Burning Sensation in Toe...ADT related?

[DJBUNK]

I am nearing the end of my first year of ADT treatments (Eligard) with one more year to go. About two months ago, I noticed a burning sensation in one of my big toes, like someone was holding a cigarette to my toe. The pain lasts a few minutes before subsiding. I've read that this could be a sign of neuropathy, which could be a result of my ADT treatments. I also wake up many mornings with tingling in some of my others toes on the same foot.

Has anyone else experienced burning in their feet or toes following ADT?

I'm currently 58 in good health, RP in 2019 followed by RT in 2020. G9 with ECE, SVI, LN+ but PSA has been low since surgery and undetectable since beginning ADT.

[Hidden]

Hey DJBUNK! It’s probably neuropathy. I have it also. Par for the course .. it’s from adt and rt .. I’m 60. Six years ago I did imrt and I’ve done first Lupron and now still on a pill form of adt tak-700.. with no breaks for six years . No T for me.. .. walking is good . Keep moving .. massage , hot tub , infrared sauna, all might help.

[Shooter1 in reply to Hidden]

Living with it in hands and feet... Mine will flame uncontrolled if I quit my Gabapentin. Chemo. ADT. Xtandi. all added up to kill some of my nerves and greatly inflame others.. Good luck, yours sounds very minor..

[MJCA]

You may have gout. My father gets it and it normally always appears in his big toe. It’s due to eating too much of certain foods. You may wish to have a check for it.

[Bananabum in reply to MJCA]

I have gout too. It's very different.As others have suggested drug-induced peripheral neuropathy seems the diagnosis.

[MJCA in reply to Bananabum]

I have neuropathy but not like that. They’ll put you on Gabepentin. It helps me a little bit.

[j-o-h-n]

Peripheral neuropathy. From Doc (Neurologist): Neurontin/Gabapentin 600mg 1 in the AM and 1 in the PM...

I am not a doctor but I do look handsome in a white coat....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 04/21/2021 4:38 PM DST

[Bananabum]

Hi, yes I suffer from a similar condition, which I attribute to two years of Luprin etc.None of my oncs seem to take it seriously.

It started in my left big toe about a year ago and has now spread across both feet.

It's bad enough to wake me up.

After a few minutes upright it subsides; but not at the original site. The toe always hurts and is numb at the same time.

It's a difficult pain to explain.

I'm sure it is a known feature.

I find my ( highly remunerated) specialists dodge my side effect/ pain questions.

Like some nasty radiation issues.

Perhaps they are scared of legal implications...?

[DJBUNK]

Thanks to all with your comments and suggestions. I do have a gabapentin prescription from my MO. He prescribed it to me at my last visit for hot flashes and before the apparent neuropathy started. I only used it once as it made me very tired in the morning. I decided I would only use it again if the ADT side effects became more bothersome than the gabapentin side effects. So far that hasnt happened so I'm lucky I guess.

I did forget to ask one question, which is are these ADT side effects (neuropathy) permament once I am off the ADT? And since ADT effects are cumulative over time, can I expect them to worsen (referring to the neuropathy here...I was told the hot flashes tend to subside over time).