A Giant Called Cleodman : I remember... - Advanced Prostate...

Advanced Prostate Cancer

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A Giant Called Cleodman

Bodysculpture profile image
54 Replies

I remember vividly the day I was diagnosed

The fear that overcame me was very real

Wonder woman was in tears and seeing her cry not just cry it was the way she cried that broke me

I desperately seaked help a friend suggested health unlocked

That was the day I met Cleodman

One of the first to respond

The words of encouragement his wisdom and absolute desire to help someone he didn't know was uncommon

The day I read he died it effected me in a way reserved for family or a close friend

I cried for his wife and family knowing how much he meant to them

I pray when my time comes I can face it with the dignity love and grace of a

GIANT CALLED CLEODMAN

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Bodysculpture profile image
Bodysculpture
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54 Replies
Longterm101 profile image
Longterm101

Amen.....

Such a terrible and sad journey for a young life and a good guy

Nirman profile image
Nirman

Amen May his soul rest in peace prayers for him and his family

Shooter1 profile image
Shooter1

Right on. I cried with my wife at first pathology report, It was NOT what we had been told to expect. Found this forum and Cleodman was right there. Same PSA, same treatments, same Gleason, same mets and stage 4. Watched all the way through his posts on his journey. Thankfully the treatments I have had have worked better for me than they did for him. . WE ARE ALL DIFFERENT is something we see over and over. We lost a great warrior and orator when he passed.

in reply toShooter1

Hey shooter! When such a young talented beloved man perishes so early I ask why? Who am I to still be here.? Not one of us can complain .. Now.

E2-Guy profile image
E2-Guy in reply to

Scott, Why is this man who accomplished so much in his short life gone and an old buzzard such as me whose accomplishments are insignificant still here? God certainly does work in mysterious ways!

Muffin2019 profile image
Muffin2019 in reply toE2-Guy

My mom used to say the same thing, my friends are gone why am I still here, she was 95 when she passed of heart failure in a care facility. We all question our mortality but we just have to belive God has plans for each of us and when he calls us home our time is done on earth. We are in his hands and we should enjoy our lives as best and know there is a reason some are here longer than others, keep the faith it is important with this disease.

jfoesq profile image
jfoesq in reply toMuffin2019

While I don't wish to attack anyone on this site, I find it inappropriate for people to mention their religious beliefs here in a way that implies those beliefs apply to all of us. I don't have to believe God has a plans for each of us. I choose to believe in science and medicine, not in God. And- I don't blame God for my cancer, nor do I thank him for the science, medicine and doctors that have helped me fight this disease. Despite our very different beliefs, I hope you respond well to treatment and live a long and fruitful life.

Muffin2019 profile image
Muffin2019 in reply tojfoesq

I was not implying to all on here just my believe, I am a christian others may not believe in a god and that is not my concern. Just the way I feel so we disagree , I was responding to someone else , I agree his death was not timely and my sympathy go to his family. I do not blame cancer on God but I thank him for the doctors and medicine to help fight this disease. I am not giving god the credit for his death but just another way to look at all those who we think passes against what we thought was not their time. I pray for those who have this disease to give them guidence and strength to fight on until science comes with a cure or new meds . I do not believe in santa clause as kids would but I have a strong faith that has helped me accept what I have and know there is a reason even though I do not know why I have this disease .

jfoesq profile image
jfoesq in reply toMuffin2019

I wish you all the best.

Bodysculpture profile image
Bodysculpture in reply toMuffin2019

Muffin I also believe in God and I have absolutely no shame in saying this I believe in a higher power that comforts me even now

I thank God everyday for what I do have not what I don't .

Wongle1 profile image
Wongle1 in reply tojfoesq

I do not believe in god but if people want to send there wishes to prey then so be it they are trying to give comfort in their own way because what ever way helps to try and get through this shitty disease then so be it this site is not based on religion background race money just on help and hope IF you need it your choice please do not put this site down it helped me a lot because I chose to let the people in to help me

jfoesq profile image
jfoesq in reply toWongle1

I was not putting the site down. The site is fantastic, especially the medical information provided by some. I wish you the best.

