Side Effects or Symptoms?: When I... - Advanced Prostate...

Advanced Prostate Cancer

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Side Effects or Symptoms?

dac500 profile image
15 Replies

When I started Lupron in November 2018 hot flushes were my primary side effect. Other side effects included locked fingers and Gynecomastia. Occasionally, I had pains in my arms and legs tingling in fingers and toes. In the last few years I complained about sharp pains in the groin. Lately, I developed leg and hip pains, particularly, when lying down.

When I started Abiraterone in November some of this side effects became more pronounced. I started having shoulder pains leading to fingers painful to touch. Left shoulder pain led to numbness in the hand and fingers. A toe in the left foot is painful as if I have been bitten by bees or fire ants. I know some of these may not garden variety of side effects from Lupron and Abiraterone.

Last week I had an angiogram following CT scan diagnosis of severe coronary artery calcification involving multiple artery. The angiogram confirmed CT scan diagnosis with a little bit down grading of LAD artery blockage from 70 to 80% to 60 to 70%. FFR was 0.82. No stents were placed.

I know some of the symptoms I mentioned in the last two paragraphs could be symptoms of coronary artery blockage. Since blood flow is good with a reduction of about 20%, I shouldn't expect shoulder pain and painful fingers symptoms of artery blockage.

I would like to from others whether they had or having similar side effects.

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dac500
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15 Replies
Oldie68 profile image
Oldie68

I have been on Lupron for about two years now. I do have bone metastasis, which apparently you don't, but I have the left shoulder pain you describe. Occasionally I also have the locked fingers and the tingling in fingers and toes. I also have cramped legs at night, which gets better with exercise. The gynecomastia is mild so far. No numbness in hands or fingers so far. I probably have some calcification of the arteries but it might be milder than yours. I think these are mostly side effects, not symptoms, but I might be wrong.

Ian99 profile image
Ian99 in reply to Oldie68

I have been on Zoladex for 2 years, and also have bone mets, like you. I have very recently noticed left shoulder pain, like you and dac) and am struggling to figure out what it is and why there. Mine is on the left shoulder blade. Only manifests when I make certain movements.

Ian99 profile image
Ian99 in reply to Ian99

Further to my earlier post, I went to the gym today and the physio performed a number of massaging techniques which have virtually eliminated this shoulder pain. I’ll spare you the details but I am convinced it has nothing to do with PCa, at least in my case.

j-o-h-n profile image
j-o-h-n

I wake up every morning with two thoughts... 1. Holy shit, I'm alive....2. Holy shit, pain again.

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 01/03/2024 8:05 PM EST

addicted2cycling profile image
addicted2cycling in reply to j-o-h-n

WHAT!!! No 3 --- Holy shit, I better pee and shit in the bowl before it's in my PJ's???? 😬 Maybe I'm the only 1.

j-o-h-n profile image
j-o-h-n in reply to addicted2cycling

I must admit it......you caught me....(third thought) I'm so embarrassed.......3. Holy shit, Did I finish the chocolate chip ice cream last night?.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 01/12/2024 11:44 AM EST

addicted2cycling profile image
addicted2cycling in reply to j-o-h-n

🫠

p.s. - If you haven't found the Breyers Chocolate Truffle at food store, your local Target should have it.

j-o-h-n profile image
j-o-h-n in reply to addicted2cycling

Ok I'll check out at the local "Tar J" thanks.........

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 01/12/2024 12:26 PM EST

Kaliber profile image
Kaliber

#3. You forgot : is that my wife holding that mirror up to my mouth. 😂😂😂😂

Just say’in

😁😁😁

j-o-h-n profile image
j-o-h-n in reply to Kaliber

#3. Magnifying glass looking for curly blond hair in my teeth.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 01/12/2024 11:46 AM EST

Kaliber profile image
Kaliber in reply to j-o-h-n

it’s like a lot of my posts yayayay I kinda “ plex “ things up too much.

It’s in Shakespeare’s hamlet and an older days medical procedure. Holding a mirror up to life and holding a mirror up to one’s mouth to see if someone is still breathing…..

Sorrry ….. 😂😂😂

j-o-h-n profile image
j-o-h-n in reply to Kaliber

Geez Kal...........I may be dumb but I'm not stupid............

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 01/12/2024 8:15 PM EST

Kaliber profile image
Kaliber in reply to j-o-h-n

uh huh …. You are neither dumb or stuuupid buster. Yayay yay yay yayay yay. Not by a long shot …. Not gonna blow your cover buddy …😂😂😂

❤️❤️❤️

dac500 profile image
dac500

After a while the replies are totally unrelated to my original posting!

Kaliber profile image
Kaliber in reply to dac500

Yea ….but it’s been 11 days and it’s kinda played out by now …..

Isn’t it warm and fuzzy tho, to feel especially good about getting a bit of what you wanted and stimulating socialization and nice camaraderie among your brother croakers / caregivers … just say’in. Just IMHO …. For me ( for what that’s worth ) that would be a great thing. You done good buddy.

❤️❤️❤️

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