I don’t see my long post so I’ll type... - Advanced Prostate...

Advanced Prostate Cancer

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I don’t see my long post so I’ll type it again

Madbeach profile image
31 Replies

Husband had radical prostatectomy in 2004. Ok til PSA started to rise in 2010 so had 37 radiation treatments. Did well until this year. Jan started bleeding badly in urine. In and out of hospitals due to the excessive bleeding. May 2021, PSA started to rise again. 1.9 to 3. Doc ordered PET and Bone scan May 25, 2021 showed bone Mets in left iliac only. Had another scan in October (only five months later and after he had 13 HBO treatments ) that showed cancer in lungs, liver, spleen, lumbar and the iliac now. Still bleeding via urine badly. Urologist sent him for 40 HBO treatments after I mentioned that I had done research and perhaps it would help. The doctor overseeing the HBO treatments sat us down and told us both that there have been studies that show HBO can cause cancer to spread. YES he told us that. After 13 treatments, hubby declining and feeling poorly. Oncologist ordered liver biopsy to ID type of cancer so hubby could start chemo. Day of appt for first chemo, hubby’s legs gave way as I was helping him to get ready and I had to get help from two workers from next door in getting back to bed. Saw oncologist on Nov 16 and we were told he had about 3 weeks. He lasted five days. Primary cause of death on death certificate is lung cancer. So, both hubby and I were convinced that the HBO treatments may have caused the cancer to spread so quickly. To make matters worse for me, I was the one who researched those treatments at the Radiation cystitis foundation site and told urologist I felt it could help and to get them set up. Hubby had his doubts but I convinced him. He was losing so much blood. The contents of his catheter bag was so burgundy, it looked black. Blood was thick and clogged the tube all the time. It would last for 6-7 days and then 3 or 4 days of clear urine and then it started all over again and going on since Jan 29 ,2021.. I don’t recall hearing any sounds coming from him the morning he passed (Nov 21), but something woke me up at 4:30 am and he must have just passed. He was still warm all over. In August and September he didn’t even look sick. He was joking and seemed like his old self. He left me so quickly and my heart is very broken. I didn’t want him to go. I don’t have a lot of family near by and I’ve always been sort of a loner. I do have a cat tho, which has been comforting. I will be picking up my hubby’s ashes soon and his military honor guard service will be held Jan 14, 2022 at the Bay Pines VA National Cemetery. Thanks for reading my long post. I truly do wish u all the very best. Women endure pain for a few hours giving birth and often say that if men had to do that, they would whine. I would take that pain any day, as opposed to you warriors having to fight this awful disease day after day, year after year. Be brave, be strong, and never give up.

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Madbeach profile image
Madbeach
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31 Replies
CJ4J profile image
CJ4J

Mad beach, I'm so deeply sorry for your loss. 💔 Thank you for taking the time to share his story. You can't blame yourself as it was the time and the way he was suppose to go. Nothing you could have done or not done would have changed his story. We all wish we could change things, gone to the Dr sooner, ate a little better, seen a different Dr. But, trust that he is at peace now and isn't suffering anymore. May you find strength and comfort in the days, months and years ahead. 🙏

Darryl profile image
DarrylPartner

Condolences

DesertDaisy profile image
DesertDaisy

My heart goes out to you. As wives, we do the very best we can for our husbands and that is exactly what you did, your very best. Praying that God gives you peace and strength during this sad time.

ChuckBandChar profile image
ChuckBandChar

I’m so sorry for your lose. I can hear the despair and fear in your post that you were to blame. Please don’t take on that burden. You did what you could to find a way to take care of him. Your love for him was apparent in all your posts. He is at peace now and he would not want you blaming yourself.

Madbeach profile image
Madbeach in reply to ChuckBandChar

Thank you but it will always be on my mind. He appreciated all that I did for him and so much so that a couple of months ago, he had me stop at a Jewelry store on the way home from the oncologist and bought me a diamond ring. Best to on your journey

monte1111 profile image
monte1111 in reply to Madbeach

Diamonds are forever. Best to you on your ongoing journey. I am so sorry.

in reply to Madbeach

What a guy! 💔💔

My heart goes out to you at this difficult time. Hope and pray you are surrounded by loved ones.

Tall_Allen profile image
Tall_Allen

I'm so sorry. I know how desperate you were to help him - he knew that too. Unlike most prostate cancer, lung cancer usually runs its course very quickly. Know also that the research you did only shows correlations, not causation. So the people that use HBO are the ones more likely to die quickly because they are sicker to begin with.

Lasered profile image
Lasered

So sorry for your loss. 🙏🏻

Lyubov profile image
Lyubov

My heart aches for you. Thank you, also, that in the midst of your indescribable pain, you were able to share so much. My husband has radiation cystitis, but thankfully, his oncologist knows not to suggest hyperbaric oxygen treatments, as his PSA is already on the rise.

