Gecrellin Post Was an Eye Opener...PCa is a Killer

The key to surviving this beast is to never taker your eye off the ball. My plan is to never let the PSA get above .5 and have a Choline 11 Pet Scan every 6 months. With Chemo and or Stereotatic Radiation hit this MF everytime it rears its ugly head...it has worked for me...9 years out and PSA .29...time to bring out the big guns again...scan in july and Stereotatic radiation..also eating 10 lbs of Gator meat a week on Nalakrats rec..the hard part is catching the Gator..wrestling him into submission and eating his liver raw once a month

Gus

search.proquest.com/openvie...

33 Replies

oldestnewest
  • Gus

    I think I am doomed. Looked in the Hudson River and there are no gators there. Heard there are some in the NYC sewers but they are hard to find. Good luck with your treatment, catching the gators seems like the easy part for you.

    Dick

  • Egg,

    Dr. Nalakrats has a new service KGWT (Kill Gator Will Travel)..Nal will come to your location..NYC Sewers...catch and kill the Gator for $3700 and 25 pounds of meat and the Gator liver...seems like Nal has developed a real taste for raw Gator liver..the only side effect from taking 4 ml of Gator Blood (BIRM) a day.

    Gus

  • I agree trying to keep the psa low is a great idea, unfortunately we eventually run out of treatments to beat it back and it goes up. You are doing great with a psa of .29. My most recent is 88 or so, it has been over 50 for a few years now.

    Dan

  • I can confirm what Dan59 has said about men with long term survivals and PSAs that remain relatively stable somewhere between 20 and 90 while on continued treatments. Sometimes the interplay of their immune systems, the biology of their disease and "mets", and their treatments can strike such a balance for a long time. I've met a man who has gone about 12 years in such a state, through various treatments.

    After my initial ADT had taken my PSA down from 5,006 to 1.0, eventually it started going back up, with doubling times in the 3 mo. range. After resistance had definitely set in, I was very nervous about how my PSA was climbing from around 6 into the 40s as I consulted with more than one specialist, who advised me that on the other side of resistance, the actual number for PSA was less important than what was happening in the body with scans and symptoms, and major PSA trends, taken together.

    Eventually, after some genetic testing, a PSMA PET, and some Provenge, I finally went on Xtandi around a year after resistance had started, when my PSA peaked at 94.8. Five months later it has dropped to 3.4, so far.

    Should I have started Xtandi sooner? Perhaps. Will it make an order-of-magnitude difference in my ultimate survival time and weighted quality-of-life days, considering where I started? My gut feeling is, "No." I made my decisions, when I made them, under varying conditions of considered information and uncertainties. Eating myself up with "shoulda, woulda, coulda" anxiety is not helpful, in my book. The past is what it was, and cannot be changed. "Today" is the only time I actually have to live, learn, and love.

    Charles

    P.S. Do you suppose there might be any Gators in the San Francisco Bay or Lake Tahoe willing to sacrifice themselves for some old guys with prostate cancer? I'll have to check around. Ha. Ha.

  • I agree Charles,I do not think it would have made any difference survival wise.

  • Charles, I already checked SF Bay out thoroughly & it is gator-free. Please let me know your findings when you search Tahoe. Thanks.

    Neal

  • Will do. Preliminary research only confirms Alligator Lizards along the shoreline. Would have to collect far too many to make more than a mouthful.

    flickr.com/photos/stevewlee...

    Their diet also consists mostly of land insects, as opposed to vertebrate aquatic and shoreline prey. Key chemical compounds might be missing. ;-)

    Charles

  • Pretty sure those little lizards won't do, Charles. But you made me think about what might substitute for gators. Maybe crocs? Heck, I can't remember the difference between gators & crocs for more than a day,. So I'd say if you see one of those, whichever kind it might be, it's time to attack.

    Why would the liver have to be eaten raw? I would think broiled with onions, garlic, olive oil, turmeric, salt & pepper would be much tastier & healthier, especially if you used organic ingredients & had organic broccoli & carrots in an organic spicy sauce on the side.

    Bon apetit!

    Neal

  • Gus,

    My own reasoning is that, once 'curative' treatment has failed, we are left with palliative treatments. Each treatment as monotherapy has a short mean-time-to-failure. Resistance to treatment does not begin until treatment starts. Therefore it does not make sense to rush into treatment. Chasing after a low PSA might mean becoming refractory to everything a decade or so too early.

