you.Yeah my husband is on ADT HT for life, so he gets his CMP regularly also.

Appreciate the info, thanks again

FortyWinks profile image
FortyWinks

wow, delighted for you. I’m in the UK and approval for NHS use is pending. All about cost benefit so no guarantee. HF really get me down and make wonder whether the quality of life test has been breached.

fish7days profile image
fish7days

20mg Megace worked exceptionally well for me. Inexpensive and covered.

Mrtewills profile image
Mrtewills

I have been using black cohash.. Dramatically reduced my HFs. I'm on Eligard/Erleda.

FortyWinks profile image
FortyWinks in reply to Mrtewills

Good to hear. Just started on black cohosh so hoping I’ll see some benefits.

No_stone_unturned profile image
No_stone_unturned

I’m so happy to hear you found something that works for you. I like you suffer from extreme severe hot flashes that zeros out any quality of life for me. I was excited to try veozah and had no problem getting it covered by insurance. (It’s medically necessary). Unfortunately for me it did not provide the much anticipated results I was looking for. To date the only thing that works for me is estradiol gel. I also get the added bonus of a little limbido. :)

carbide profile image
carbide

I was wondering if this woman's HF drug would help men on Eligard. Glad it worked for you.I could not afford $6,840 per year.

Per drug prices in America, very sad. It's all about the money. Many politicians are on the take from Big Pharma lobbyist. Thank God, Jonas Salk did not get a patent for polio vaccine back then. The capitalistic greed in medicine must be stopped.

jackwfrench profile image
jackwfrench

Good to hear your success with Veozah- my MO prescribed venlaxafine and with keeping up gym activity, it works for me.

TJGuy profile image
TJGuy

We really need a clinical trial on men with PC on ADT to see if it proves effective on men. Hopefully that gets done, but I have no idea if any are in progress or planned.

Joeym1040 profile image
Joeym1040

Try estradoil patch .01mg change every 3 days. Cost about $30 month with GoodRx.

Only thing that ever really worked for me, plus good for bone health.

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