Lose of sex drive : Before you start... - Advanced Prostate...

Advanced Prostate Cancer

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Lose of sex drive

Phoenixrising69 profile image
14 Replies

Before you start lupron or adt go and have sex with someone because you won’t have sex the same except from hot flushes and losing sex drive and some srinkes in your in your dick and feeeling like your a female everything ok hot fluches found rose water spray but the sex not ok

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Phoenixrising69 profile image
Phoenixrising69
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14 Replies
BrentW profile image
BrentW

Sex? What's that? Oh, I see -- sorry. If I don't use a word for ten years or so, it kind of drops out of my internal dictionary. I remember it now. Good stuff, it was, in my pre-PCa life. And life without sex has been a bit duller since. After my LRP, ejaculation was painful. So . . . .

Schwah profile image
Schwah in reply to BrentW

If you plan on doing intermittent ADT, you should be taking viagra at least a couple of times a week and make sure you have an erection. My MO Recommended that and when I went off ADT, back to my old self in 6 months albeit still with Viagra. And no shrinkage. Enjoyed that year a lot. Now I just went back on ADT. Seems harder this time knowing exactly what I’m missing but so be it. Looking forward to next vacation if it works out that way.

Schwah

BrentW profile image
BrentW in reply to Schwah

I have been on Zytiga for the past four years. There is nothing intermittent about that, I'm afraid. I was, by the way, diagnosed in 2004 and on intermittent until my failed LRP in 2010.

Savoy profile image
Savoy in reply to BrentW

3 years continual Eligard. Too late for me and my big…er, little buddy

GabF profile image
GabF

No sex ! Not sure life is worth without, I purposely delayed diagnostic for having, during one year, as much sex as possible. Will know if I won my bet in a few months.

Savoy profile image
Savoy

What HE said…

GabF profile image
GabF in reply to Savoy

As it's often said in this a forum, each one is different, and I, more than others, am very different from the vast majority of men here. It'd be too long to explain.

I didn't say that sex if all of my life, only that it is the main point I'd have to regret if I was to undergo RP or ADT. It is not as if I was proposed a choice between 1 year only more life, with sex, versus 10 years without. It is never so clear a choice as that. It is all about risk assessment; and for now, I am old enough for fearing less that PCa shorten my life than PCa treatments ruin my life.

I can do a comparison, before my starting PCa screening and after: it is now more difficult to live worriless.

Not sure (at my age !) that all the worry is worth if it is only the matter of extending life for a few months.

And as far as sex is concerned , my wife's QOL is also a matter of concern. I don't how I'd handle her frustration, as, unfortunately, she isn't used to seek sex outside our couple.

Cooolone profile image
Cooolone

Your potAtoe is my potatoooo...

No sex you say? Well, sure there is! It all depends on how you look at it...

I think my wife is still sexy as hell, even after being together for 40 years, yes, she's my high school sweetheart! Sex, and the physical side of it is only one element of enjoying your relationship with your significant other, your time together, and all that goes with it. And sex alone, of course my opinion, isn't what defines life. If I were to limit my life to that being my only enjoyment from it, I might agree that it's value would probably be diminished! But there is so much, yes SO MUCH more to life than just getting my rocks off... And that's why I fight, am fighting, to prolong it. That is why I've voluntarily put toxins into my body, and sustain a drug level to chemically castrate myself. To be here as long as possible, to sustain the fight, to have another moment of memories that I can take along with me the entire way, until my course is finished and the race is done!

Sex you say...? How cheap a value to place upon all the wonderful experiences I've enjoyed, with and without it.

Sex, and the culmination of the experience ends in climax and a finality of the moment that some have associated with death itself. But that climax, that release of endorphins and other hormones can be experienced via other means... The mind is a very powerful tool, and the regular exercise of it I believe opens up so many avenues to enjoy life... I hope to find them all, or as many as possible in my journey.

Just my $.02 ;)

Good Luck and Best Regards

addicted2cycling profile image
addicted2cycling in reply to Cooolone

Cooolone wrote --- "Your potAtoe is my potatoooo... No sex you say? Well, sure there is! It all depends on how you look at it...I think my wife is still sexy as hell, even after being together for 40 years, yes, she's my high school sweetheart! ... "

Thinking I got you beat!!!

Met my wife of 48+ years in 1st Grade 1956 and went all through school years together with NO ATTRACTION at all. She never was "sexy nor was I" and we had our lives never dating or even kissing another until she stopped by the gas station I worked at in June 1972. Just talking while the gas filled the tank I accidently touched her hand and "SOMETHING INSIDE ME JUST HIT THE FAN." We went out a few times, FIRST FOR EACH, and one night I kissed her and less than a year later we were married.

My TREATMENT PROTOCOL BEGAN with CASTRATIION after which it was mind over no testosterone that mattered to still have satisfying sex. MAYBE BECAUSE I never experienced the plethora of sex so many have had in their lives that I was able to focus on the "here and now" and not on "what once was" allowed BOTH OF US to enjoy our NEW RELATIONSHIP IN LIFE.

BTW, no pills or needles

mrscruffy profile image
mrscruffy

While se isn't what it was in my 30's My wife and I fool around most every weekend. It is well worth the prick in my penis with the Tri-mix

wilcoxsaw profile image
wilcoxsaw

Buy a sports car and drive it like you stole it, much better than sex any day! Preferably a Ferrari.

Rockybullwinkle profile image
Rockybullwinkle

My doctors dropped the ball and the pun is intended. When diagnosed with an aggressive Gleason 8, sex was not my priority... living was. Sure there was casual reference to loss of libido as treatment options were offered but it was never given the significance it needed. Now after a robotic prostatectomy, a year of ADT therapy and 37 sessions of pelvic radiation I am still alive but my sexual life is dead; the extreme shrinkage of genitalia - a visual conformation. The doctors should have prescribed daily use of Cialis BEFORE any treatment began. They should have stressed the importance of continued masturbation BEFORE any treatment began. They should have emphasized the inability to produce semen and ejaculate BEFORE the decision between surgery or ADT/Radiation was made. But they didn't. The Cialis prescription finally came (that pun intended too) too late. The vacuum pump almost sucked what is left of my testicles right out of my scrotum. All that is left is the insertion of a penile pump inside my body. No thanks I'm done.

treedown profile image
treedown

I am with coolone. My libido was through the roof before dx at age 56. So much so that it cause strife with my wife who had lost hers (maybe just for me) years before. Not having one has been an odd blessing and our relationship is netter than ever going on 28 years. I find her incredibly sexy still and instead of letting my willy see it and think of one think I appreciate her for all she means to me now. Its pretty freeing for me and I can't say I miss maturation or see at all at this point. Seeing my wide after a even a few hours, wonderful. Maybe these feelings are as somebody else said we are losing our manhood but I have made peace with it.

No Phoenix rising No 69ing wtf? Now you tell me! I’ve been on adt over six years orchiectomy three years ago . I have night wood like a teen every frickin night. Penis cut in half. Sex isn’t even a thought or desire .

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