A thousand criquets hissing. Is anybody dealing tinnitus.

[Costarica1961]

For several weeks I have been experiencing what I consider severe tinnitus. I am currently on xtandi and lupron and zometa. With a quick rising PSA, I have gone to two regular docs, they ruled out all meds and possible noise damage cause, or wax buildup. Its driving me nuts its very loud from morning until night, any thoughts.

[Magnus1964]

I experience tinnitus also. However I have had it for decades. Seven years ago during a rare family reunion I found that my brother and sister both had it. So I am assuming that it is genetic. Ask some of your relatives if they have it. If not it could be caused by medication.

[Costarica1961 in reply to Magnus1964]

Thankyou, is there any tips to quiet it.

[Magnus1964 in reply to Costarica1961]

There are some over the counter meds that claim to lessen tinnitus but I have not tried any. You can go on Amazon a search tinnitus to find several.

[Hidden in reply to Magnus1964]

I think it’s the med.also..The Docs deny it . Typical .

[BerkshireBear]

Tinnitus is nerve related, I've been living with it for 30+ years. Some suggest it is in your ears while others say it's in the brain; to researchers that may be important, but to us it matters little. Eventually you get to the point of just ignoring it, but I admit there are times when it is difficult, In the early years I would have momentary instances where it would go away entirely, confirming that to me that it wasn't some physical thing like wax, but something internal. Generally it is rather stable, I liken mine to hissing steam radiators (guess that tells you how old I am, eh?) But there are instances of pure bell-like tones, or clock-like ticking, and other temporary variants. A few times it has gotten so loud that I could understand why some people have committed suicide to escape it, fortunately those sessions didn't last long. I have watched the research and cure promises for many years, the only real help seems to be in tricking us to ignore the sounds either mentally or through distractions.

So my advice is to go on with life, distracting yourself with whatever activities will occupy your mind.

[Costarica1961 in reply to BerkshireBear]

It's pretty distracting and annoying I am not telling you anything you dont know. But is there any tricks you use. Thanks

[Hidden in reply to Costarica1961]

Just what you don’t need. If you never had prior . It’s the meds. 🙏

[Hidden in reply to BerkshireBear]

👏🏼👏🏼👏🏼

[timotur]

I’ve had tinnitus since about age 30. Mine is related to hearing loss from shooting guns without ear protection at an early age, louder in the left ear. It ebbs and flows, but most of the time it doesn’t bother me. Mine is a very high frequency pitch. High blood pressure makes it worse, especially when I was on Zytiga, it would get louder within minutes of taking a dose.

[Costarica1961 in reply to timotur]

Mine drowns out the t.v at times. I've shot guns as well always with ear plugs and not often throughout my life. I thought it was wax buildup but last reg doc said theres nothing there although I can feel something in my left even with my pinky just cant pull it out. Weird.

[timotur in reply to Costarica1961]

I would see an audiologist. They can clean out ear canals with an active flush. My Dad did it and made a big difference in his hearing. There's also some over-the-counter ear wax cleaners. When I was shooting, my left ear was closest to the end of the barrel, and it always rang more than the right ear, and today the tinnitus is worse in the left. It's also more noticeable after drinking caffeine, where my BP goes up about 20 points.

[Hidden in reply to timotur]

Great advice! No caffeine

[Hidden]

It’s the meds or the treatments that you’ve endured. That’s my non medical expertise opinion. I had my first year while in treatments. My left me Thank God . I pray the same for you very soon . That is maddening . If it were I , I would get some high thc oil .. and up melatonin if your not already taking it . At night was the worst for me preventing a quick sleep . 🙏🙏🙏I don’t think it’s permanent . They have clinics for this if it persist . Whoa😞

[garythomas]

In Australia, some audiologists offer tinnitus treatments involving some sort of device which somehow trains you to ignore it or helps mask it.

[Costarica1961 in reply to garythomas]

I have been using earbuds. Thanks it helps.

[2dee]

My tinnitus (and migraines) started with a severe rear end vehicle accident 10 years ago.

A distracted driver kind of ruined my life. Permanent spinal cord compression damage. Subsequent cervical fusion didn't help.

The stage4 APCa in 2018, ADT treatment, later added CBD and some THC along with opiates for extreme chronic pain. No change in tinnitus.

It just never quits.

So, just deal with it. Very difficult to do so when dark and quiet but that's all that works. Refocus your mind on something interesting does help. Keep focused and busy THINKING about anything else.

Try to push it to background noise. It's part of who you are now. Lots of causes and few cures.

2Dee

[Costarica1961 in reply to 2dee]

I wish you the best.

[carguy]

My tinnitus started about a year ago after I was diagnosed with stage 4 PCa. About 3 weeks prior to the diagnosis, a urologist had put me on the antibiotic Ciprofloxicin because he thought my high PSA level may be caused by a prostate infection. The ringing started after that. I’m not sure if it was the antibiotic or severe stress I was under from the diagnosis. Anyway, I still have the continuous ringing.

