Advanced Prostate Cancer
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Ahh! What a relief it is!

After three and a half years of major bladder problems, it's finally over. I hope.

I had a Uroclip procedure done on halloween day, and had the catheter removed yesterday. Just having the catheter removed was sweet relief, after 4 months. But, what was the best thing ever, I was able to stand up and pee. I woke up once to pee during the night. Little did I expect to sleep well.

So, today I sit here and I wonder how often should I have to go. I can't remember. I should also mention about my flow, its flowing. Not very strong right now, but it should improve, I think. I feel liberated. It's just an amazing feeling.

I want to give a shout out to everyone here at this site. Thank you all.

Peace, Joe (#flyeaglesfly)

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I'm not familiar with this procedure, but I still celebrate your victory. Were you having trouble standing to pee? I am incontinent from cancer treatment. I will be having an artificial urinary sphincter installed at the end of February. Then four weeks later, we'll activate it. Much anticipated!

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In my understanding of BPH, it doesn't necessarily mean a prostate that is bigger, but also a prostate that chokes off the urethra. This was my problem. Instead of having an invasive procedure, like TURP, this is non-invasive. If you consider have a long thin tool stuck down your thing, non-invasive. Well, this tool ejects these clips that pull back the prostate away from the urethra. And it works.

The original problem was the choking of the urethra, which caused a distended bladder for a couple of years, so I sat. It was quite a painful experience. Something that we should never have to deal with. Just because someone has a Phd after their name, doesn't make them smart.

I think this was directly caused by the IMRT.

Joe

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Ph dick. They are just human. Mistakes are made for sure. Patients pay. On the other hand.. Drs are why I’m here today.No easy fixes for any of us. I agree, that urological pain is brutal, no friend of mine ..Third cause of death in the U.S.A. = medical mistakes ..Keep on truckin! That all we can do..

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I believe that your procedure will go well and your quality will leap up. Good luck on this. Thank you for all of your wisdom throughout this past year ..I’ve benifitted greatly as have others from your words and knowledge. A better year for you after Feb. Happy new year.

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Joe , that's great I am so glad to hear this, I am glad you are doing well.

Dan

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sounds like a great reason to celebrate!

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I celebrate with you Joe! So happy you are happy and having less pain.

Jackie

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Congrats. I am in a mood to celebrate too. This past Monday, after 5 long weeks, I finally had my supra-pubic catheter removed after HIFU surgery. What blessed relief from the painful spasms.

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Congrats back at you. I had to chk what a sp cath was, I think it was in my future if I didn't get fixed. When I first got cathed, and drained a half gallon+, the spasms were horrendous. The female nurse in the room said this is akin to what a woman goes through with birth. On a side note, I came across this little tiny lady who had a blocked urethra. When she was cathed, they drained over a gallon of 'fluid'.

What brought on your spasms? And you had the HIFU 5 weeks ago?

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Joe, I had HIFU 5 weeks ago. That causes the prostate tissue to swell up and block the urethra. Had spasms from the get go. Later on in my recovery I could void just fine on my own. Actually a bit too fine -- I developed urge incontinence. So I went back to letting the catheter do the draining. I had terrible spasms -- I'd want to void an already empty bladder. I'm sure it was just the empty bladder being irritated by the catheter. I think the bladder was trying to expel that foreign object. There were other issues - just sitting down felt like I was impaled. It was painful to walk. The good news now is that not only is the discomfort of the catheter gone, but the urge incontinence is gone too, although I am taking a couple of meds that help with that. Also receding is the stinging pain of urination that is also typical of post HIFU surgery. Like you, I am feeling better and in a mood to celebrate. I hope you are done with bladder problems and catheters.

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I bought a foam donut to sit on, and it works nice. Before I sat with two pillows, one on each cheek. As for the pain when I urinate now...It doesn't matter, it's a good pain, for me anyway. I hope the HIFU works for you. I understand it's new for 'ablating'(?) parts of the prostate, but that's all I know.

Joe

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Harry Belafonte singing (to the tune of Day-O):

PEE-OH Pee-e-e-o midnight come and me wanna PEE-OH

thank goodness for me uroclip and me catheter must go

now Mr. Urologist me standing up and PEE-OH

only little problem is that me pressure is so so.

Congratulations and with humor and a way to go.

j-o-h-n Friday, 11/18/2016 12:06 PM EST

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Thanks, Brother.

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Simple things that others take for granted, and sometimes to us a great gift. Congratulatuons!!!!!

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Yaaahoooo!! To pee again .. what a blessing..I know what you are feeling.After having ;foley , neauphostmy tubes and or stints for a year and a half my only prayer was to pee half way normally without brutal pain..I’m there!So now every time I pee I thank god ..not kidding .I breezed pretty well thru my first 53 yrs with no diseases or malidies..We really are unaware “How wrong” our basic body functions can go until we experience it for ourselves.Congratulations, keep you heading and stay well.. Good news!

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