Hi Gents,
Does anyone know what I can do to curtail the effects of neuropathy to my fingers from docetaxel?
On to a different subject, last Saturday I went to the ER due to extreme chills, but no fever. I was admitted to hospital with the trifecta of sepsis, pneumonia and my second UTI of the year🤦🏻♂️. Home now, not a fun week.
Thanks for any recommendations!
I use compression socks, CBD and left side sleeping with right foot toes touching left foot heel and that reduces but does not eliminate annoyance of my neuropathy
Try gloves with cold packs while doing the treatments, the gold does not let the chemo affect where it is cold. It affects my hands also, have broken dishes when dropping them due to the feeling not being there.
I'm sorry to hear this. Have you been getting Neulasta?
Does Neurontin help with the neuropathy?
I have very minor neuropathy (peripheral) just some tingling a little occasional numbness and even less frequently sharp shooting pains of very short duration. i did cold mitts for 10 cycles of doxy but gave up on the boots. I started taking neurontin (gabapentin) twice daily and have had virtually no neuropathy after about a week on the neurontin. i started the neurontin because i did not want the neuropathy to get worse. some people tolerate gabapentin very well but others don't. i do not have any side effects. my husband has extreme side effects but tolerates pregabalin which i think is similar.
Hi Allen,
Yes, I am getting Neulasta. I have been on Gabepentin for a number of years. I also sent an inquiry to my MO. This group, of course, has a wealth of knowledge.
If Gabapentin is no longer doing it, see if you can get Pregabalin. It's the successor to Gabapentin. My wife has MS, and moved to that.
Hi Terminal - has Pregablin helped your wife. my gabapentin does not seem to be working.
it did.
She was taking too much gabapentin
Thanks I am taking 900M MG's of Gabapentin three times a day and it does not seem to be working, How much do you have a Gabapentin was your wife taking
Close that, 3000.
Thanks - I just have neuropathy in my feet but it is very bad tingling and numbness. Did PREGABLIN have a positive effect
Did you try: Duloxetine (Cymbalta) Hcl Dr Caps 30mg once a day (for leg/nerve pain) -
Need Prescription, works for me......Hope it works for you....
Good Luck, Good Health and Good Humor.
j-o-h-n Friday 05/26/2023 8:06 PM DST
I used cooling mitts and socks. I still ended up with some neuropathy in my feet so I can't say if they actually worked or not. I've heard mixed results. On the upside my neuropathy seems to be slowly abating. I've read that neuropathy symptoms usually reduce over the course of a year.
Thanks. I just ordered some!
I had docetaxel in 2019 for breast cancer and my hands were severely affected. Cortisone injections to affected fingers helped. I also did things that kept my hands active, like baking. Good luck.
My husband suffers ( not saying that lightly) from neuropathy from 5FU chemo . 20 years and many meds offered little help and lots of side effects He currently takes Gabapentin and it does offer relief. Also CBD creams topically help when it gets really bad at night.
Regarding your recent ER visit. Sounds like you were lucky to get care when you did Take good Care.
Three fingers on left hand were numb and tingly. After blood tests I was prescribed weekly Vitamin D3 capsules, and Vitamin B12 (self) injections. Tingling and numbness went away after 2 months. Blood work now has normal levels of D3 and B12.
As a musician, I feared what I’d heard about Docetaxel-induced neuropathy in the extremities but especially in the fingers of course. Besides the Neulasta, I iced them during each session. My docs and the clinic techs considered icing, caps etc unproven but worth a try. I’ll never know if it ‘worked’ but I had no problems.
As others have speculated, the level of activity in my hands (I practice hours daily) was probably beneficial.
Similarly, I exercise a great deal which may have helped prevent it in the legs and feet too. Circulation is always good, whether directly responsible for preventing neuropathy or not. Move those hands as much as you can.
I’ve had success with gabapentin by just upping the dosage. I remedied repeated breakthru neuropathy episodes with this approach; and, now I’m actually tapering and the symptoms are still not reappearing.
I will check with my doctor before adjusting my dosage - it is worth looking in to. Thanks.
From Dr. Moyad’s The Supplements Handbook, I took his # 1 recommendation for peripheral neuropathy which is Alpha Lipoic Acid (ALA). I take one 600 mg before breakfast per his instructions and another 200 mg before dinner. This has really quelled the neuropathy in my feet.
Doctors may prescribe gabapentin or Lyrica (pregabalin) for neuropathy. A CBD + THC gummy works for me at night for sleeping (I like the Wyld brand version) . I live in Oregon where cannabis is legal. Good luck!
I am already on Gabepentin. Weed just makes me hungry and stupid - those days are in the past!
dm1121 may I ask how much CBD and THC you are taking. I am having some neuropathy in my inner thigh and crotch area, not sure why as it started before chemo, but am looking for some relief. I am in Canada, so can buy the stuff legally . Thanks
This website shows what I have been taking and the dosage. getsava.com/shop/wyld-pear-...
Good luck.
thanks
I’ve been using the cold pack mittens and socks during the infusions. Have some early symptoms in fingers after 5 infusions. One more to go, hopefully it doesn’t get worse!
I strongly suggest you try a special vitamin product that requires a prescription, called MetanX. I assume it has been approved by the FDA, as it requires a prescription, but I do know that testimonies on its website clearly claim relief and even reversal of neuropathy. It takes a month or so to experience improvement. I had light to moderate neuropathy long before cancer and hormone meds, so it is hard to know what affects what. I have also been taking Lyrica and Celebrex. I was diagnosed with PCA in September 2021, and began Lupron and Zytiga then. My neuropathy advanced to moderately severe a few months into ADT, and that's when I started MetanX. So have used it for about a year, and my neuropathy has definitely improved. I regained feeling in my feet and toes. Fortunately, it hasn't affected my hands.
You can Google MetanX and find their website. It is not covered by insurance, and now costs $65/month through a Florida pharmacy linked to their website. I truly believe it helps!
Regarding Metanx....it has 3 mg of L-Methylfolate and I believe there is some concern by researchers about the negative effect of Folic acid supplements on PCa and PCa recurrance. I have been not taking it even tho it was prescribed by my Neurologist.
There are a number of studies on PubMed, just need to google it or better yet search PubMed. My Folate serum levels are normal as is my B12 level.
Tall Allen, do you have any info on this research that has been done on Folic acid supplements versus normal dietary Folate levels? Dietary folate serum does not seem to affect PCa. I can't seem to find anything that has been done in the last 10 years.
Thanks if anyone has info on this!
You DID have a bad week. I'm sorry. Glad you are doing better. Good on you for getting yourself to the ER when you did.
My MO recommended Vit B6 100 mg 3X a day. I think it has helped somewhat. Acupuncture also seemed to help but wasn't durable.
Xtandi & Neuropathy 
Not yet 50 and already a bad diagnose 
Neuropathy for $100, Alex!
Chemotherapy Induced Peripheral Neuropathy
Preventing Peripheral Neuropathy 