[Costarica1961 in reply to carguy]

My tinnitus is the much more intense after sleeping, sometimes I can barely hear.

[carguy in reply to Costarica1961]

Sorry to hear it’s so bad. I went to a ENT and he prescribed an over the counter supplement called “Lopo Flavonoid”. I didn’t try it because it contains choline, which I don’t think is good for PC. Good luck.

[rocket09]

i can echo most of what has been said and mine increases with alcohol use. I have some relief by taking taurine which seems to help sometimes.

[Costarica1961 in reply to rocket09]

No alcohol but was considering. Until now. LoL

[SUPERHEAT12]

I have had tinnitus for years. Hearing aids help. I generally can ignore it.

[Costarica1961 in reply to SUPERHEAT12]

Thankyou I will try.

[Chugach]

Chemo increased my tinnitus dramatically. I have not found a solution

[Eugmn]

I have had Tinnitus for about 15 years. At times it’s tolerable, other times it drives me crazy. I have tried most every product that claims to cure or reduce it without ever getting results. I have seen audiologists a couple time along the way. Recently I had another hearing test and my hearing is good, only slight problem hearing some high frequencies. The audiologist recommended I try hearing aids. Although not cheap I gave them a try. Mine have a program that works with my IPhone that allows me to hear a relaxing background noise while wearing them. I hear ocean waves. Although it hasn’t cured the problem it sure gives me a lot of relief when I wear them.

[dadzone43]

don't know your age. that may be a factor. I developed tinnitus after a flight home in 2006. With me ever since. There are lots of references about these meds and tinnitus. MOs can deny or scoff all they want, but it happens. See: ehealthme.com/ds/zytiga/tin...

[Costarica1961]

I am 58 yrs old. Thankyou

[Boywonder56]

Im on earleda and lupron...i developed a low hum about 6mos ago...gp says fluid behind ear...take mucinex...i did...still got it ...mine is funny as i can turn it on and off by moving head....noone will blame on meds but i know earleada works in hypothalmus w is located in cranium....guess w live with it to live...is that irony?...rhetorical...?...or just something that comes w a 12k a month prescription..slante' b.w.

[Costarica1961]

Been using flonase it may be helping. It's hard to know because I get busy and forget and then bam the criquets are back.

[TJS-1]

I experience moderate tinnitus (especially at night when trying to fall asleep) when I’m on ADT, but it mostly resolves during “vacation” periods. Same for arthritis in joints and hands. I’m 58 and otherwise pretty active, and never had either of these conditions before. Fairly certain the tinnitus is a side affect of the ADT for me.

[j-o-h-n]

I've had the tin ear for 30 years.... You must train your mind to ignore it... Right now I hear it because I'm concentrating on hearing it. Recently I bought hearing aids that work great and pick up other noise that drowns out the hissing.... Best pair and best price is at Costco.. No BS.... There is no cure.... but you must train yourself to ignore it.... Light airy music at bed time would help.... Cleaning out the earwax by an MD is helpful but no cigar....

Note: I did get rid of a terrible noise when I divorced my first wife.... Oh virus virus where art thou......cause I do know where she is........ sigh...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 04/09/2020 2:27 PM DST

[BillNIttles]

I have ringing in my ears and I'm sure some of it is tinnitus, but not all. It comes and goes, but it is far worse when I am on treatment: lupron and casodex right now. I realized this when I took a year treatment vacation. For me, it is often triggered by something. The ringing is worse if I have cold or other sickness and red wine often triggers too (also triggers hot flashes). Allergies are probably the most predictable. This time of year in Atlanta I know it is a high pollen day when the ringing gets LOUD when I go outside. In addition to identifying and avoiding triggers, the two things that seem to help me with it best are exercise and allergy meds. However, I am still relatively young (54) and I know my punk rock years damage will catch up.

[BillNIttles in reply to BillNIttles]

I just re-read some of the replies . Unlike some, my doctor agrees it's the meds, but what are ya gonna do? They are keeping my psa in check. We both think that it weird and funny all the things Atlanta pollen triggers in me, including hot flashes and incontinence.

[Costarica1961 in reply to BillNIttles]

Stay safe and thankyou

[jimk_mb]

Like others, I've had tinnitus for many years - 10+ or so. Most times I tend to forget about it. Early on I tried an OTC lipo flavinoid supplements. Even tried a compounded capsule recommended by the House Ear Clinic in Los Angeles. No relief with either.

The one thing that makes it worse for me is sodium intake. I had lunch from Panda Express today and it is much more pronounced. Unfortunately, most takeout food (and restaurant food) is very high in sodium. The tinnitus is always there, but like I say I usually don't seem to notice. When I do detect it, I can usually trace to a high sodium meal. I try and cook with low salt at home, but takeout or fast food is very convenient (and tasty.) Good luck.

[Costarica1961 in reply to jimk_mb]

Wow I think your onto something I never thought of that. Thankyou

[Iyana271]

Sleep with your head propped up in an elevated position. This may usually be accomplished with the use of one or two extra pillows. This lessens head congestion, and tinnitus may become less noticeable.