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Advanced Prostate Cancer

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Rockslinger

Rockslinger profile image
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Has anyone experienced weird dreams since taking Lupron shots and Xandi, my husband says he’s having more crazy dreams!!!

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Rockslinger
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72 Replies
Shooter1 profile image
Shooter1

Not really crazy dreams, but seem to have more of them....

Kaliber profile image
Kaliber in reply to Shooter1

Com..mon. ....fess up ...🎃🎃🎃🎃

timotur profile image
timotur

Yes, especially the first week or two after an injection. They seemed to be surreal, vivid, and durable, ie I could remember what I had dreamt later in the day.

Kaliber profile image
Kaliber in reply to timotur

Uh huh .... Same here but after those pain meds wear off , it’s all back to dismal normal yayahahahaya yayahahahaya. 😂😂😂😂🎃🎃🎃🦋

depotdoug profile image
depotdoug in reply to Kaliber

Dismal, dismal,dismal. Thats. Four letter word, almost.

I,ve had old cat dreams. If that qualifies.

Kaliber profile image
Kaliber in reply to depotdoug

Depends what you are doing to that cat .... 😂😂😂😂. Yikes ..... ewwwww catastrophic Yayahahaha 🙀🙀🙀

depotdoug profile image
depotdoug in reply to Kaliber

Cats have nine(9) lives. Why should we not? And

1. Felines can arch their back

2. Hiss

3. Purr

4. Scratch

5. Bite

6. Meow

7. Go into ‘heat’mode

8. Catch and eat mices

9. And be mans best friend, oops thats dogs. Another dream coming up!

Kaliber profile image
Kaliber in reply to depotdoug

Yayahahaha yayahahaha That’s purrrfectly funny. 😂😂😂😂🙀🙀❤️❤️❤️

GoBucks profile image
GoBucks

Yeah, been dreaming there is a virus raging around the country. Wait, what?

Kaliber profile image
Kaliber in reply to GoBucks

I hear you 🎃🎃🎃🎃😂😂😂🎃

in reply to GoBucks

Freakin nightmare 2020’s

Kaliber profile image
Kaliber in reply to

Halloween couldn’t get any scarier than This ....Huh ...😂😂😂😂🎃🎃🎃🎃🎃

depotdoug profile image
depotdoug in reply to GoBucks

Virus virus virus true. Bring vaccine. Thry due it with cancer meds, they can do it with Covid-19... i just test Covid-19(-) this Monday pre- umbilical hernia surgery. Fun fun in OR#21.

Kaliber profile image
Kaliber in reply to depotdoug

Dang brother ... just what you don’t need heaped on top of all our other pile of crap. Good luck with your surgery big guy , let us know how you’re doing.

💪💪💪💪👍👍👍

depotdoug profile image
depotdoug in reply to Kaliber

Yep, much improved Doug maybe. I had my umbilical hernia surgery this Thursday AM.

Facts: arrive 06:30 at my heart hospital now hernia hospital right across the road from our home. ck in not till 07:30 I'm getting hungery-er. 07:40 to pre-op prep and ck that i was alive, med ck's and BP high, wonder why, I'm inside my fav hospital. surgery scheduled for 09:30 wait wait and wait in uncomfortable bed. Anethesiologist saw me, my surgeon too. Went to OR#21, I don't know why #21 at 10:00, minor belly button surgery done in 17 min they told me. Post op recovery from 10:30 till discharge 12:50, home at 13:00. It was a success, taking extra strength Tylenol and so far 2 Hydrocodcone pills. My adhesive bandage patch half-way came loose from shower last eve. Will do the authorized outer adhesive bandage remove after todays shower before church tonight. Yes, I'm moving only minor soreness. I'm restricted to only walking till my post op surgeon visit Nov 18th. I'm really gonna try some casual treadmilling tonight at my fav Planet Fitness, that fits my walking criteria. Next week will be better and Halloween will be over tonight.

