Sorry to complain but this is more of a search for someone that maybe has gone through the same symptoms.
If you have followed my progress I have done pretty well for a Gleason 9 with advance metastatic disease which I had since my official diagnosis in March 2017.
I had only mild pain with docetaxel mostly in my feet and shoulder but it went away within 4 months of completing chemotherapy.
Since the end of November/beginning of December this year I started getting back and rib pain which I attributed to my metastatic disease but over the last month this pain is migratory and intensifying. The worse pain is in both groins and both legs and my lower back. I now have to take pain meds around the clock and get woken up with pain at night along with my previous post on night sweats. I actually feel better when the night sweats come on (pain wise).
I am now thinking maybe this is due to Xgeva or Lupron/Eligard. I’ve been on Xgeva since May 2019 with no troubles and Lupron since this trip all started.
Just to rule out your possible diagnosis I have a clean US for DVT, not dehydrated and normal electrolytes.
Any fellows out there get this side effect from either medication? I hate sounding wimpy but I really can’t hack this unless I have tons of pain meds on board. I also tried Benadryl with no effect. I will not get another injection of either medicine until these symptoms resolve - as if side effects the treatment is way worse than the disease
Thanks for your input...