Please know I am exceedingly sorry for you incalculable loss. Blessings for strength and comfort.

London441 profile image
London441

I am sorry. Take whatever comfort you can in knowing how much your love and support meant to him. Your level of devotion is a inspiration, there is tremendous grace in it. May he rest well and be with you always.

pakb profile image
pakb

I'm so sorry for your heartbreaking loss. It sounds like you were a wonderful partner and advocate. I agree that causation and correlation are two different things. I hope all of your good memories wrap you up in warmth.

Jackpine profile image
Jackpine

I know words cannot lessen the loss but your husband knew how much you loved him and that’s all that mattered to him. I hope you may find peace in this season of hope!

MateoBeach profile image
MateoBeach

It was/ is not your fault. He was dying of advanced aggressive cancer and you both did all you could. Rest In Peace-both of you we hold you in your grief.

dadzone43 profile image
dadzone43

He was so lucky to have you at his side the whole time.

Realistic profile image
Realistic

God Bless, you did your bless it us not your faultI have incurable ovarian cancer so l know l will try anything too keep me going. Sounds like you've been absolutely marvellous and hes free from pain. You love him he loves you thats the important thing in life a great partner who will support you . Please take care of yourself.

Sending love SheilaFxxx

Madbeach profile image
Madbeach in reply to Realistic

Thanknyvforvurbkindvwords. Im sorry you are fighting a battle as well. Sending a virtual hug ur way.

Realistic profile image
Realistic in reply to Madbeach

God bless and take care of yourself. Xxx

Madbeach profile image
Madbeach in reply to Realistic

Wow I typed that last msg without my glasses. But you my drift

HalC profile image
HalC

I'm so sorry for your loss. Wishing you peace.

j-o-h-n profile image
j-o-h-n

Dear Mrs. Madbeach,

The reason you don't see your original long post here is because I ate it.... You are a wonderful wife and stood by your dear husband through all of his painful hours. As far as recommending any medical procedure for him, you did your very best which most people are incapable of doing. I would like to ask you two questions (need not answer if you wish). what was your dear husband's first name and what does Madbeach stand for?

You mentioned you don't have much of a family close by, but you have us as close as your key board. Your dear husband is up there with those angels learning how to fly with his new wings. Good Bless you and Keep Posting here (we need you)...

j-o-h-n Thursday 12/09/2021 7:49 PM EST

Madbeach profile image
Madbeach in reply to j-o-h-n

Hubby’s first name is Wayne. Madbeach stands for Madeira Beach Florida, which is where we live.

in reply to Madbeach

Rest in peace Wayne! 💔🕊

in reply to j-o-h-n

💔❤️🕊👏🏼👏🏼👏🏼

Spyder54 profile image
Spyder54

Dear Madbeach,I gave a long response to your first post. I will keep this shorter. I stand by what I said, that you did not do anything to cause your husband Wayne to pass on to Glory. Tall Allen and Mateo Beach above, are both very smart, and well read, with strong medical backgrounds.

With that said, we all really appreciate your warning of HBO, especially with lungs involved. His acceleration to his passing, was staggering. For me, I will remember when it is my time to take caution with HBO.

We are just down in St Pete, if you ever want to talk, or let us buy you lunch, just personally message us. Hang in there. These are trying times.

All our best,

Mike & Barb

St Pete

Madbeach profile image
Madbeach in reply to Spyder54

Thank you so much. Yes, meeting for lunch sounds like a nice plan.

in reply to Madbeach

❤️

in reply to Spyder54

❤️

spw1 profile image
spw1

I am truly sorry to read about your loss but glad that your husband's passing was quiet. You both did everything you could and life is impermanent. Choices of treatments all come with pros and cons. Hopefully you can remember all the happy memories with him and not dwell on ifs and buts of the HBO treatment. Did not look like much of a choice there anyway given the symptoms of bleeding you describe. As your husband rests in peace I hope that you can find the strength to live your life without him. He would want you to do that.

I’m looking at HBO myself now. I never heard that it promotes cancer before. That’s not good? . As you know Pc and it’s treatments are one case in which if it doesn’t kill you it doesn’t make us stronger. We all are depleted. Our partners suffer it all with us. Thank God that he had you to see him through it all. Love is eternal 🙏💔🕊🕊🕊 someday my sweet wife will be in your shoes. I am sorry for the

Pains. I want you to recover and find happiness in living . A job and love well gone. Who could ask for anything more? Our families must survive after us . This is my hope as a man with this disease.. Thank you for sharing ! I think it is good for us all to know the realities of it all… 💔🙏🕊🕊🕊R.I.P. to him

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