My incision white gauze piece is only 1.25" x 3" long. That adhesive dang bandage is pulling more than the inside hernia pain. Let the healing begin. Next Adv PCa IU Shelly and Schwarz Cancer Center appointment is Dec 17-18, IU North hospital Carmel, IN. I get next CT abs, pelvis, chest and NM bone scans then plus complete blood labs. PSA Sept 18th was 0.475...

Depotdoug.

Kaliber profile image
Kaliber in reply to depotdoug

Well buddy here’s hoping you heal quickly and move on past this lump of Schmitt in the road ... just “ regular “ stuff is plenty for any of us. Sounds like it went well, you should be back in the groove in no time. I hate it when this extra stuff plies on the already screwed mess ... its good to see it pass / resolved. Kripes ....

Your psa looks decent ... not that worried if that long of an interval between tests ...that’s a good sign too. ( every month for me ) things looking pretty good there heading into the holidays ... how good is that !!!

💪💪💪👍👍👍🌼🌸🌻🦋🌈

depotdoug profile image
depotdoug in reply to Kaliber

Holidays? Turkey day won’t be what Turkey day used to be. At least Mr Tom T. knows whats coming.

🦃♨️🦃♨️🦃♨️

in reply to depotdoug

You’re my hero . How you endure ..✌️😎

depotdoug profile image
depotdoug in reply to

Well, not so fast Whimpy-p. I just wrapped up my 1st Fitness Planet W/O in a week. Yeh, Had to stop exercising last Mon to protect my COVID-19 ( - ) neg pre surg qualification test. No Social Fitness-ing or outside social grocery shopping till post hernia surg.

But, I did get in a 35 min Bike cycle w/o, and a 35 Treadmill session this AM. I'm allowed walking, treadmill slow pace, bike riding inside it's 40 degrees out. One thing it was tough, seeing the exercise babes at my go to fitness place, its been a week and they are still there. Incentive yeh, after ADT + abiraterone for 13 months guess it has not affected my female visual perspective.

Doug

in reply to depotdoug

We can appreciate still the feminine form . 🤔

treedown profile image
treedown in reply to

Mine is a new appreciation since starting ADT.

in reply to treedown

Only we know what that’s like ?

Kaliber profile image
Kaliber

Hummmmmm. ..... depends ... what do you consider “ weird “ or crazy ???? Is a 12’ X 12’ black rubber tarp , a commercial restaurant sized jar of mayo, jumbo croutons and a chainsaw considered weird ...

Just say’in 🎃🎃🎃🎃🎃

SPEEDYX profile image
SPEEDYX in reply to Kaliber

Pumpkinhead 1988 that's a killer!!!

Kaliber profile image
Kaliber in reply to SPEEDYX

Yayahahahaya yayahahahaya

Whare are all those good ole dreams / fun flicks / training films when you need them ...alas 😂😂😂😂😂😂🎃🎃🎃

Just say’in

in reply to Kaliber

Nah, that’s half-way normal 😂

Kaliber profile image
Kaliber in reply to

“ half way “ ..... yayahahahaya yayahahahaya 😂😂😂😂🎃🎃🎃🎃🌵🎃

Rockslinger profile image
Rockslinger in reply to Kaliber

No not that crazy, just places like your house is turned in to a zoo ha!! Your old home has a slide people every where some you know some you don’t. LOL🤔🤔🤔

Kaliber profile image
Kaliber in reply to Rockslinger

Yea ...that’s right brother .... gotta have some holiday fun yayahahahaya yayahahahaya 🎃🎃🎃🎃🎃

monte1111 profile image
monte1111 in reply to Kaliber

Jumbo croutons? Now that is really sick.

Kaliber profile image
Kaliber in reply to monte1111

yea ..... huh ....? Yayahahahaya yayahahahaya. 🎃🎃🎃🎃🎃👀

monte1111 profile image
monte1111 in reply to Kaliber

Does j-o-h-n provide the dressing?

Kaliber profile image
Kaliber in reply to monte1111

He eats the soggy croutons ....

