Just recently celebrated my 14th Anniversary since being diagnosed with Prostate Cancer.
Even though I was not cured by initial treatment and it returned 6 years ago and was deemed Stage 4 and incurable, I'm still here and regard myself very fortunate and I think I'm doing ok. The support and information available on this site is priceless, and I thank everyone.
Keep up the good fight fellas!
Mark from Down Under
Congratulations. You said that PSA hovered around 1.0 for 6 years before you started Lueprolide (lucrin) Would you share with us what kind of interventions you were using to keep PSA below 1.0 for 6 years without ADT.
In that 6 year period after EBRT (Radiation Treatment), I was not on any other treatment.
I honestly believed ( and so did my Dr ) that I was in the clear for good.
But then my PSA slowly started to rise, and eventually scans found the lymph nodes mets and various spots in my pelvis.
Amazing, and I posted a few days ago that I'm miserable after just two years!
Sometimes I hit a low, but have this place to rub shoulders for a pick up...
Cheers!
Great news ! Congrats and may you have many more Anniversaries
Congratulations deano58, good for you brother. Hereze hoping you can have another 14 years ... you are a great example for all the rest of us.
Peace brother 💪💪💪👍👍👍🌼🌸🦋🌻❤️
Thanks Kaliber
If it helps one Brother feel a little better my post is worth it.
I remember when I hit the 12 year mark, I was invited to tell my story to the local Pca support group. Most of the guys there were newly diagnosed and scared out of their wits. My main point was to reassure them that even if they faced the worst case scenario and the cancer came back, there was still many more years of good life left.
Thanks for sharing . My husband is so optimistic about his survival-ship and I love reading that it’s possible
What was your Gleason score when you were first diagnosed ??
4+3. They called it a Gleason 7, but now days a 4+3 ( as opposed to a 3+4 ) is called a "7b"
They now put in the same category as a G 8
I am G(4+3=7) Grade 3 Unfavorable Intermediate Risk (UIR) on 2020/01/29.
73 y.o. 2020/06/08 to 2020/07/07 VMAT Hypofractionnated RT 60 Gy/20 Fx + 2020/05/31 Lupron Depot 22.5mg/12 weeks X 2.
10 weeks post VMAT and 15 weeks per-ADT PSA = 0.03 ug/L & Testosterone <0.2 nmol/L or <5.7684 ng/dL.
My RO was surprised of such a LOW PSA like for an post-RP but I still have my prostate.
Seems that my PCa reacted very well to the Rxs.
Good Bless You All.
Congrats deano. Brings up memories of Dean Martin and Jerry Lewis. That is one helluva boat. May want to just kayak for a while. Enjoy.
Amazing response
Have you made changes to your diet ?
Do you exercise?
There may be something you are doing that makes all the difference
I have always tried to keep fit by running since my early 20's.
Ran marathons up until just before my Dx, and have continued to run ( but much shorter distances) to this day. Plus have been lifting weights regularly to try to keep in shape since ADT . Running has always sort of been what I call my "emotional gyroscope". If I can run,I feel like I'm kind of holding my own in this fight. ?!
As for diet, nothing out of the ordinary just always tried to eat healthy. Funny enough, never been a big red meat eater, fish, poultry instead. I do however enjoy an alcoholic beverage maybe too often but my MO has told me he hasn't got a problem with that.
My protein sources are also fish and chicken
I am a bodybuilder and I still train intensely as a personal trainer I spend about 5 hours a day in the gym training others
Hormone therapy has not made a dent on my body yet still strong and lifting intensely
I really want to live for many years yet never one to drink I do however enjoy a joint or 2 from time to time
My oncologist doesn't seem to mind as long as its minimal
Very inspired by you
58 next month and this new life isn't bad at all
Not yet
Hi, unfortunately I’ve read somewhere that fish and chicken are the worst protein sources for prostate cancer. You’d need to google it, but seems best to use pulses and qionoa etc. Cheers.
Congratulations and well done. Hope to be around and hope to read you posting again after the next 14 years.
Sounds like you are going great, you’re positive attitude is probably a big part of it. Good for you.
Congratulations!
Thanks deano58, such a great encouragement to all of us, but above all else, congratulations, you must be some kind of hard nut 😆👍🏻👏🏻.
Phil
Right there with you Deano--- 12 yrs--met on my right hip zapped by SBRT but still Stage 4---just gonna keep living!
Congratulations!
Good for you! Keep up the good Fight, love, live your life!
I hope you have many more anniversaries. When I was DXd 23 years ago no one wanted to do surgery due to PSA of 95 and a G 4+3. A famous NYC cancer center told me this: "There is nothing we can do for you. Go home and make the best of your remaining time." Talk about getting punched in the gut. Well I did make the best of my remaining time by finding a urologist that was doing brachytherapy at a small community hospital. I had Brachy and EBRT and was good for 15 years. Then I had BCR and beating PCa back for the last 8 eight years. I now have a tumor extending from the prostate bed , prostate gland and thru the wall of the bladder. I will beat this tumor back with cryosurgery.
MikeP
Congrats mcp1941! 23years that is amazing. Good on you!
Your Drs consider cryosurgery is possible after EBRT?
That is Fantastic 👏
deano I guess a daily dose of beano does the trick..... 14 years and still passing
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 09/29/2020 7:43 PM DST
update- still undetectable ( 2.5 years)
Still castrate sensitive after 6 1/2 years
8 years and counting.
