Occipital pain, fearing cervical (C1/... - Advanced Prostate...

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Occipital pain, fearing cervical (C1/C2) mets, anyone experienced occipital pain or had cervical mets?

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Waiting for a cervical MRI + bone density measurement, my husband is having occipital pain since a month. It got better, but is still there.

PSA 60, ALP in normal range (bone AP as well), calcium normal range, last PSMA 6 months ago showed nothing new (2 lymph nodes involvement, seminal invasion, possible little bone mets not growing at all, so maybe not mets).

PSA 6 months ago 40.

Did anyone have occipital pain or cervical mets?

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MateoBeach profile image
MateoBeach

If the scans show no anatomical identifiable cause then one possibility is occipital neuralgia. Episodic severe shooting or lightning- like pain of an unpredictable nature. It is thought to be a variant of trigeminal neuralgia. Bursts of un-modulated activity in sensory cranial nerves. Can be helped by certain anti-seizure drugs and others but is unpredictable in its course. Often goes away with time. My wife had this over a few years and is now apparently resolved.

Very challenging and frustrating to deal with. My sympathies. See a neurologist if the scans do not reveal another cause.

wagscure259 profile image
wagscure259

Yes I have had occipital pain which radiated from the suboccipital region. MRI of the Cervical spine was negative for metastatic disease revealing minor arthritic changes. I pray that is the findings for your husband. Some simple postural corrective exercises cured the symptoms. MateoBeach spoke eloquently to a rarer and more severe etiology of occipital pain. Best wishes.

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