    -Patrick

    And, by procrastinating, we escape the morbity of treatment.

  • Patrick.

    The Mayo Clinic believes in WAM (whack a mole) as long as the PCa is oligometastatic

    Gus

  • Gus,

    If the intent is curative, don't delay; if it is palliative, procrastinate. IMO

    -Patrick

  • Patrick. I agree with that, and that is why I put Lupron off for 18 years. When I saw the tumor on a CAT scan, I went on ADT.

    Rich

  • gusgold,

    My comment was directed to Patrick. I have no comment on radiation or your treatment choice.

    Rich

  • I agree. It is the basis of intemittent hormone therapy. I'd use this with any meds. If I could. After treating a reccurrence for 15 yts. Keepiing psa below 6, I'm going to extend it to 8

  • but...doesn't any rising PSA indicate that there is circulating colonies or daughter cells? And doesn't this put us at risk for mets developing anywhere the wind blows...? Goal should be undetectable yes? And...Nalakrats...how are you measuring the amount of "Circulating Tumor Cells"? Blood test?

  • Don't forget the role of abnormal (normal in PCa) coagulation factors. Nattokinase will dissolve microclots. When circulating PCa cells dock on a microclot, they become invisible to the immune system. Otherwise, circulating cells are quickly zapped.

    -Patrick

  • Having fun reading all the inputs here. My approach, is not only throwing the kitchen sink at Pca, but to attack, with H-bombs, Neutron Bombs, EMT devices, Gator Blood, and then measuring the amount of Circulating Tumor Cells, to determine if what I am doing is effective. Will be establishing a Baseline soon, even if PSA remains undetectable.

    So the things I am consuming, I am attempting the following. 1] to mess up the PH of the Pca cell, 2] to change the electrical balance of the Pca cell, 3] to eat up the outer shell of the Pca cell, 4] To chelate the metallic Ion of the Pca cell, 5] To eliminate Galactin-3--the glue that allows congregation, 6] To eliminate Hyaluronidase, the transporting vehicles for Mets. 7] Increasing blood oxygen, 8] Applying a multitude of Anti-Oxidants, 9] The ADT-5 program, against the Hormone Metabolic breakdown process, to direct how it goes 10] And any substance/supplement that has been successful in killing Pca cells in a test tube, some in nude mice.

    That is my thinking

    Nalakrats

  • Nalakrats... Are you taking l-arginine pyroglutimate lysine along with HMM for muscle wasting?

  • I am using L-Arginine, L-Ornithine L-Glutamine, L-Carnitine, and L-Tyrosine, before bed. Weight lifting--3-4 times a week --and I use Whey Protein Isolate, usually every morning with Breakfast. That is all I can do, without increasing T.

    Nalakrats

  • I read where arginine is ir should withheld if fighting prostate cancer

  • Well then I am in trouble--using it twice a day---4,000 Mg per day for a long time.

    Nalakrats

  • Nal, check this out. Is there a supplement that could duplicate these results

    Gus

    yahoo.com/beauty/breast-mil...

  • No

    Nalakrats

  • Oh by the way since this thing is a string of 123 amino acids, it is tough to synthesis, but is found in nice amounts in Whey Protein. So if you are using Whey in your program you are getting some of this protein.

    Nalakrats

  • Nal,

    look at this product

    Gus

    ecrater.com/p/26649187/600-...

  • Well I guess you can add it.

    Nalakrats

  • Nal,

    I just bought one...can't taste worse than Gator Blood

    Gus

  • Gus

    How often can you get the scan and get insurance coverage either private or Medicare to cover it?

    Bob

  • Mayo wants the scan every 6 months...before I had cryo they did 3 Choline 11 scans in a 2 month period and insurance paid the total cost....$30,000

  • Do you recommend Mayo for SBRT to bone met?

  • Check this out..an Alligator Snapping Turtle...I just bought a hatchling from a guy who sells them on line...

    Gus

    rivista-cdn.reptilesmagazin...

  • ...think wrestling with a gator is far easier to stomach than Chemo every time PSA begins to double. So...brutal.

  • Lom.

    how is the chemo administered..as a 1 time shot...an infusion...and how many times is the chemo administered in each cycle and what are the side effects

    Gus

You may also like...