For monte1111, hope this makes ur day... - Advanced Prostate...

Advanced Prostate Cancer

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For monte1111, hope this makes ur day :-) A trip to the Getty museum in LA

dockam profile image
25 Replies

Gonna start sharing a Google photos album of my trips, for y'all to enjoy vicariously or not :-).

My attitude has been "Life's too short to stay home"

youtu.be/KcADqxnQA_4

Let's all journey together and not dwell on d*mn PCa.

photos.app.goo.gl/4LTuz7ZvF...

Fight on y'all

Gonna go do a 5k now

Randy

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dockam profile image
dockam
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25 Replies
Kaliber profile image
Kaliber

Keeeeewl … you’ve got the QOL plan … and doing it . Good for you doc. Looking forward to your albums.

😁😁😁

Kaliber profile image
Kaliber

I met with my new oncologist Saturday morning and have made big changes in my meds and the way I do my meds , blood work etc. … He thinks I’ll be in better condition ( able to walk some ) in a month or two. I’ll be able to use my electric mobility cart much less and be able to get out easier . I wanna be like Dockam …

don’t think it’ll be any 5Ks tho yayahahahaya yayahahahaya.

❤️❤️❤️

dockam profile image
dockam in reply toKaliber

Lol, you wanna be a 70's long *ss hair Chinese guy :-). Welcome to the partyyyyy

Kaliber profile image
Kaliber in reply todockam

You bet I do … 😁😁😁

dockam profile image
dockam in reply toKaliber

Cool, we gotta meet and have this: amazon.com/Kaliber-Non-Alco...

Schwah profile image
Schwah in reply toKaliber

What did he change you from and to? Was it purely for QOL? Or did he think it could better fight your PC? Keep us informed on your QOL and health progress after the change brutha.

Schwah

Kaliber profile image
Kaliber in reply toSchwah

I accidentally replied to you under dockam, please look for my reply there. Sorry buddy.

❤️❤️❤️

Kaliber profile image
Kaliber

Well …. I’ve had 46 consecutive monthly Zometa infusions. Those present 5-8 days of OMG discomfort and pain when I get those. And of course, month after month after month beats you down physically. Every Zometa infusion requires a 11 item blood work up, two days before the infusion too.

So , in every 93 days basically , I have two Lupron implants ( one every 90 ), 3 Zometa infusions , and 3 visits for blood work prefacing my infusions….. plus around 24 days of painful down time ( in the 90 ).

The doc has changed my Zometa infusions to three month intervals … stacking them with the Lupron implants. This requiring just two blood works ups in 93 days .

My oncologist thinks I’m heavily hammered with the original setup and, having 90 days of recoup time ( rather than 2 1/2 - 3 weeks ) …. My body will have substantially more time to recover … which will improve my overall health and strength. The 90 days of interval will allow me to have a much better QOL by having 66% more free time to plan things and get out more successfully, not having to weave thru the scheduling and sickness issues….

The oncologist thinks I’ll improve and grow stronger which will help me fight my cancer better too. My mindset should lift considerably in the process, he says.

My ADT zombie isn’t expected to change but things in general should uptick a bunch.

Ooops I just realized I typed this to dockam and not to you Schwah. I’ll post a note to schwah to look for this under dockam and please ignore this , I m too tired and exhausted for a redo , sorry about that.

❤️❤️❤️

CAMPSOUPS profile image
CAMPSOUPS in reply toKaliber

Your positivity and work arounds in the face of everything you deal with has been amazing.A little improvement will probably put you over the moon lol.

Glad to hear an attempt at change for the better from your docs.

Kaliber profile image
Kaliber in reply toCAMPSOUPS

Thanks buddy, I appreciate it. And yes you are right …even a little upbeat positivity in this truck load of whip a$$ I swim around in is a very BIG deal for me. You have no idea how much better it makes me feel…. Even if it’s just the promise of something a little better, that’s a very good thing. Been nonexistent in recent times. My new oncologist has people skills and seems to get where I’ve been hovering. I’m very happy with him so far. Pretty kewl. I’m almost high on stopping the “ spiral “ a bit ( slowing it down a little at least ) … wooohooo. 😁😁😁

CAMPSOUPS profile image
CAMPSOUPS in reply toKaliber

That's great news brother Kal.My first MO was like that. Always left appointments feeling emotionally good/high in good hands.

