Q & A with my husband's MO

[Tinuriel]

I'm posting this in case someone finds it helpful. The scans show visceral as well as bone mets. That plus a steep rise in his PSA and the start of chemo really soon have us in a sober state of mind. Continuing to lean on Jesus for strength.

docs.google.com/document/d/...

[GSDF]

Continue, and be comforted:

"He will be with you; he will not leave you or forsake you. Do not fear or be dismayed." - Deuteronomy 31:6-8

[Tinuriel in reply to GSDF]

Thanks!

[RyderLake2]

Hello,

I am assuming your husband is on an Androgen Deprivation Therapy (ADT) drug. What else is he taking?

[Tinuriel in reply to RyderLake2]

Lupron, and until recently Xtandi. Recently finished 6 rounds of Zofigo. I'll check to make sure this is up to date in my bio.

[maley2711]

Thanks.....your Google doc info may be helpful to some men here ! I've never tried to "save" a Google doc, but I will try to save yours!!

[Tinuriel in reply to maley2711]

Cut and paste works if saving it is problematic. 😊

[85745]

"Continuing to lean on Jesus for strength." Amen ! Research Bovine Lactoferrin , also ck out Ursolic acid, Artemisinin for PC. So many more out there. The first rule of medicine should be do no harm, so my opinion is if it does no harm and it may only help... why not ? God Bless

[LongevityAT]

Yes, thank you for the Google doc. Valuable to have as we each continue our journey and can use this to add to add to or delete based on our situation.

[Bethpage]

My husband, prostate 150+ grams, had a simple prostatectomy (11 years of TRUS biopsies had been negative) in 2014. The possibility of RT was ruled out for him way back then. I wonder what the cutoff size is?

[Tinuriel in reply to Bethpage]

I doubt there is anything "simple" about a prostatectomy. 😊. I've not heard anything about size being a factor in determining RT. Perhaps others here know something.

[Bethpage in reply to Tinuriel]

I'm sorry. You must not be aware of the difference between simple prostatectomy and radical prostatectomy? Here's a copy/paste so that you'll know the difference. As opposed to radical prostatectomy, simple prostatectomy is not done to remove the gland entirely, but to remove tissue so as to relieve BPH. "What Is a Simple Prostatectomy?

Problems with urination can reduce your quality of life. Getting up in the night to urinate or having to urinate often can interfere with your daily activities. You may even get frequent infections or bladder stones. These are all symptoms of benign prostatic hyperplasia (BPH), or an enlarged prostate.

The prostate surrounds your urethra, the tube that carries urine from your bladder to your penis. Problems arise when the prostate gland becomes large enough to interfere with your urethra. If your prostate becomes very large, your doctor may recommend a surgery to remove the inner core of your prostate gland. This kind of surgery is called a simple prostatectomy."

The term is a medical term, not mine. Sometimes best to inform yourself before you ridicule someone? Said kindly.

[Tinuriel in reply to Bethpage]

Wow, you're right, I was not aware that there was a difference. Thanks for the clarification. So much to learn and absorb around all this! I apologize.

[j-o-h-n]

Dr. Guru Sonpavde (with Advent Health) education: Christian Medical College Vellore, Vellore, India

Dr. Mitchell Machado (with Advent Health) education: Saba University School of Medicine in the Dutch Caribbean.

These two would not be my "cup of tea" if you didn't ask me.......

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 09/15/2023 2:24 PM DST

[Tinuriel in reply to j-o-h-n]

Hi there, j-o-h-n! Yeah, I kinda wish our docs had better pedigrees. But when I compare what they tell us with what I'm learning about best care here in this forum, it lines up. When I ask about things I've read about here, they are open and have sometimes even pivoted. Bottom line, we trust them, they take time to hear us out, and seem to know about the latest advancements - plus they talk to each other, so it feels like we have a real team. Sonpavde actually participated in the BAT trials that were based at John Hopkins. It's working for us, and I'm grateful.

[j-o-h-n]

I guess I'll just have to say what my wife says to me....."Dear, if it floats your boat, then it must be a joke"..........(Best Wishes and I hope it keeps working for Mr. Tin).......God Bless

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 09/18/2023 12:02 PM DST

[Tinuriel in reply to j-o-h-n]

😄 thanks, friend.