I sure did with Lupron and another adt .. our heads spin with the dx .. then with double adt Whoohoo what a ride. Melatonin helps some. We face our demons and normally that’s ourselves or past baggage ..Exercise is the only universally accepted helper .. I had those crazy dreams my first few years during treatments.. It got better for me. Hopefully the same for hime . Losing testosterone is traumatic in ways known and unknown ..

Kaliber profile image
Kaliber in reply to

Woooohoooo indeed buddy ....living out there in the middle of all those little cactuses ...uh huh .... Call me crazy but when I read this post that was the first thing that popped into my mind ( maybe j-o-h-n too ) ... lucky guy !!?? 😂😂😂😂😂🎃🎃🎃🎃❤️❤️❤️

in reply to Kaliber

Here now it’s mostly junipers and scrub oak. A few prickly pears . I’m did love living in the giant cactus forest for many years . We Don’t miss those summer temps though .

Kaliber profile image
Kaliber in reply to

Yea those summer temps could get pretty “ high “ yayahahahaya 😂😂😂🎃🎃🌵🌵🌵🌵❤️❤️❤️

Rockslinger profile image
Rockslinger in reply to

I told we do have 2 full moons this month, he said his dreams nothing outlandish he stopped taking the melatonin didn’t help , just feels like he not resting with the constant dreams.

Kaliber profile image
Kaliber in reply to Rockslinger

If you want more “ full moons “ , ask j-o-h-n .... he knows all about mooning.

😂😂😂😂😂🎃🎃🎃🎃

Rockslinger profile image
Rockslinger in reply to Kaliber

You can’t unsee that👀👀😂😂😂😂

Kaliber profile image
Kaliber in reply to Rockslinger

Ewwwwwwwwwwwwwwwww 👀 👁👁🙀🎃🎃🎃

j-o-h-n profile image
j-o-h-n in reply to Kaliber

youtube.com/watch?v=h1dS3mI...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/31/2020 5:53 PM DST - Treat or Trick

Kaliber profile image
Kaliber in reply to j-o-h-n

Moon River too ... “ moon liver, greener than some bile ... I’ll be peeing you in a while, some day ..”

🎃👻🎃👻

treedown profile image
treedown

I have had a few dream periods since starting Lupron. Very vivid and I would say they were just off, not weird or disturbing. The ones I remember best was when I added Zofran for radiation nausea, luckily I wasn't on it very long. I probably didn't need it in the first place.

Kevinski65 profile image
Kevinski65

I just woke up from on at 130 am.

2dee profile image
2dee

Absolutely.

More importantly the dreams are very detailed and vivid.

I've been able to restart after bathroom duties every couple hours and been able to fully recall long after.

For a few I created book outlines in preparation of publishing.

Only my first one was a vivid nightmare. All others are reasonably pleasant experiences.

Been on ADT for about 2 1/2 years now and still have an occasional vivid dream though not as often. Just part of this chemical excursion I guess.

2Dee

michael00 profile image
michael00

This interests me. Years ago i had brain surgery which cut off dreaming for many years. About a year after i started PC treatment i began dreaming once in a while. Not weird ones but its stange to dream again.

larry_dammit profile image
larry_dammit

Yes. Weird and crazy. Taking in my sleep, jerking you name it. Don’t sleep in a small bed with your mate 🤪🤪🤪

Kaliber profile image
Kaliber in reply to larry_dammit

“ Jerking you name it “ ..... I named mine “ Wilbur “ .....

Now named “ goner “ ....

Just say’in

🎃👻🎃👻🎃👻🎃

tarzan11 profile image
tarzan11

I dream vividly and violently every night. Never a fun dream. Would scare the crap out of Steven King. I also sleepwalk, sleepcrawl, sleeppunch, sleepjump etc. I have broken ribs hitting the dresser and many bruises including some on wife. Been on PCa drugs for 17 years....so weird dreams is a small price to pay for still being here.

Kaliber profile image
Kaliber in reply to tarzan11

Once upon a midnight dreary while I pondered weak and weary over many a quaint and curious volume of forgotten lore while I nodded nearly napping suddenly there came a tapping .... it was my wife trying to wake me up and back off the napping ....yayahahahaya yayahahahaya.

