While I was undergoing radiation treatment I got mushroom supplements from Oriveda. I did a fair amount of reading and determined that this is the best source for supplements worth taking. The highly promoted Fungi Perfecti which you can find in all health food stors seems to be total bullshit, just ground up mushrooms with little bio available ingredients. I had a huge flush of Turkey Tail that I could get for free but was convinced that the fruiting bodies are so low in the important chemical as to be worthless.
Any recommendations as to which mushroom is best for advanced PC people or maybe the blend that Oriveda has?
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spencoid2
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My naturopath has me on this NFH turkey tail extract. Comparing it to other extracts it seems pretty good. Part of the problem in comparing supplements is that there doesn’t seem to be a standard set of information for every extract making an apple to apple comparison difficult.
that is why i was impressed with Oreveda. they list the levels of the critical ingredients and the way it is processed is supposed to make it bio available. i have not found any other brand that does this. Host Defense is bullshit. I could find my own Turkey Tails and dry them. If fact I did and had a gallon of them but can not find them. anyway doesn't matter as it is useless or almost. Paul Stamets should really get busted because i have heard that he gives medical advise on the use of his BS mushrooms. I was referred by a retailer for "medical" advise from him because they couldn't give it.
I can get a good price buying bulk and probably will when I decide which mushroom. It is 2220 caps or 1 KG. I can not find anyone who sells in bulk in the US and Oreveda is not shipping to the US due to covid? My father will be here at the end of September and I am going to ask him to take delivery in Paris and bring them. Anyone want to take advantage of this? It is about $700 to $800 per kg and this is extracts from mycelium not bullshit fruiting bodies ground up. Or does anyone know how to buy bulk here? I will try to contact Oreveda.
myriadmycology.com as with most mushroom products they say nothing about what is in it. i emailed asking and doubt they will have any real information. i think that 99.99% of all mushroom products are bullshit. i ordered Oriveda.
great there is something available here that is not bullshit. I wish they would arrest Host Defense. i just tried and you have to be a licensed practitioner to buy the stuff.
to buy the good stuff that was previously linked my response was very confusing, i am having a confusing day. Host Defense is worthless garbage only placebo effect if anything this is the good stuff. however i just heard back from Oreveda and they will ship bulk orders to the US. Please do not support Host Defense. Paul Stamets might have been a great guy but the companies that use his name are bullshitttt!!!
it looks like Host Defense has changed some. Now they are promoting mycelium and mycelium extract but they still give no specs on their products. Proprietary formula. To me that is bullshit. Previously they said that only fruiting bodies are good.
Yes, any "Proprietary" proclamations come with caution...
Sometimes that doesn't mean it's bad. But what you want in the supplement is bunched with a lot of other stuff in their "formula" that you don't need. This usually lowers then the supplement volume you want as well because the pills can only be so big, lol. Bottom line is to find what you're looking for, the amount of consumption (daily), and find a supplier that can attest to exactly what they're selling.
I am not sure about how the best way to get medicinal value or cancer fighting value out of mushrooms but I regularly consume fresh, maitake, white button, criminy, bunashimeji, oyster, lions mane and shitake. I also buy chantrelles , morels or any oddball mushroom that shows up at my local store. I also consume dry Turkey Tail, Reishi and Maitake once in a while. I enjoy the taste so prefer the fresh mushrooms. The only literature I have read was from Japan on white button but I'll keep eating them as one more part of as diverse a diet as possible.
no one seems to list the quantity of active ingredients such as beta glucans and PSK. only Oriveda and the linked company that only sells to health care providers do. As far as I am concerned everything else is bullshit.
It turns out that Oriveda can ship to the us if bulk. i have an appointment with myMO and am going to bring screenshots of the labels. it seems that high beta glucans might not be good while taking prednisone.
once and if i know what is the best i will order it and if i get two kilos of different mushrooms this will be more than i can use for a long time. it will be approximately $2000. i will share at cost with anyone interested. my expenses are high and spending another $2k will be difficult. just bought a $3000 (with air transport)dog
I had an over 2 hour consult with Integrative Medicine at MSKCC prior to beginning salvage radiation. It was a great and amazing consultation in which many supplements were discussed as well as eating habits and more. Oriveda was actually recommend by the Alt Med. Doctor as he explained they are one of the few, who actually show you what's in each pill and that the contents are lab certified.
I take and have taken the Turkey Tail Mushroom supplement throughout and still do.
