forgot Lupron injection : I have not... - Advanced Prostate...

Advanced Prostate Cancer

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forgot Lupron injection

fredyworks profile image
16 Replies

I have not posted in a while I forgot my 3 month Lupron injection for 4-19. 23.

I was getting 4 month injections from university of penn and I wanted to use local

cancer center !

I noticed today Friday 5-14 around 8 pm.

I sent email to oncologist tonight and will

Call Monday!

How long does it take for Testosterone to Rise after missed injection?

Also I have radiation damage due to IMRT at

University of Penn back in 2019

To bladder neck causing calcification. Had

Surgery to scrap them off 2022

I had hyperbaric oxygen therapy 2022

And it cleared 80% .

I have appointment at Cooper university hospital with new urologist to remove bladder stones and oxygen therapy.

Thank you

Roy

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fredyworks
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16 Replies
Tall_Allen profile image
Tall_Allen

It starts to wear off immediately, but the effect of that will vary.

fredyworks profile image
fredyworks in reply to Tall_Allen

Thank you Tall Allen you are correct.

I have issue with sleep deprivation due to radiation damage at bladder neck !

Thank you for your help.

tango65 profile image
tango65

Unless my phone and computer calendars are wrong, today in the USA east coast is 4/15/23 and in the west coast is 4/14/23. You have time to get you lupron by 4/19/23.

It takes time for the testosterone to increase after stopping lupron. It is variable .The increase usually takes months to reach values above 50.

fredyworks profile image
fredyworks in reply to tango65

Thank you for your help You are correct !

I have sleep deprivation due to radiation damage at bladder neck.

carbide profile image
carbide in reply to tango65

😁😂

E2-Guy profile image
E2-Guy

Screw Lupron jabs! Please try to find some DES ( I believe Patrick has a source), or the 'Patch', or transdermal E2 gel.

Five years ago the cancer had metastasized into my sacral lymph nodes and the surgeon that did my radical prostatectomy 20 years ago talked me into surgically removing the identified ones which did little to lower my PSA. Dr. Robert Flanagan at Loyola hospital in Maywood, Illinois (who cured my father and my older brother); however, is now retired, suggested that I try to find some DES. Instead, Dr. Richard J. Wassersug (my mentor) told me about transdermal E2 gel which has been keeping my PSA at undetectable levels for about 5 years now with ONLY tiny boobs as a side effect. I haven't been to a doctor since the unnecessary LN surgery 5 years ago.

Stevecavill profile image
Stevecavill in reply to E2-Guy

That is bad advice. You’re not a doctor, you have no idea about Roy’s diagnosis, or current status. Suggesting dropping known SOC treatment for some anecdotal treatment is irresponsible.

E2-Guy profile image
E2-Guy in reply to Stevecavill

You're 21 years younger than I am; however, I'm still 'working' on condos that I buy and sell. Your treatments don't appear to be doing much for you, so I guess what I'm doing is also a "bad" idea! Tell Dr, Richard Wassersug (my mentor) that he doesn't know what he's talking about and that his advice is "bad"!

My PSA levels for the last 4 years (since I started using the E2 gel) have been undetectable. Can you please tell me why using transdermal E2 gel is a " bad" idea?

20 years ago my urologist gave me about 5 years, and I'm still totally asymptomatic.

I simply made a suggestion, I'm not prescribing anything for anyone! I guess ONLY MDs know what's best for us. I had 3 regrettable prostate cancer (PCa) related surgeries since I was diagnosed with PCa and I refuse to have any more…not even the AUS surgery which I once considered! The RP left me totally incontinent and impotent, plus the cancer recurred, the nephrectomy was a BIG, BIG mistake since I lost a kidney for nothing, and the lymph node surgery was worthless (it merely lowered my PSA for a few months).

Perhaps I should scrap the E2 gel and get started on that wonderful "chemo"!

Good luck with your current therapy. I'm not being facetious…I truly wish you the best with your "SOC treatments"!

Dachshundlove profile image
Dachshundlove

my husband had his last injection in June and his testosterone is still very low.

London441 profile image
London441

?

It’s not 4/19/23 yet.

BanjoPicker profile image
BanjoPicker

I had a 4 month Eligard shot. Five months later it was still working. Took 7 months for the testosterone to return to pre shot levels.

Hailwood profile image
Hailwood

I forgot my last one as well and a T result 3 months later remained at 0.5. Don’t feel too bad, and I have bloodwork in another 2.5 months also

depotdoug profile image
depotdoug

I would not worry until you get your Lupron injection April 23rd this Sunday. But on a Sunday? Youv'e got time to get it. I wish I knew about the DES or the 'Patch', or transdermal E2 gel.

GoBucks profile image
GoBucks

Wow. He's from the future. Can you tell me who wins the Kentucky Derby?

lowT163 profile image
lowT163

mine only took 3 years to get back to 200. 2 years to get above 100. I’d say you are fine. Everyone is different.

maggiedrum profile image
maggiedrum

It took many months for my T to even get close to what it was prior to my first (and only) 3-month shot of Lupron.

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