Does Eligard cause a “burning “sensation in the feet? I can’t tell if it is related to the “hot flashes” or not. There seems to be no correlation between the two that I can tell and it only happens at night. It wakes me up from a sound sleep several times a night.
Burning sensation in feet: Does Eligard... - Advanced Prostate...
Burning sensation in feet
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B8ssist
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I’ve got it too. Hands and feet. I did a one month shot of firmagon then 1 eliguard then on to Lupron tri monthly . Did that 18 months. Adt imrt chemo all can drive neuropathy. Massage & walking can help. I think the more active you are the better . Many if not most of us get some of this from treatments. The best I’ve ever felt with this condition was after hot and cold plunging in Pagosa springs. My nat dr recommended a infrared sauna. I got one cheap. I need to set it up again . Take care .. 🌵Scott
B8ssist in reply to
Thank you. I have not seen anyone discussing this symptom before. I take Megace to help with the hot flashes, but it doesn’t seem to help with the feet burning. I see my urologist in another week and will mention this to him as well as some of the other symptoms. I doubt anything will change.
I have major flaming hands and feet (neuropathy) from Xtandi/docataxel combo. Permanent nerve damage. 3600 mg (high dose) of gabapentin is what I take for it. With that dosage my fingertips are settled down enough to let me type this. Feet and hands numb but working. Good luck.
in reply to Shooter1
I’ve got the same thing too shooter. As my dear ol mom said “ paying for my Sins ”! As always I’m counting on JC for mercy.
in reply to B8ssist
The mds don’t care about our side effects that much . A low PSA and clear scans is all they need. This is most common. Alpha lipoid acid is said to help neuropathy some. Eating some soy is said to help hot flashes. Guys are on every type of drug from pain meds to sleeping aids and mood enhancers too. I use high dose thc oil daily. I’m needing to up dose now with a sharp increase in joint and body pains. After six years no t no signs of pc my joints are collapsing . Se la ve. Anything to feel better.
B8ssist in reply to
When I tried CBD it didn’t seem to help me. The CBD came from a reputable company. So I don’t know what else to do. I hate taking medication. I know this goes against everything that as a nurse I should be standing for, but when I think about Big Pharma, all I see is companies who care less about people and more about $$. Don't get me wrong, some meds are necessary. I don’t want to be on Gabapentin, but losing sleep over hot feet isn’t fun either.
in reply to B8ssist
Cbd’s are good and needed but the thc is also necessary..
The hot, cold plunge, and stretching, massaging guided by a PT helped my husband. He is finding intensive swimming is really helping. His peripheral neuropathy wasn’t drug induced however.
in reply to Concerned-wife
That’s is a great path . 👏🏼
B8ssist in reply to
Where do you get your THC oil from?
in reply to B8ssist
Home made
B8ssist in reply to
Thank you. I take it that I can order this online? I live in Texas. Is that a problem?
in reply to B8ssist
Probably . Illegal to ship over state lines
in reply to B8ssist
I recommend Trusted Labs. Although headquartered in California, they ship from within Texas.
GD
B8ssist in reply to
Thanks you for the tip. I will look into it. I have a whole list of things to bring up to my urologist on my visit next week.
B8ssist in reply to
Thank you. I have been in touch with them about their products.
Does Texas have legal medical Marijuana if so get your card and get the tencture(oil) that way. And it's 100% more half then or CBD. As Hidden said homemade you'd have to find someone in your area that makes it. But then there again illegal. If you know the the right people doesn't matter what ever works.✌
in reply to B8ssist
Wife is coming from Walgreens with Celebrex and gabatin ?? I Don’t really want to take this stuff? Good luck 🍀
B8ssist in reply to
Lulu700, I totally understand that sentiment about not wanting to take that Celebrex and the Gabapentin. I am scheduled for this AUS on Thursday morning. I don't like the idea of getting a device implanted in my body to help me control my urine, but it seems my choices are limited and not doing it limits my QOL. I can’t go an hour without having to find a bathroom & change a pad
in reply to B8ssist
The AUS if needed will be a life saver for you . A friend had it . Tuff at first but once healed you should have a much better QOL .Good luck Thursday ! Nobody” wants “ any of this crap. We are all in survival
Mode no less. Stay strong 💪
B8ssist in reply to
Thank you Lulu700. I have been in contact with Cujoe who wrote up an extensive description of his AUS. He gave me some very good information. I have ordered a medical alert bracelet so that I don’t get catheterized if unconscious. Crazy some of the things needed to protect ourselves.
