The doc thought my testosterone was a little too low and would like to see it at around 15 to 20. I'm having a hard time controlling my emotions, crying overing nothing. Just driving down the road listening to music and hear something and began tearing up. Since stopping treatment the crying and tearing up have lessened some. Will be having T checked next month.
Have you tried addressing some of those things with a psychiatrist? I would worry about stopping because there are so many horror stories about recurrences after “vacations”
When I joined this community I thought that I was as close as one could get to stage 4 without actually being stage 4. According to the MSKCC Nomogram, there is a 93% chance of LN involvement. I could be wrong but in order for a scan to pick up metastasis the lesion needs to be a centimeter in size. I understand that there is newer scans out there that can pick up half that size. I will be discussing that with my DO on my next visit with him. But for now, since there is no evidence of metastasis, I’m not concerned about my rising T. And some in this community feel that since I’m not stage 4 I should not be posting or be a member. So as soon as I can figure it out I will be closing my account. Most of you have been great and I will miss them. At this time I feel it best to find some where else to go.
There's nothing in your profile about you initial dx, i.e. Gleason, TNM, etc. I am sure your like me and you tx was stopped to see if it cured you. I doubt highly these metastes start after stopping treatment and grew large enough to be seen with scan. That said I stopped tx about 5 months ago and my last PSA bounced a little or alot depending how you look at it. What happened at 7 months did your PSA increase and your Dr ordered scans ? Which scans did you get?
IMG2226 MRI PROSTATE W WO CONTRAST ACCESSION NO: GMH203799111
DATE OF EXAM: 01/15/2020 08:15
REASON FOR EXAM: R97.20^Elevated prostate specific antigen (PSA)^I10
ADMISSION DATE: 01/15/2020 07:25
HISTORY:
Prostate cancer
COMPARISON: None
TECHNIQUE: Multiplanar, multisequence MR imaging of the pelvis, performed with and without intravenous contrast, tailored for evaluation of the prostate gland. 7 mL of Gadavist was utilized. Images were also reviewed using the DynaCad software.
FINDINGS:
The prostate gland measures 4.5 x 3.0 x 3.7 cm with a calculated volume of 26 mL.
Mild hyperplastic changes within the central gland. No foci of intermediate or high suspicion identified within the transition zone.
There is a large area of hypointense T2 signal in the right posterior peripheral zone extending from the prostate base to the apical third. On the coronal weighted images, the area of T2 signal abnormality spans approximately 22 mm. There is corresponding restricted diffusion (for example, series 402, image 156; series 403, image 148). A type 3 enhancement curve is present. (PI-RADS 5)
The area of signal abnormality does appear mildly abuts the prostatic capsule, however there is no definitive evidence of extracapsular extension. The seminal vesicles are unremarkable.
No pathologically enlarged lymph nodes identified in the imaged portions of the pelvis.
Circumferential wall thickening of the bladder, presumably related to chronic outlet obstruction. Colonic diverticulosis without evidence of acute diverticulitis.
There is a small T1 hypointense lesion in the right sacral ala adjacent to the sacroiliac joint which measures 6 mm (series 301, image 25) and additional 4 mm T1 hypointense lesion is present in the left ilium adjacent to the sacroiliac joint (image 21).
IMPRESSION:
1. There is a large region of signal abnormality in the right posterior peripheral zone extending from the prostate base to the apical third, suspicious for adenocarcinoma (PI-RADS 5).
2. There are two small lesions noted in the right sacral alae and left ilium which could represent foci of osseous metastatic disease.
MRI Contrast Onc W WO Contrast
08/08/20
Accession(s): 8477383
CLINICAL HISTORY: Prostate cancer. Hydrogel.
COMPARISON: None.
TECHNIQUE: Multisequence multiplanar MRI of the pelvis performed before and
after administration of 7.5 mL Gadavist IV contrast.
FINDINGS: The prostate gland measures 2.8 x 3.8 x 2.6 cm in the AP, transverse,
and craniocaudal dimensions. There is some decreased T2 signal within the right
peripheral zone noted. No evidence of extracapsular extension. Urinary bladder
and distal ureters are unremarkable. No pelvic or inguinal adenopathy. Hydrogel
is identified between the posterior aspect of the prostate gland and the
anterior aspect of the rectum.
No suspicious osseous lesions.
IMG401 NM BONE SCAN ACCESSION
DATE OF EXAM: 01/27/2020 10:00
REASON FOR EXAM: C61^Malignant neoplasm of prostate^I10
ADMISSION DATE: 01/27/2020 09:12
HISTORY:
Elevated PSA, possible prostate carcinoma
EXAM:
Total body bone scan dated 01/27/2020
COMPARISON:
MRI scan prostate dated 01/15/2020
FINDINGS:
The patient is administered 25.8 mCi of technetium 99m MDP. Static images of the skeletal system were obtained following appropriate delay.
The study shows no abnormal areas of increased accumulation of the radionuclide. There are no findings suspicious for bony metastatic disease. There is renal activity bilaterally.
IMPRESSION:
No evidence of bony metastatic disease.
PSA November 26, 2019 was 32.
My last PSA before any tx began, May 26, 2020 was 54. Began ADT TD June,5 2020.
My last PSA was December 9, 2020 <.01, Testosterone 3, Free testosterone 1.1
Congratulations! You've had a coveted response to treatment. My dx and tx is very similar to yours except that I was not given Bicalutamide. Did I miss something in your dx? Did you have LN involvement?
CT and MRI were all negative for LN involvement. I did leave out that on the MRI the cancer in the prostate was abutt the capsule.
I take it this included whole pelvic radiation. MRIs are ok but not definitive
in reply to
Yes. I forgot to add that to the list. If I remember correctly, it was 80 Gy. I was told by the radiation technician that they were using the maximum radiation allowed. If I remember correctly, they started out with full pelvic then ended up zeroing in on the prostate.
Now begins the long trip back to a decent testosterone. Hopefully the PSAs stay low.
Did you Dr use the words curative intent? If so your like me and waiting to see if your cured. Your not on a vacation. With a PSA of 54 I would consider you advanced even if not Stage 4. A ref to above 20 appears in quite a bit of literature as relevant. Mine was 156 but I also have LN involvement on CT Scan. That said Malecare hosted by Healthunlocked has multiple PC forums and you can belong to any you choose. I belong to Advanced PC, PC Network, Under 60 PC and there's others. You access which ones you want to receive posts from on your profile page. Hope this answers your question.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
What’s next? Hearing different approaches from different people. 
Low Phosphate and Calcium levels
Experiencing different side-effects across Lupron injections
Short Term or Long(er) Term ADT With Salvage RT
Lower Inflamation for Better PC Outcomes