🎃👻🎃❤️👻🎃👻

ctarleton profile image
ctarleton in reply to tarzan11

Tarzan11, you may want to follow-up with a doctor about your REM Sleep Behavior Disorder symptoms. There might be something else happening medically, which you would want to know about, and there could be some other safeguards to take in the meantime. See also, e.g.,

mayoclinic.org/diseases-con...

MateoBeach profile image
MateoBeach

Maybe write them down right away if possible. The craziness is just the language of symbols. And they are your symbols. May be trying to communicate something of value. Worth considering. Other times just craziness. Enjoy the show. 🎃🎃👻👻

Rocketman1960 profile image
Rocketman1960

My dream life is better than my real life. Very intense and vivid. I make sure to go to sleep with good thoughts so the dreams don’t get out of hand.

in reply to Rocketman1960

I’m the king of slumber too . My problems start when my feet hit the floor . In my dreams I’m strong and virile.. waking is a let down to reality ..

j-o-h-n profile image
j-o-h-n

I dream every night that I'm sleeping...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/31/2020 5:50 PM DST - Treat or Trick....

Kaliber profile image
Kaliber in reply to j-o-h-n

Yea sure, your wife thinks you’re sleeping but you’re out running around the woods again tonight 😂😂😂😂😂

🎃👻🎃👻🎃🎃👻❤️❤️

j-o-h-n profile image
j-o-h-n in reply to Kaliber

I have to..... it's my ex-wife's birthday.....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/31/2020 8:31 PM DST - Treat or Trick

Kaliber profile image
Kaliber in reply to j-o-h-n

Happy Halloween buddy .... don’t eat too much candy 🎃👻🎃👻🎃👻

j-o-h-n profile image
j-o-h-n in reply to Kaliber

You too Mr. Kaliber....No kids at the door today.... Four years ago when the little buggers were ringing my bell for treat or tricking... I answered the door naked....Haven't had a kid ringing my bell since..........Save me the dark chocolate...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/31/2020 10:15 PM DST - Treat or Trick

Kaliber profile image
Kaliber in reply to j-o-h-n

Haven’t seen any kids because you just got out of jail yayahahahaya yayahahahaya 🎃👻🎃👻🎃👻

j-o-h-n profile image
j-o-h-n in reply to Kaliber

Yep and next year I'll answer the door in my orange jump suit.......

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 11/01/2020 2:01 PM EST

Kaliber profile image
Kaliber in reply to j-o-h-n

Well the good news is that orange jumpsuit will color coordinate nicely with your bloodshot eyes ... accessorize accessorize accessorize. Maybe a stylish orange colored pair of those county jail flip flops, or a pair of contrasting chrome full shackles. Stylish .....

Just say’in 😂😂😂😂😂

j-o-h-n profile image
j-o-h-n in reply to Kaliber

You want me to look real shype..........Thanks... so I would look attractive to all the homeless in Manhattan....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 11/01/2020 7:05 PM EST

Kaliber profile image
Kaliber in reply to j-o-h-n

Yayahahahaya 😂😂😂😂😂

Kevinski65 profile image
Kevinski65

It's when u wake up in another country , you have to worry.

Kaliber profile image
Kaliber in reply to Kevinski65

I hate it when that happens. 😂😂😂😂😂😂

in reply to Kevinski65

Depends on which country ?

Survivor1965 profile image
Survivor1965

Yup, crazy crazy dreams. Never dark just weird and vivid. And, If I wake up to go pee and go back to sleep 3 times, 3 brand new strange dreams every time. I also take ambien. Been wondering if its the ambien or the meds, now I read this and am thinking its the meds.

Kaliber profile image
Kaliber in reply to Survivor1965

Ambien is famous for the weird dreams.

Horse12888 profile image
Horse12888

My incidence of nightmares very definitely increased on ADT, and it really hasn't returned to normal, 4 years later.

londoncyclist48 profile image
londoncyclist48

Yes, absolutely. I have noticed this too. They started after I began taking xtandi. Very vivid dreams and realistic. I wouldn't call them nightmares but they're not far off.

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