Wongle1 profile image
Wongle1 in reply tojfoesq

As I too you I have a new partner friend and we have found out he has bladder cancer it just seems to go on and on but if u need to talk about prostate cancer i am always here for u xx

in reply tojfoesq

I am ok with you sharing your beliefs with the above reply and I am ok with Muffin’s reply. It’s ok to believe differently. Hope you too have the best outcome with your journey . It’s all good.

jfoesq profile image
jfoesq in reply to

All the best to you too.

in reply toMuffin2019

Amen🙏

in reply toE2-Guy

Our friend is in A Bangkok hotel for five more days of quarantine..

E2-Guy profile image
E2-Guy in reply to

Tell her to contact me if she gets a chance...FB or email. Perhaps I can help pass the time in quarrentine?

in reply toE2-Guy

I will !🌵

Collarpurple profile image
Collarpurple in reply toShooter1

IEveryone here has been a hero for someone .Shooter was one of the first that helped keep me sane when I first found out about my husband. This young man that died and fought so hard broke my heart. I read his post and he left with such dignity . I guess what I was trying to say is it sometimes when you're wondering why am I still here, maybe one reason is you can help that one person that writes in and feels that life is over now. I know I'm thankful for every single person to help me through that begin stage.

Bodysculpture profile image
Bodysculpture in reply toCollarpurple

Yes Shooter has been a fountain of knowledge and inspiration I love Shooter

Shooter1 profile image
Shooter1 in reply toBodysculpture

Wow, thanks for the compliments. Hope to be around and commenting for a long time to come... Sadly my last 4 PSA tests have all been trending up. 10%, 50%, 60%, and yesterdays only 33%. Almost good news. I was expecting higher increase. New scans ordered, just awaiting approval from VA. Wish me luck and a long life.Doug

P.S. Scott, I'm going to try to be around at least as long as you. (Lulu700)

in reply toShooter1

Then I’m not going anywhere soon . God willing , we will

Hang on as long as we can .I’m not happy about your PSA . I did not know that . Shit ! 🙏🙏🙏🙏

Shooter1 profile image
Shooter1 in reply to

Agree, SHIT. Up another 84% on Monday, But life is still good..

in reply toShooter1

Hey Shooter...I posted about a new phase 3 study....Veracity for veru 111.

I believe it's for mcrpc who failed zytiga and/or xtandi....you might be a candidate...

here's the website...verupharma.com/pipeline/sab...

Something to discuss with your doctor to see if it's right for you....

lespaul123 profile image
lespaul123

Well put, friend. God Bless Cleodman and his family .

16starsky profile image
16starsky

I could not stop thinking about this yesterday, infact today as well. So very very sad to read, What a truly brave and caring man , the world is a sadder place now without him. God Bless and rest in peace Cleodman.

This brings to truth that we ,the ones fighting the beast should live in appreciation of each day .. Cleodman fought pc and his love for cleodwoman is eternal . Love is all there is my friend . I pray for those alone in this journey .They are stronger that I. . I am thankful that I have love . Thank God for today .

My dx was exactly the same . In this we are all human . Therefor we can relate to each other’s plight . I just talked to my long term buddy . He is sitting in the doctors office waiting biopsy results .Psa 160 , fu@@! I feel for him right now .

Bodysculpture profile image
Bodysculpture in reply to

Unfortunate

Wongle1 profile image
Wongle1 in reply toBodysculpture

That’s was a very brutal reply

Muffin2019 profile image
Muffin2019 in reply to

I was there over 3 years ago with my best buddy, I wish him the best and stick by him as he needs your support no matter what happens.

timotur profile image
timotur

It’s really hard to process Cleodman’s passing— it’s surreal how such a young, healthy, talented individual could be so affected. It hit me in a way that made me more mindful that this disease can take us anytime. I will think of him and how well he handled it when that time comes.

E2-Guy profile image
E2-Guy

Thank you 'Bodysculpture' for this well-written post! I can't stop thinking about him and what his wife has/is going through.

Bodysculpture profile image
Bodysculpture in reply toE2-Guy

Ron This one hit me hard

We lost a great source of Wisdom knowledge and understanding

Still shaken today

What a man

What a husband

What a friend

We lost and Angel Ron

And we will miss him for a long long time

Today Is gonna be tough as I find myself thinking about him and and what his wife in particular is going through

I wish I could comfort her and never tell her everything Is gonna be alright because it won't without him

Ron

We fight on knowing we stood in the footsteps of Cleodman

A man and then some

E2-Guy profile image
E2-Guy

Denver, I share your sentiments completely...thank you!

Bodysculpture profile image
Bodysculpture in reply toE2-Guy

And you Ron

in reply toE2-Guy

Me too!