They are not alone and anyone who does the same, ie lab certify the contents, I think is ok, then it's just becomes a preference!
And sometimes it hard to cut through all that fancy mumbo jumbo and advertising they put on their adverts which say a lot, but tell you little... Those are avoided.
Did your integrative doctor say that mushrooms and other supplements could/should be taken during radiotherapy. The conventional wisdom seems to be that radiotherapy works by inflammation of the cancer, therefore you should not take any anti inflammatory supplements. However I could not find any studies on the subject.
turkey tail is supposed to boost immune system i do not think it is anti inflammatory? i took it when doing radiation but of course it did not work but that is because i already had micromets?
After my PCa Dx I had long waiting for Uro and RO appts and the multitude of tests and scans. During those almost 6 weeks I began taking Turkey Tail and Reishi extract, to get something going while was waiting for any actual treatment to begin. By the time I got my first Lupron shot my PSA had dropped 8 points, (25>17) so have been a believer that there is benefit to having these mushrooms in the battle, to augment the primary treatment.
They supposedly kill the PCa while Lupron, and other meds, just smother the PCa, so why not have this extra dog in the fight.
I've continued with a mix of Turkey Tail, Red Reishi, Lions Mane, Agaricus Blazei, & Beta Glucans with Maitake. There is quite a bit of information on the Net about the double extraction (alcohol & hot water) from natural medicinal fungi and preparations of those grown over rice.
The latter appear to be in the useless category and many of the capsules being peddled are probably just ground fungi, which are non-absorb able junk.
I skip over any label that does not include fruit body and try to stay with extracts/tinctures wherever possible. I've been getting the extracts that halfhillfarm carry and trying Agaricus from different sources. There is so much junk being peddled on the Net, esp at the jungle delivery site, and by some lecture-circuit peddlers who are ripping the public off with their rice-grown junk.
I also came across a suggestion (can't immed find the link) that papaya enzyme helps with the absorption of mushroom supplements, so have added that to my mix. It has its own added benefits.
There are other fungi too but to narrow down my selection, while I did take into account anecdotal information, I was most influenced by the research information at PubMed.
Hope this information is helpful !
Best of Wishes and Luck to my fellow men in this journey !!
mycelium in rice is certainly junk like the ground up mushrooms. I am interested in extracted forms and only if an analysis is provided. it seems that only two companies sell this, Oriveda and another company that only sells to health care professionals. They were linked on this forum. I need to contact them if possible and see if they will sell to me.
so i am almost ready to order from Oriveda, they seem to be the only ones that analyze their products. some extracts are hot water using fruiting bodies, others are extracted from mycelium grown in liquids not rice. it seems they are doing everything right, leave it to the Dutch.
anyone interested in sharing a kg of each mushroom that makes sense? turkey tail and reishi or their blend called CCCE
I've been getting whole mushrooms from Pistol River Farms and using them in day to day food prep, like stir frys, omelettes and home made pizza, etc.
The benefits I believe I've had have been from the US sourced products/sellers and are substantially less priced than the EU stuff and I'm stocked up for a while.
Here's another purported -I say coz I don't trust any of them- source of European mushroom supplements:
Then there is a seller on the jungle site who claims to be their mushroom mix to be from NZ which is enabling them to jack up their price by $20 every other month, while chances are good that they are filled with the same ground up junk $2/lb. worthless powder from the Chinese mushroom wholesaler in CA.
i am convinced that only properly extracted mushrooms either fruiting bodies or mycelium grown in liquid media not rice and which show independent analysis of the desired chemicals. there is a lot of research on these chemicals and they do seem to be useful for improving health and the bioavailable levels are not obtained by any method other than extraction.
if anyone disagrees with this assessment please provide evidence.
i am still looking for someone (s) to share a bulk order. My MO said he has no problem with mushroom supplements. At this point I am thinking of trying just the CCCE. I ordered a small quantity from the local distributor. It turns out that the bulk discount might not be that great. To get the equivalent of one kg in small batches would only be $200 more.
I believe that Shiitake mushrooms do have high levels of PSP but not in the fruiting bodies. I believe that the extracted an third party potency verified supplements are the only worth taking. Eating mushrooms can have preventive benefits but for people ith compromised immune systems I think a higher does is necessary. I don't think that button mushrooms have much medicinal value.
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Turkey Tail Mushrooms destroying PC?
white-button-mushroom-clinical-trial-
white button mushrooms 
Does anyone have any experience with Maitake Mushrooms?
