Hi all,
my husband has just completed chemotherapy and he will have scans middle of January and will start radiotherapy beginning of February. My concern is how he will be monitored as he’s non secreting. His PSA was within normal limits when he was diagnosed with APC but did drop when treatment started but we were told this wouldn’t be used as an indicator of spread as can be a false reading while having treatment. Has anyone passed the stage of chemotherapy and radiotherapy, with treatment having had the desired effect, and have non secreting PSA, how were you managed and how often ?
also how long did you all manage after chemo and radiotherapy before it started to spread again and treatment needed to restart, although I realise hormones are lifelong
My very best wishes to you all
My PSA was 1.4 at time of DX and never higher. Gleason 9/10, grade 5. Low psa was due to cancer being a Ductal type, more aggressive. Genetic testing determined I have a broken gene, MSH2, a repair gene. My odds to get this dreaded disease was always 50%. Also due to this, made me eligible for Keytruda. This was early 2021 when treatments began.
I was monitored by quarterly scans. Had two PSMA scans this year and one round of CT scans this past October. Today my cancer is undetectable, and fingers crossed it will not return. Scans per 6months is the 2023 plan w/ quarterly blood work up. With my genetics and ductal form, this beast most likely will return, but for me, round 1 goes to the patient!
I wish you the best. This beast can be beaten or seriously beaten down.