Increased Fatigue: I have been on... - Advanced Prostate...

Advanced Prostate Cancer

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Increased Fatigue

Drphil1938 profile image
38 Replies

I have been on Lupron, zytiga & prednisone for six months and side effects have been minimal. Tests look good. However, in the past 7 to 20 days my fatigue level seems to have increased. Has anyone else experienced fatigue fluctuations? My Lupron injection is in the 10th week. I also wonder if the prednisone is causing some of it. Any opinions? I have bad knees and arthritic lower back problems so cant do much exercise such as walking.

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Drphil1938 profile image
Drphil1938
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38 Replies
Magnus1964 profile image
Magnus1964

If you have access to free weights that would be good to fight through the fatigue.

Drphil1938 profile image
Drphil1938 in reply to Magnus1964

I have a couple 5 and 10 pound weight that I can use.

Tall_Allen profile image
Tall_Allen

My gym has a machine that works the arms only - it is sort of like foot pedals on a stationary bike, except for the arms only. Your BP and bloodwork should tell you if your prednisone intake is too high or too low.

j-o-h-n profile image
j-o-h-n

To Drphil1938,

Fortunately I'm not fatigueing yet but I'm starting to "run out of breath easily".... I think I've had enough of this Pca crap so I'm gonna go back to chasing women.........(wanna join me?)

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 10/24/2019 4:51 PM DST

Mamabakes994 profile image
Mamabakes994 in reply to j-o-h-n

J-o-h-n, I thank God for you! Going thought this hell and your comments make me smile, could not ask for a better compadra!

j-o-h-n profile image
j-o-h-n in reply to Mamabakes994

Thank you... I try, I try......

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 10/24/2019 10:54 PM DST

Kaliber profile image
Kaliber in reply to j-o-h-n

😇

j-o-h-n profile image
j-o-h-n in reply to Kaliber

👀

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 10/24/2019 10:55 PM DST

Kaliber profile image
Kaliber in reply to j-o-h-n

Lol

Peace brother j-o-h-n

Drphil1938 profile image
Drphil1938 in reply to j-o-h-n

Sure, I will bring a net, it might help us catch one. 🍸🍸🤠

Ps: my wife is laughing, wonder why?

j-o-h-n profile image
j-o-h-n in reply to Drphil1938

DEAL... you bring the net(s) and I'll bring the pepper spray.... You wonder why your wife is laughing?.....hmmm cause women are smarter than men.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 10/25/2019 12:20 PM DST

monte1111 profile image
monte1111 in reply to Drphil1938

I am glad j-o-h-n is only bringing pepper spray. I thought it would be a hatchet.

Stegosaurus37 profile image
Stegosaurus37 in reply to j-o-h-n

I tried chasing women. But one caught me.

As one of my former bosses said, just because you're on a diet, it doesn't mean you can't read the menu.

j-o-h-n profile image
j-o-h-n in reply to Stegosaurus37

Women are smarter and faster... (you know the saying "woman can run faster with their dress up than a man with his pants down").....

The boss is always right.... right?

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 10/25/2019 12:23 PM DST

lincolnj8 profile image
lincolnj8 in reply to j-o-h-n

How can you run carrying a bowl of ice cream?

j-o-h-n profile image
j-o-h-n in reply to lincolnj8

👀😃👀

It's the lady who I'm chasing who's carrying it. That's why I'm chasing her..since any other reason now would futile on my part.....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 10/27/2019 1:00 PM DST

Kaliber profile image
Kaliber in reply to j-o-h-n

Yayahahahaya

j-o-h-n profile image
j-o-h-n in reply to Kaliber

Hopefully if I catch her she'll let me lick the spoon........😈

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 10/27/2019 3:36 PM DST

Drphil1938 profile image
Drphil1938 in reply to j-o-h-n

I hope the flavor is to your liking.🍸🍸🤠

j-o-h-n profile image
j-o-h-n in reply to Drphil1938

Did you say, more to my licking?

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 10/27/2019 5:24 PM DST

Drphil1938 profile image
Drphil1938 in reply to j-o-h-n

No, I know you are multi-talented licker, it's the flavor I was concerned about.🍸🍸🤠

j-o-h-n profile image
j-o-h-n in reply to Drphil1938

Sorry I misread that, chocolate chip of course.......

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 10/27/2019 6:24 PM DST

Kaliber profile image
Kaliber in reply to Drphil1938

Yummmmmmmm .... fishy ( but not too squishy). A dip for finger snacks. Oh yea ........

