1. Has anyone ever had TURP surgery to help with urinating issues due to prostate cancer? If yes can you share your experience? Has anyone had grest success from it, than start having issues months after? Do you continue taking taking Flomax, if the TURP was a success?
2. Has anyone experienced nausea when on Casodex(bicalutamide) daily pill and every three month hormone therapy injection? If yes, when did the nausea start? Is the nausea throughout the day or only when eating? What did you or the Dr do to help the nausea? Is it normal to be on these ADTs for 3 months without symptoms, then all the sudden after 3 months start having nausea symptoms? FYI this nausea has not caused vomitting yet. When on these ADTs did you go to Dr for nausea treatment, but found out it wasn’t the ADTs causing this, but another issue? If yes, what was it?
3. Can you answer the same nausea questions in question #2 when it comes to monthly IV infusion of Zometa to help with bone damage caused by cancer spread to bone?
4. Any experiences with recent clinical trials that are working on you or a live one?
FYI : I posted my experience on another post if you are interested in learning about our experience so far with PC.
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1. I have had a TURP it worked well. No need for Flomax. If you do have radiation to the prostate later you may need another.
2. Casodex usually has very very few side effects. It may be the Lupron.
3. I don't have any experience with Zometa
4. I have been on 2 clinical trials, one with Zytiga and one with xtandi. I did well on both. I was each for 3 1/2 years until they stopped working. I you are looking at trials stay away from stage I. Go for Stage 2 or 3.
My turp in spring 2019 failed in 6 weeks. Then the cancer appeared in my penis, and my guess is it was dragged there from the prostate by the tool. I felt a lump in the base of the penis right after the turp operation. That area remained painful until it was treated by radiation. I had a suprapubic catheter put in which must be changed monthly, and have adjusted to living with day bags and night bags.
Life continues with 3rd year of Lupron and 6 months of Zytiga-Prednisone.
Thank you for sharing. Was the turp failer due to the cancer spread to the penis, or did it fail way before the spread? Did you get a month of ADT before the TURP? I was told that prevents the spread during TURP. Not sure how true that is.
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