Right to Try Law: Has anyone on the... - Advanced Prostate...

Advanced Prostate Cancer

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Right to Try Law

15 Replies

Has anyone on the forum been able to take advantage of the so-called "right to try" law in the United States?

If you have, please share your story with the details. Thanks!

15 Replies
Fuzzman77 profile image
Fuzzman77

Crickets

Fairwind profile image
Fairwind

This law sounds good but in practice it's almost impossible to get satisfaction under it.. You must be terminal to be eligible.. So all the drugs supplier (there is usually only one supplier) has to do is drag his feet until you give up or pass away.. Or set a price that very few people can meet..People dream the supplier will just send them a bottle of pills with a note "Here you go, good luck" but that's not how these things work..

in reply to Fairwind

You are probably better off trying to go outside the US and see if it's available in another country, like LU-177. You will have to pay for it out of pocket anyway. Drugs are often available in other countries first since the FDA approval process is fairly slow. I'm not saying I don't approve of the process with clinical trials, etc. but if I am dying, I don't care much about risks.

It's easy to think about right to try being used for some experimental, long-shot option. Every drug that is eventually approved was once only available through clinical trial. I've been on Zytiga right now for over a year, but at one time the only way I could have got it was on a clinical trial.

j-o-h-n profile image
j-o-h-n in reply to

Right to die laws.... better...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/02/2019 12:01 PM DST

in reply to j-o-h-n

I think it should be a "right to do" law because...

youtube.com/watch?v=h5SNAlu...

j-o-h-n profile image
j-o-h-n in reply to

getyarn.io/yarn-clip/30490f...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/02/2019 1:20 PM DST

monte1111 profile image
monte1111 in reply to j-o-h-n

Blazing Saddles and Airplane! Who's got the popcorn? Wait a minute. I forgot Animal House.

j-o-h-n profile image
j-o-h-n in reply to monte1111

Look around you're in it.................

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 11/03/2019 6:15 PM EST

Fairwind profile image
Fairwind in reply to j-o-h-n

Right to die laws are almost as bad. By the time you manage to get that little bottle of pills, lots of hoops to jump through, you will die from your cancer with hospice orchestrating it..Takes about 7 days, depending..

in reply to Fairwind

I plan to start to work on getting my little bottle of pills the day I qualify. In California, it's 6 months from death. It does take time so you have to start before you really need it. You don't have to take it so it's better to have it and not need it than to need it and not have it.

ctarleton profile image
ctarleton in reply to

"One pill makes you larger, and one pill makes you small

And the ones that mother gives you, don't do anything at all..."

Grace Slick, Jefferson Airplane - "White Rabbit", 1967

in reply to ctarleton

Feed your head.

Yes, we've been wondering about him too.

No, I've only just read his postings here.

monte1111 profile image
monte1111

Right to try, right to die. How about right to live. I hope Gusgold is doing well. Miss the pictures.

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