Tingling and Numbness in fingers and toes

[kcareer]

I have been on Lupron and Xtandi for about 4 years. I take the lupron shots every 3 months; and the xtandi 4 pills every day. The side effects that I am having with both drugs are fatigue, numbness & tingling of my fingers and toes. I told my oncologist about these side effects. At first he said I should stop taking the drugs for a while. I stopped taking the Xtandi for about three days but the side effects were still there. When I complained again to the oncologist, he said that I should see my primary care physician. So, can anyone help with ideas?

[Shooter1]

Xtandi made me a complete invalid at the 160 mg dose.. 80 mg and I have a life... neuropathy is a mean side effect of xtandi and I live with it...going on 4 years now. Gabapentin helps me greatly with pain/burning in hands and feet. Worth a try??

[kcareer in reply to Shooter1]

Thank you, Shooter1. I also take Gabapentin 6mg, but this is not helping. How many mg of gabapentine are you taking?

[Shooter1 in reply to kcareer]

Don't choke!! 3600mg/day. 1200 in AM, 600 at noon and 5 PM, 1200 mg one hour before bed time.

[kcareer in reply to Shooter1]

Thank you Shooter1. My error, I am taking 600mg daily and not 6mg. How many mg did you start taking Gabapentine at? Did you start immediately with 3600mg or was it gradual?

[Shooter1 in reply to kcareer]

Started at 1200 mg. at 2400 mg hands much better, but 2 center fingers on each hand still painful to type with... 3600 mg finally nailed them so only mildly uncomfortable to type, but doesn't slow me down much now... Still drag center toes on each foot.

[kcareer in reply to Shooter1]

Thank you Shooter1. I saw my GP today and she increased my dosage from 600mg to 1200mg; (600mg in the morning and 600mg at night). We will see how this works out.

[SailorRalph365]

I have been on the same regime for about two years with no such side effects, but my PSA has started to rise again to 3.5. I am now on Zyprexa (oral chemo) and Eligard because there is a shortage of Lupron. Anxiously awaiting my next PSA test...

[kcareer in reply to SailorRalph365]

Thank you, SailorRalph365. I hope your PSA stops to rise.

[crp30]

I clearly do not know how to use this site. Thought I was replying to you Kcareer but now I don’t see it. I have a medical device out of Europe that helps with microcirculation, tingling and numbness and even discomfort. Would love to share it with you if you text me at 801-473-8000

[kcareer in reply to crp30]

Thank you for your feedback.

[Kevinski65]

I have same. I rub cbd oil and aspercream with lidocaine on them. I also take gabapentin.

[kcareer in reply to Kevinski65]

Thank you, Kevinski65. I am also taking gabapentine 6mg daily. Please, can you tell me how many mg of gabapentine do you take daily?

[Kevinski65]

900 , it's 3 a nite beginning dose 300. Do u mean 600?

[kcareer in reply to Kevinski65]

Thank you Kevinski65. I take only 6mg daily and not 600mg. My doctor started me with 1mg, then 4mg, and now I am taking 6mg. Is this the way you started until you arrived at 900mg?

[Kevinski65 in reply to kcareer]

I've never heard of these small amounts. The usual is 300, then 600, then 900. Look it up on Google. If it helps at that amount then great but I've never heard of those amounts as standard.

[kcareer in reply to Kevinski65]

Kevinski65, I am sorry for the error. I am actually taking a total of 400mg (100 +300). The error is mine. Thank you so much.

[Kevinski65]

No problem, is it helping though?

[kcareer in reply to Kevinski65]

It is not actually helping me. This is why I am asking for help from this forum. I will see my GP on the 10th of August, and on that day, I will bring up the matter with her. Thank you.

[tetech in reply to kcareer]

Be sure you don't have iron deficiency anemia. That caused my red blood cells to get bigger to try to adapt to the low iron and it made it so that blood wouldn't get thru the capillaries. There's a drug called trental pentoxifilean that softens your red blood cells to make them go through the capillaries more easily. My dad took it for radiation cystitis and it really made his hands warm for the first time in his life and helped with his tinnitus as well.

[kcareer in reply to tetech]

Thank you. I will discus it with my GP.