Coming up on number 6

[Jackpine]

This coming Friday I’ll be receiving my 6th and last LU 177 injection and looking forward to the PSA results. At number 4 my PSA was 0.5. At #5 it was 1.1 so it’ll be interesting to se the number this week. Scans are looking great with no new metastasis and previous metastasis being resolved. Our hope is after this last injection we’ll do a choline PET scan and try to locate any residual lesions and hit them with SBRT.

This treatment has done great things for me with minimal side effects.

I know I still have active disease but for now I’ve beat it back to the point where I played my first round of golf yesterday and felt good doing it. Now it’s time to get ready for a north-woods fishing trip in two weeks.

Stay strong and positive, let’s send this beast packing.

[CantChoose]

That's so wonderful! I hope fervently that we can get into this study. My husband is newly diagnosed so he has to fail at a first line treatment before we can try, which is maddening.

Enjoy your summer - - you've earned it!

[Jackpine in reply to CantChoose]

Thanks cantchoose,

I was fortunate to get in the study and the results have been wonderful. I know it’s madding that you have to do all the other treatments first but in many cases they work well for many people.

We need as many arrows in the quiver as possible to fight this thing.

Stay strong and positive.

[Hidden in reply to CantChoose]

Keep hope that the first line works .

[NPfisherman]

Congratulations Jackpine... the PSA can bounce around with PCa cell death....the scan improvement is great news...get the choline PET scan and do the SBRT--great plan.... drive this disease back for many years hopefully... good luck..

Fish

[CJ4J]

That's awesome Jack!! My husband just completed #3 and he is getting choline pet scan this week. He is feeling pretty good as well.

I hope your PSA goes back down this week and stays down!!

That's also good to know about your next step with SBRT. Our trial doc brought up Thorium trial coming as the next step in 6-9 months.

Stay strong!!

[Jackpine in reply to CJ4J]

Cj4J,

Awesome to here your husband is doing well and that he’s feeling well. My biggest side effect is nausea but it’s manageable.

They have talked to me about Thorium yet but because they think I may only have a single lesion SBRT might ba a good solution.

We are praying for great results for your husband!

[CJ4J in reply to Jackpine]

Thank you!! Are you taking Xtandi with the trial too?

[Jackpine in reply to CJ4J]

CJ4J,

I’m only doing the LU177 and Lupron. Zytiga stopped working and Lupron isn’t working either but they wanted me to continue on it till after I’m done with injections

[Tall_Allen]

Choline? Aren't you already getting a PSMA-based PET scan, which is way more sensitive?

[CJ4J in reply to Tall_Allen]

Allen,

The vision trial only gives you the initial PSMA scan. Since it has not been approved by the FDA, they won't give you another one nor can you pay for one. So, if you really want to see what's happening, you have to get a choline or axium petscan. We have already learned that the Bone and Ct scan's don't show us everything. But for the trial, they only compare Bone and CT.

[Jackpine in reply to Tall_Allen]

For the trial they only use CT and bone scans

[Hidden]

Go north young man , catch your limit . May this final one do its job .

[ronnie1943]

Good to hear!!! Just read your post to my husband Sam. We are going to meet with a doctor at Jefferson in philly this Wednesday for a consultation for the Lu-177 treatment. Sam has been on chemo every three weeks for seven months and it's starting to fail him. Jack, may I ask where you are getting your treatment?

Love, your commett, let's send this beast packing !!

Never give up and never give in!!! Best wishes and good health.

Sincerely, Lynn

[Jackpine in reply to ronnie1943]

Lynn,

I receive my treatment at the Mayo in Rochester Mn, as part of a trial. This treatment has worked wonderfully for me. Last fall my PSA was 110 and doubling every month, and bone Mets from my skull to my feet.

I hope your husband can receive this treatment and that he has similar results.

Stay strong!!

[j-o-h-n]

Congrats jack..... now tell the truth.....how many mulligans?

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 04/29/2019 10:44 PM DST

[Jackpine in reply to j-o-h-n]

Lol I tried to keep it honest. My first shot cleared the ladies tee by at least 15’. Bad thing is the friend I was playing with shot 79 and it was only his 3rd round of the year.

[j-o-h-n]

Jack If you want to beat your friend, you have to stop using square golf balls.

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 04/29/2019 11:20 PM DST