Just an update for you fellow warriors. I've had my first infusion of the two chemos cabazitaxel and carboplatin and two immuno-therapies (nivolumab and ipilimumab) 14 days ago. My side effects have been less than what docetaxel were. A surprising side effect is I woke up to an erection (a surprise since I donated my boys to the hazmat bin couple year ago). I feel fine after the first few days and my brain fog seems less (or I'm getting used to it). Wife and I went boogie boarding on the coast last weekend and had a ball.
Only worrying thing is my ALT and AST are elevated in the high range, my care team expected it but are watching it closely.
Oh yeah, I got my third Moderna shot last Saturday as well, hopefully I will be as protected as the normals now (but still masking always). The photo is me in my car after the shot, happy as a clam (whatever that means).
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HerbieP
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HerbieP --- 👍👍 for continued enjoyable QoL and hoping the (A) numbers come down.
Tall_Allen wrote -- " ... Those two powerful immunotherapies should give you some protection too.... "
T_A --- Having received my 3rd Moderna this morning from what you mentioned above might I also have a complimentary level of protection thanks to the combo injection of Keytruda + Opdivo + Yervoy I received in 2015 or would any possible boost be aged out ???
Hi Herbie, I wish you the best of luck! Did you have another treatment for NEC before the CHAMP trial? I was just diagnosed with NEC and my MO is recommending Carboplatin + etoposide.
Hi @Danielgreer, I'd just finished 7 courses of docetaxel when they did another prostate biopsy and found out I was NEC. First thing they offered was the CHAMP trial, I did a bit of research and embraced it with open arms. I would have embraced anything that has promise of slowing down this beast.
I’m guessing that your caregivers may have suggested Docetaxel with carboplatin if you hadn’t already done the 7 courses without carboplatin? The alternative to carbo + etoposide that my MO is suggesting is Docetaxel + carbo which I may do. I haven’t done Docetaxel yet so hopefully that will help. Otherwise I may try to join you in the CHAMP trial. Please keep us updated on your journey - thanks!
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