Need advice for a hospital meeting an... - Advanced Prostate...

Advanced Prostate Cancer

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Need advice for a hospital meeting and how to keep my cool.

BarronS profile image
7 Replies

So if you check my post history, you can see that the hospital tried to screw up my father pretty bad. A day after stabilizing from septic shock and getting all of his numbers back up, they pull him out of the ICU and put him in the step-down unit and then take him off all antibiotic support! All antibiotic support the day after stabilizing from septic shock.....

So he gets progressively sicker over 3 days and lands back in the ICU with the same problems. He stabilized tonight but the "trauma" team called this morning and made it sound like my Dad was going to die and like they were giving up. Basically railroaded my mom into almost agreeing to pulling him off everything and taking him home.... as he is stabilizing again. So I raised hell and my Mom called back and told them she wants him to be fully resuscitated if anything happens and that we want to stay the course and not pull him.

We are going in 10:30 tomorrow for a meeting and I made sure to call the patient advocate, who will not be there tomorrow, but said that she will substitute with the Nursing Supervisor.. which i feel is even better.

But I really want to rip into them. For how they made my mom feel like just pulling everything on him and taking him off antibiotic support like morons. Then having a doctor call me and not be able to defend anything he was saying. Saying stuff like "antibiotic resistance can happen in 6 days"...... They have other antibiotics and he has SEPTIC SHOCK.

So all I want is for them to stabilize him, keep him on antibiotics, put him in the step-down unit, monitor him and continue the antibiotic course, put him in the general room, and then we will take him home. This request feels like I'm asking for the world, it's so surreal. I'm just trying to figure out how to handle this.

Any suggestions or tips?

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BarronS
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7 Replies
Sea5 profile image
Sea5

Ugh, ugh, the incredible, infuriating frustration of when the ball gets dropped at the hospital! It’s good you wrote out an account of things here...in fact, you can certainly have some notes with you at the meeting to make sure you say everything you want and need to say. You have the right to take your time, breathe, and to be as clear as you can. You want to make sure that your complaints are heard. I hope there are empathetic people at the meeting who will recognize the problems and do their darndest to not let those mistakes be repeated! I am so sorry for all that your family has had to go through!

BarronS profile image
BarronS in reply toSea5

Thank you. That's what I have to do - bring notes. I know that I'm going to get very emotional. It's insane that just standard of care is something that you have to demand sometimes.

It's just unbelievable how the "trauma" team, who shouldn't even be seeing my dad, came together today and lobbied us to kill him. My mom only went today and she was a wreak. They made her feel like she had no options. There was also this different picture that was painted of how he is compared to how his tests are and how he looks. He is no off all blood pressure support and doing better on the ventilator. He is producing urine. If they don't sedate him enough, he tries to pull the ventilator out, which is a good sign that brain activity is still strong. He was responding with nods to what my mom was saying to him today.

I'd love to go into the hospital tomorrow and just lay a fist into the face of the doctor I talked to today, but I don't want to go to jail - which is really the only reason I wouldn't do it. I have absolutely no ethical concerns over it.

But taking him off the antibiotic support right after stabilizing from septic shock is malpractice in my opinion.

Pierreb profile image
Pierreb

I’m so sorry to hear about this. My dads in the hospital now for something hopefully minor and they’ve screwed up a few times (missing drugs, chart info wrong, etc). Makes you wonder. Your dads lucky he has you and your mom fighting him. Sounds like you are on top of this. Good luck tomorrow and I wish you and your family the best tomorrow. Hoping the next update will bring better news.

Tall_Allen profile image
Tall_Allen

Have you ever seen the Paddy Cheyevsky movie The Hospital? It's about how a murderer uses a hospital's incompetance to commit multiple murders. Maybe the Trauma team should be forced to watch it.

in reply toTall_Allen

😂

???? Wow! Unbelievable if we didn’t know already that many errors can be made .?

j-o-h-n profile image
j-o-h-n

*** RERUN OF MY 02/04/2020 POST ***

Would you tell us your father's age and what is the name and where is the hospital? Move him to a new hospital asap. If you can't move him then demand to see the CEO NOW if not sooner. Speak LOUD in the hospital. Make scenes.... If it were me I would roll on the floor as I was screaming for my father's health. I can really be a pain in the ass (ask my first wife)....

You should have seen me in Sears paint section one time.... LOL

Don't be shy.... The squeaky wheel get the oil....

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 02/04/2020 8:43 PM EST

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 02/08/2020 11:37 AM EST

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