Who to see in Southern CA for PCA

[Kimmilemo]

Hi we’re going to see our daughter in LA in July. Thought it wouldn’t hurt for my husband to get a third opinion.

He just has a new urostomey from all the damage from

SP, he’s second time DX, he did have undetectable about second month after surgery but has went up a tad but continues to complain about hip and rib pain.

His is aggressive and even though his psa is low , I don’t trust that it’s not lurking somewhere.

Thank you

Caretaker and Wife

Kim

[Tall_Allen]

Kim-

What kind of a doctor are you looking for - a urologist who can fix the damage caused by the salvage prostatectomy? or a medical oncologist who can prescribe medicines to slow progression?

[Kimmilemo in reply to Tall_Allen]

Oncologist ,

He has the permanent urostomey (ostomey) now , they did that in April,so I think that’s as good as it’s going to get to fix all the damage from the SP, he went through hell until he got that .

[Tall_Allen in reply to Kimmilemo]

I like Tanya Dorff at COH.

[Kimmilemo in reply to Tall_Allen]

Ty

[tango65]

prostateoncology.com/prosta...

cityofhope.org/tanya-dorff

[Kimmilemo in reply to tango65]

Ty, hopefully marina del Ray is better than St. John’s hospital. My daughter has crohns that lives in LA and we had a horrible experience with St. John’s, it did finally end up well but it was hell until then. I guess a lot has to do with who your dr is, she went trough the emergency room and got a ambulance chaser. Lol

[tango65 in reply to Kimmilemo]

Both are good oncologists specialized in prostate cancer,

[middlejoel in reply to tango65]

I concur with the recommendations so far, in fact they are my two MO's and I see them both regularly. Prostate Oncologist has three docs, all with an excellent reputation, I have seen Scholz and Turner, they might be easier to get an appointment than Dr. Dorf who is usually very busy..

[Schwah]

I also see the doctors at Prostate oncology. They are awesome. I also see Dr Drakaki at ucla. She too is incredible! None of these doctors make you feel rushed or stupid for your questions. It may be hard to get an appointment at Prostate oncology on such short notice but they do allow (paid) phone consults for out of town patients.

Schwah

[Sxrxrnr1 in reply to Schwah]

At 150 dollars per 10 minutes. Plus additional charge of 75 dollars to enter Dr,’s notes in computer system.

Good news, as PCa specialists, likely as good as it gets.

[LeeLiam]

If I have a recurrence, I will be making the trip across the country to LA to see Dr. Bob at compassionateoncology.org/a... .

[Schwah in reply to LeeLiam]

I’m not sure dr Bob is as good as he thinks he is and as he claims to be. I’d be careful.

Schwah