( Yea .... we’re all talk’ in all this $hit like we bad .... seriously tho .... picture that 70 year old grey haired hunched over old lady wife that smells like Ben Gay .... ahhhhhhhhhhhh ..... er .... takes a lot of man to stand in there and take one for the team )

Yayahahahaya yayahahahaya

lincolnj8 profile image
lincolnj8 in reply to Kaliber

EeeeeeeeHaaaaaa

Kaliber profile image
Kaliber in reply to lincolnj8

Lol 👍

Kaliber profile image
Kaliber in reply to j-o-h-n

Yayahahahaya yayahahahaya love it. I’ll bet you are an experienced and highly skilled spoon licker too.

We might be down but we are nowhere near out...... are we. Us guys still got a few tricks up our sleeves .... right. As long as we can make the misses happy - smile it’s all good. Makes you feel like you are still relevant.

“ a squirt in da beard is not to be feared “

Peace brother ✌️

j-o-h-n profile image
j-o-h-n in reply to Kaliber

“a squirt in da beard is not to be feared “.... 😃😃😃 That one is going in my joke encyclopedia..Thanks.... I've been known to lick my eyebrows when the proper time calls for it....

Peace and Piece bro.....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 10/27/2019 10:21 PM DST

Kaliber profile image
Kaliber in reply to j-o-h-n

Bragger...... yayahahahaya yayahahahaya

pilot52 profile image
pilot52

Can you use a Peloton? Wonderful workout that keeps you having fun...Over 200 scenic rides from all over the world....will connect to your smart tv for real time yoga classes, and you can get into real time spin classes...something for everyone..best piece of workout equipment I have ever owned and I have a dedicated gym in my home..be sure and get the shoes, clip ins ,

justcallmehank profile image
justcallmehank

I am on the same regime, and experience similar fatigue. I have fatigue attacks that can be so bad that I get the shakes and cant walk or talk.

Kaliber profile image
Kaliber

I’m on Lupron Xtandi for a year now and “ all “ of that time I’ve been extremely fatigued. I’m extremely tried and fatigued most of the time. It’s a serious struggle just to get up off the couch and shuffle my lead legs to the toilet. I sleep 12 - 14 or more hours a day sometimes. Alternating hot flashes and chills, memory issues. I run out of breath walking a short distance and huff and puff and turn red out of breath. My psa undetectable and oncologist happy with my treatment , says the side effects are common in many - most.

Supposedly , it’s not the treatment, it’s mostly the results of removing T from my body ... probably wouldn’t matter what drug a person uses to do that with. Many here in the group say that Zytiga- prednisone is the lesser of the two evils when it comes to the adt treatments for side effects.

My oncologist thinks I’m tolerating the treatment well ( wha ? ) and my wife is happy I’m still here ( introduced to my hospice crew last October but opted to try treatment instead ) .... I’m living in crippling adt hell .

Hey ... what the heck . I hope I can get a few more years of this hell I guess . It’s all worth it when everything is said and done. Way better than the alternative my wife likes to say all the time.

We’re danged if we do and danged if we don’t .... seems like.

We’re all stronger when have each outer to lean on . Lots of great guys and support here ..... that helps a lot.

Peace brother

💪💪💪💪💪 👍

Drphil1938 profile image
Drphil1938 in reply to Kaliber

Hey Kaliber, as stated I have similar problems but not to the degree of yours. I want to help you keep up the fight. As you know our outlook on things is a driving factor. I try to do feel good things; play with my grandkids; read a good book; pray for guidance; and smile despite our situation, life has been good.🍸🍸🤠

Kaliber profile image
Kaliber in reply to Drphil1938

Right on brother , I’m with you on that. We haven’t been dealt the best hand, but we can play the cards we have. Many cancers are 18 months ( or less ) and out so most of us PCa guys are luckier in that respect .

I’ve been lucky so far ( probably should have croaked last October ) there are good good side to things to appreciate as well.

Have a good one friend

in reply to Kaliber

I am right there with ya, well said!

monte1111 profile image
monte1111

I was taking Xtandi and 2 5mg prednisone for 2 years. I convinced doctor to drop the prednisone. She said it was for fatigue. She was right. I now have much more heavy fatigue. But long term effects of prednisone might not be good. She may have assumed I will not have a long term? Prednisone is always prescribed with Zytiga. Not a doctor, but just guessing your fatigue is not caused by Prednisone.

Drphil1938 profile image
Drphil1938 in reply to monte1111

Glad to know . Thanks🍸🍸🤠

KJMinPhx profile image
KJMinPhx

Hey Dr Phil- I am on the exact same regime as you and for just about the same amount of time. My experience is different. I felt the worst effects in the early months. I used to have terrible Shortness of breath but I believe I’ve gotten used to it or it’s gotten much better. I have some fatigue but I believe you beat it two ways: (1) imagine it’s in your head and power through and (2) go to the gym and get a trainer who understands how to deal with an aging overweight cancer ridden man. Both help.

I'm not on ADT or other PC meds and I deal with fatigue. I wonder if the meds I take to deal with atrial fibrillation is the culprit, or is it just getting old -- I'll hit 70 in a few months.

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