About time ha.

Speaking of spiral here's a link but its on Amazon Prime 2 bucks for a movie that's kind of in the Svengoolie genre except maybe has some intensity to it.

amazon.com/Uzumaki-Spiral-E...

Kaliber profile image
Kaliber in reply toCAMPSOUPS

Roger that buddy .. I have AP , I’ll check it out. 😁😁😁😁

marc_andersun profile image
marc_andersun

Great pictures, except try and get your selfie in some if not most!

dockam profile image
dockam in reply tomarc_andersun

Good morning, I don't wanna spoil such lovely art with my mug :-)

dockam profile image
dockam

Okay, got it, I am mildly osteopenic and currently am on Calcium, Vit D and weight bearing exercises. So, haven't had any biophoshanates, and I hope never to need them. I'm 7 1/2 years on ADT and so far am still able to do my lil hikes which I'm totally grateful for - it helps lift my mood.

Fight On Brother

Kaliber profile image
Kaliber in reply todockam

Just having a little fun with the pics …

Yea stay away from the biophosphonates if possible, but if you need them …that’s another story. Most do ok on them but I seem to be super sensitive to nearly all my PCa drugs … which has been both beneficial and agonizing for me.

Keep your exploits coming buddy …. Love ‘em.

❤️❤️❤️

dockam profile image
dockam in reply toKaliber

Right on! Have too many meds in me already :-)here is what my 2021 DEXA said:

FRAX - Ten year risk for hip fracture: 0.5%

FRAX - Ten year risk for other major osteoporotic fracture: 3.2%

Femoral neck BMD for FRAX Calculator: 0.871 g/cm2 Region: NECK Right

BMD CHANGE from DXA on 08/06/18:

4.3% AP Spine L1_L4

5.7% Femur NECK Left

-2.2% Femur TOTAL HIP Left

-5.9% Femur NECK Right

-5.1% Femur TOTAL HIP Right

-0.7% Forearm RADIUS 33 Left

youtube.com/watch?v=avU2aar...

Kaliber profile image
Kaliber in reply todockam

Yayahahahaya…that’s a lot but you’re doing 5Ks and traveling …. I’d love to do that too. Yayahahahaya yayahahahaya. You are one of the honest good guys here … something we need a lot more of.

❤️❤️❤️

CAMPSOUPS profile image
CAMPSOUPS

Thanks Randy. Look forward to more. I have never in my life had any issue living vicariously thru someone else so bring it on lol.

dockam profile image
dockam in reply toCAMPSOUPS

After all that drama about "trolls" and personal/ad hominem attacks, I just went in a totally different direction. I've told patients that I'm trying to do experiential things: auditory (The I love the 90's concert), visual (Getty Museum), and gustatory (My dim sum trip to Chinatown)

Tim McGraw song sums it up: youtube.com/watch?v=OJejCUf...

No one gets out alive, how will will spend our time left?

“I wish it need not have happened in my time," said Frodo.

"So do I," said Gandalf, "and so do all who live to see such times. But that is not for them to decide. All we have to decide is what to do with the time that is given us.”

― J.R.R. Tolkien, The Fellowship of the Ring

Fight on

Mahalo

Randy

Scout4answers profile image
Scout4answers in reply todockam

Sweet Time... YES!

Scout4answers profile image
Scout4answers

"Life's too short to stay home"

Love the way you think Randy Party ON!

dockam profile image
dockam in reply toScout4answers

My crazy lyrical brain thought of these:

youtu.be/EFMD7Usflbg

youtu.be/FaYAmqXiYKE

youtu.be/acRMALrg1t4

Mahalo Bruddah

Grumpyswife profile image
Grumpyswife

My daughter lived in LA for a couple of years and we got to visit The Getty and lots of other wonderful places in the area. The view up there is awesome.

dockam profile image
dockam in reply toGrumpyswife

I've never been there, and YES, that view of the LA area was astonishing! Not even much smog.

Click on the image to get the Panorama :-)

Panoramic view from Getty

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