in reply to B8ssist
He knows! He’s good as gold. One of the best dudes out out 12000. Good luck getting to a better place.💪
B8ssist in reply to
Thank you! I pray for all of us . I firmly believe that God has been directing me to get the AUS. I have been resisting, but finally relented. I cannot go up against my God who is so much bigger than I am. And if His plan is taking me this direction, then I will obey and go this direction. Jeremiah 29:11 is one verse I fall back on as well as Romans 8:28.
SeosamhM in reply to
Right on brother...keep on truckin’ with those feet! A foot massage with a machine - or wife - before bed is a great routine.
Don't know how many times I looked at the foot massage machines - and then backed away. When my wife was here, it was me giving the massage.
in reply to monte1111
❤️You’re a lover! 👏🏼👏🏼👏🏼
in reply to SeosamhM
A foot massage is game changing .
I use 2400mg CBD oil orally daily and a 1000mg CBD balm on my hands. The balm gets me about 3 hours pain free in my hands. Starting THC now that it’s legal in NY.
Shooter1 in reply to
Think I'll take a break now for a cup of JOE and some Lazarus Naturals CBD balm. (60% price discount to veterans, what a deal.)
Shooter 1, thank you. I will aldo check it out. I started taking Alphalipoic Acid last night. Hopefully it works as well.
in reply to B8ssist
My nat onco prescribed it to me for such. Good luck
Alpha Lipoic Acid didn't seem to do a lot for me. Seemed to have read it needs to be injected in clinical setting. If it really did work, would be more talk about it I believe. Hope it works for you.
in reply to monte1111
I’m trying so
Many things. Hard to tell what’s working if anything. I’ll keep trying stuff.
in reply to
Go NY!
j-o-h-n in reply to
Saville in NY no way..... look at all the signs on the entrance to the Northern State (pointing west) which say "To New York"...........
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 05/18/2021 6:33 PM DST
Just to add another view point - I'm female and even in my 40's my hands and feet would get very red and very hot like they were burning up. I would (and do) get up in the middle of the night and run cold water in the tub to soak my feet. For me it was (and still is) due to the lovely lack of hormones. I also think it may have something to do with being unable to sweat unless I get really overheated. I had to stop going to summer outdoor events because I get very overheated because I don't have a cooling system. Cold water is my friend!
in reply to Union98
Women know all about this.. wife just escaped menapause but I’m in it for life.. one of us is more than enough in one household. my friends wife told me that she had hot flashes so bad ending in a pool of sweat ...
in reply to Union98
Darn ! No cooling system
. I’m
The same now . Cant handle high heat or cold. I’m like Goldilocks . Everything has to be just tight. Take care
listed in the package insert as a side effect.....
Sorry to say Gabapentin is the way............. If you're concerned because it's a Med....so is Aspirin..... As a nurse I bet you administer tons of aspirin a year.....
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 05/18/2021 6:40 PM DST
That's the only thing that helped/ended the burning....I've had it for years.... Also if you do give it a bit of time to work. I take 1 Neurontin/Gabapentin 600 mg twice a day - one in the AM and one in the PM. (Life sucks and then you puke)......
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 05/18/2021 6:53 PM DST
I was on Lupron for a year and a half before having an orchiectomy and switching to Zytiga about10 months ago. Sometime within the past 6 months, I started experiencing paresthesias in the soles of my feet. Basically the feeling is like I am walking on a padding of dead skin. Certainly sounds like neuropathy to me. It is worst first thing in the morning. It doesn’t interfere with my sleep possibly because I take a hefty dose of THC oil before bed.
Old school is an Epsom Salt Bath or foot bath. My Grandmother introduced me to them in the 60’s. Something about the Magnesium actually works.
in reply to Spyder54
Those feel great .
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