Xtandi is Working

[Nicnatno]

Hello Warriors, since taking Xtandi 3 months ago, my PSA is now undetectable. it was up to 6.5 which my Onc recommended doing Xofigo. Now my Onc wants to hold off on it. my body has adjusted to it with less fatigue. Life is good. wishing everone a great summer. Keep fighting

Nick

[Tall_Allen]

Great response, Nick!

[Nicnatno in reply to Tall_Allen]

Thank you TA. it was scary after a couple of days with blood in my urine. That all disappeared after drinking lots of water.

[Hidden in reply to Nicnatno]

Oh yah!

[Hidden]

Woohoo! Glad to hear. It's an amazing thing when your PSA comes back undetectable. Mine did initially and then went up to .79 and I thought OK, that was nice while it lasted. Then it went back to undetectable again.

We started around the same time, but you got quite a while longer before you had to go on second-line ADT.

Hope things continue to go well for you.

[Nicnatno in reply to Hidden]

Thank you Gregg. Hope you're doing well

[monte1111]

Sounds great! Started about same time? March 2017. Extensive bone mets plus lymph node mets. Xtandi 36 months August. Bone scan a week ago shows cancer stable. Psa <0.1, keep fighting Nicnatyes.

[Nicnatno in reply to monte1111]

That's great. so you haven't had docetaxel?

[monte1111 in reply to Nicnatno]

Started with 8 cycles docetaxel. (brought psa from 59.9 to about 7.0) Then, Xtandi took it from there to <0.1 as of today. And Lupron from day one.

[Fight11 in reply to monte1111]

Are you castrate resistant

[monte1111 in reply to Fight11]

No. Not yet. Believe I was put on Xtandi before it was approved for metastatic hormone sensitive prostate cancer.

[Hidden in reply to monte1111]

💪

[j-o-h-n in reply to monte1111]

Congrats on results...... Aim High.... Shoot Low....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 07/23/2020 4:53 PM DST

[Magnus1964]

Awesome, have a great summer.

[Nicnatno in reply to Magnus1964]

Thank you Magnus. I'm trying to mirror your success.

[Kaliber]

Good for you brother ... keep it going. 💪💪💪👍👍👍

[tallguy2]

Nice! Congratulations!

[Chubby42]

Nice one m8

[2dee]

I'm almost having similar experience. PSA had begun ramping up to 9.1 after reaching a nadir of 1.2 from 1300+ on Lupron.

2 mos 1wk now back down to 1.1 and possibly lower yet on added Xtandi?

Now long past my "use by" date in 2018. SOC with a couple personal tweaks working for me.

2Dee

[Nicnatno in reply to 2dee]

That's awesome

[Hidden in reply to 2dee]

😂

[bellyhappy58]

Congratulation...I am hearten by this email as I have just started Xtandi yesterday...

[Nicnatno in reply to bellyhappy58]

Bellyhappy, fatigue will be your #1 nemesis. I walk every day early in the morning to combat it and it helps tremendously.

Nick

[Ramp7 in reply to Nicnatno]

That is the regime I employ. I'm not on Xtandi, yet. Lupron and Zytiga for me. The more active I can be, the better I feel. Although when energy ebbs a quick nap can turn it around. Great news, all the best

[Nicnatno in reply to Ramp7]

Thankyou Ramp. How long have you been on Zytiga?

Nick

[Ramp7 in reply to Nicnatno]

Lupron 6 months, Zytiga 3 months. Just finished my walk by the reservoir. Of course with Mans Best Friend, loves walks too, Hot and sticky in Connecticut right now.

[Nicnatno in reply to Nicnatno]

It's been excessive heat here in the Philadelphia area which is why I do my walks at 5:30 am. Take good care of yourself.

Nick

[Hidden in reply to bellyhappy58]

🙏May it work well for you .

[TheBrain56]

Great news .... I’m in Australia and started the Xtandi journey about 5 weeks ago after my PSA had progressively risen from <0.5 to 6.3 across 09/19 to 06/20.

My Oncologist put me on Xtandi (with my 3 monthly Zoladex injections continuing) and the PSA dropped to 1.96 after 2 weeks and remained the same after another 2 weeks. Only issue is lethargy (can’t do a damn thing before I’m exhausted) but I’ll take that 👍👍👍😊😊

[Nicnatno in reply to TheBrain56]

It took 4-5 weeks for my body to adjust to the main side effect and that's fatigue. I walk 2 1/2 miles every morning and it helps.

[Lettuce231]

Like everyone here, I am extremely happy for you, long may it continue 👏🏻😄.

Phil

[Nicnatno in reply to Lettuce231]

Thank you Phil. Hope you're doing well also.

Nick

[Hidden]

Great news! What did you take before, did you have chemo?

[Hidden in reply to Hidden]

I've seen your posts, so you had first chemo with lupron, than provenge, and than xtandi, right? Keeping lupron always.

[Nicnatno in reply to Hidden]

Correct. When my PSA shot up to 6.5, my Onc suggested I do Xofigo also but after taking Xtandi these past 3 months, he said yesterday to hold off on it.

Nick

[Fight11]

Nic are you prostate resistant

[Nicnatno in reply to Fight11]

Yes, this is why my Onc put me on Xtandi. So far so good. I hope to get years out of it.

[Hidden]

That is great news Nicnatno. Are you on Lupron also?

My PSA is beginning to rise on Lupron - 1.8. Are additional side effects when you add Xtandi???

Appreciate your input.

[Nicnatno]

Hello tceinvestments, after 48 hours of taking Xtandi, I started to pee blood. The triage nurse told me to drink lots of water. After 3 days, everything was clear. The only other s/e was heavy fatigue which I combat through walking early in the am.

Nick

[Cactus-Jack]

Great news.

I’ve been on Xtandi since 2018, preceded by Provenge in ‘18 and Lupron in 2013. PSA undetectable since. Praying it stays that way for a while.

Good luck in your journey.

Jack

[Hidden in reply to Cactus-Jack]

🙏

[Hidden]

Great news ! Rock that xtandi nick .. Lets ride this horse til we can’t no more . Peace friend✌️

[Nicnatno in reply to Hidden]

Thank you Scott. Feeling good brother. Hope you and the Mrs are well.

[Hidden in reply to Nicnatno]

Thanks Nick we are AOK! Feeling good is everything! Good day 🤙🏽

[j-o-h-n in reply to Nicnatno]

Good deal Nico..... Keep walking.... and keep posting.... have a nice summer of house arrest....

Fucking Pca and Fucking Virus....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 07/23/2020 5:00 PM DST

[Nicnatno in reply to j-o-h-n]

Salamat Kuya John. Kamusta si Ate?

[j-o-h-n in reply to Nicnatno]

You're welcome.... I'm okay and so is Ate.... We are both under house arrest also... and a couple of months ago we decided to hide all sharp implements and silverware. (was a good idea), I have to apologize that I forgot that you're Pinoy... I can't blame it on the ADT more on old age.....

Manatiling maayos at manatiling nakikipag-ugnay…. (from google translate).

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 07/23/2020 10:29 PM DST

[Nicnatno in reply to j-o-h-n]

LMAO

[Shooter1]

On Xtandi--side affects kicked my as$. cut to 80 mg and holding at 0.1 PSA LAST 2 YEARS.

.

[RonnyBaby]

It encouraging to see some positive results - God knows how difficult it can as we watch and wait for trends and results that offer hope.

May the good news keep coming ....