Going to try to live a little before moving on.

[M1Mike]

Went to the oncologist monday, psa was 3.4 after being 2.2 7 weeks ago and 1 the first week of January. I have been off treatments since oct 2018, I was on for 13 months when my psa went from 179.5 to undetectable. Since October I have lost 25 # and got myself into pretty good shape after my body being ravaged over the 13 months of adt. My scan in january was much improved. He suggested I go on casodex, but you know, I'm just not ready to go there again just yet. My quality of life right now is the best it's been for 2 years. I feel great! Told the Doc I'll see you in august, appointment is for the 26th. Hoping to have a nice summer! 62 yo, 3 bone mets and 1 lympth.

[Magnus1964]

Your PSA is still low so it sounds like a plan. Don't fear casodex, it's milder compared to other ADT drugs. Have a great Summer.

[CantChoose]

My husband had no side effects at all from Casodex alone. Have a great summer, whatever you choose!

[M1Mike]

Thanks!

[NPfisherman]

Not sure why you don't do the stereotactic radiation trials at UPMC for oligometastatic disease.....less than 5 mets.....it could drive your PSA back down near or to undetectable perhaps, and give you a year or two more off ADT....Something to think about.....Dr Burton and Dr Heron are doing the trial.....get treated for free and help the medical community gain knowledge...

Fish

[jfoesq in reply to NPfisherman]

Could you provide me info about Drs. Burton and Heron? Their trial may be of interest to me, but I don't know who they are or where they are located.

Thx

[pilot52]

Casodex is a walk in the park......no make it a run in the park!

[preciousbz1]

Good for you Mike, enjoy the summer and life without ADT for awhile..

[jfoesq]

FYI- I was diagnosed with metastatic PC 7 years ago at age 54. For the first 6 yrs of my treatment for metastatic PC, my doc had me on Luporn INTERMITTENTLY. (I also had my prostate and a bunch of lymph nodes removed at his suggestion.) He would check my PSA every 3 months and scan me frequently also. He did NOT re-start the Lupron as soon as my PSA started to rise from undetectable. He used his judgment and waited as my PSA went from undetectable to detectable and eventually when he went up to about 4 or so, he put me back on the Lupron. We did this 3 times I believe and I went the first time for about 20 months before he re-started me on the Luporn. The following 2 occasions, I was off the Lupron for shorter periods of time (maybe 12 months and 6 months- hard to remember).He stopped seeing patients, including me, over a yer ago, and my new doc has me on Lupron continuously now.

I am not making any recommendations to you or others, I am just providing you my personal experience.

[Rocketman1960 in reply to jfoesq]

I followed a very similar path. Lupron full time after PSA wouldn't drop. Then SBRT giving me 9 months more followed by Lupron with Xtandi. PSA now nil again.

[j-o-h-n]

Casodex is as easy as trying on a bra.... Enjoy the summer...

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 06/09/2019 10:18 PM DST

[Hidden in reply to j-o-h-n]

What are you an A cup?

[j-o-h-n in reply to Hidden]

No just "mshuge in di kop"....

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 06/10/2019 1:03 PM DST

[Hidden]

Live longer . Get on the casodex . Why give pc a break? You’re doing well . Continue to push it away .

[Ptclassics]

Mike listen to me casodex is a snap lhave had PC 23 years 8 Mestatic keep fighting I am back on Extandi works a little talking about another round of chemo guess whT I don't plan to leave soon. Life is no great but I am still here.I have tried every treatment with very little success but keep fighting