Sisira profile image
Sisira

Dear brother Bodysculpture,You are so humanly overwhelmed by this poignant story of Cleodman and his grief-striken wife because he was such a compassionate man and a learned physician who faced death with dignity at the prime of his life, at such a young age. Even I remained shaken for a couple of days after reading the well written message by the Cleodwoman. I thought of telling something to comfort you and share with you the agony of his untimely passing. There is this book I read in 2017 in preparation to face and accept death with dignity in case I have to give up the battle against this beast. The great book " WHEN BREATH BECOMES AIR " written by Paul Kalanithy. He tells ardently what makes life worth living in the face of death. Paul Kalanity was a neurosurgeon and a writer. He held degrees in English Literature, Human Biology and History and Philosophy of Science and Medicine from Stanford and Cambridge universities before graduating from Yale School of Medicine. He also received the American Academy of Neurological Surgery's highest award for research. He served as a chief surgeon and his wife as a specialist physician in the same hospital. At the age of 36 Dr.Paul Kalanithy was diagnosed with inoperable lung cancer. At this time his wife was in advanced pregnancy. So one day he was a doctor treating the dying, the next he was a patient struggling to live. He could not continue his battle even for one year. He died in March 2015 aged 37. He is survived by his wife and their newly born daughter. I think you should read this book in honour of our fallen great hero Cleodman 🙏.

MateoBeach profile image
MateoBeach in reply toSisira

Yes an excellent and heart wrenching book.

Shooter1 profile image
Shooter1 in reply toMateoBeach

Agree good book.

Bodysculpture profile image
Bodysculpture in reply toSisira

I will

in reply toSisira

Excellent!

dockam profile image
dockam in reply toSisira

Yes, a great read. I also read this: amazon.com/Unwinding-Miracl...

Another cancer saga

and this: amazon.com/Emperor-All-Mala...

Rest in Peace Cleodman

Fight on Brothes

Brackenridge profile image
Brackenridge in reply toSisira

Phenomenal book

larry_dammit profile image
larry_dammit

It never fails to break my heart when I hear that one of my fellow warriors takes the last ride. 🙏🙏🙏🙏

SeosamhM profile image
SeosamhM

Indeed.... seeing Cleodman succumb when he was doing everything RIGHT to fight this, and being a doctor on top, struck me as the very example of universal unfairness.

But we are all struggling up that metaphorical beachhead in our fight against APCa, aren’t we? Together and yet apart, some running, some falling, some crawling, some unable to move....hoping against hope that the bullet our own body created doesn’t strike us down before we are ready, and always holding the thought somewhere within us that we will not only survive, we will thrive...that we will win despite the odds.

And you know what? Some have beat the odds, and they are here in this forum. Maybe you are one of them, maybe I am.... but this thing can’t take us all. And those behind may be the beneficiaries, learning from our fight.

I take solace in that even as I truly grieve Cleodman and the reassuring presence he represented to me on this forum.

Chugach profile image
Chugach

What a bold man and cleodwoman to decide to continue share on his YouTube channel ‘doctor living with cancer’. See you on the other side brother!

emontis profile image
emontis

Thank you for your post! I pray I have the strength, compassion and dignity Cleodman had.

Karirudy profile image
Karirudy

A beautiful tribute. We help each other

j-o-h-n profile image
j-o-h-n

He was a cool guy.... I wish we knew more about him....

j-o-h-n Wednesday 04/14/2021 5:03 PM DST

Wongle1 profile image
Wongle1

Even though my boo has gone two years ago I always come on here to give me strength I miss him every day but we all are here wives children brothers sisters mothers all of us to help each other through this horrible disease and to know that even when he has gone he hasn’t because he is a warrior on here and the world to his family xxx

Cleodwoman profile image
Cleodwoman

Bodysculpture, thank you for this post. I needed to read this today as the days are getting harder and I miss Cleodman more and more each day. This Saturday will be one month and I’m still wondering how is this possible.

Cleodman and I also cried over the death of other warriors in the last four years. I never wanted to be the one to have to write such post.

Thank you for remembering him with this post.

Bodysculpture profile image
Bodysculpture in reply toCleodwoman

He is a man worthy of mention Time will be the only healer

Ask yourself

What would Cleodman want me to do ?

I pray for you all the time

But I also know a love like yours never dies

He will live on in our memory

Bless you Cleodwoman loads of hugs

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