Hi my name is Kim and I live in theUK, my husband was diagnosed in Aug 2018 with APC G9, 2 mets to the spine and one to the pelvic floor. also one lymph node (nearby) involved.We are lucky enough to be able to use the NHS here, which we are very grateful for. My husbandwho is 62yrs has had 6 Docetaxel sessions, with Prednisolone 5mg, every day. He also started Prostap 3 straight away and has this every 3 months. The Prednisolne tablets have finished today, and we are due to see the oncologist on Monday 25th March, to see how his treatment has gone.
I ive been reading on this site for a few weeks, but this is the first time I have written anything.
My question is I have read a lot about treatment in Munich with Lu177. But it is only suitable for men with PSMA positive? What is PSMA, also would our oncologist know the answer to that question, or would we need a scan ( already had CAT scan and MRI scan before his treatment started back in Aug)
Also at what stage should we consider this treatment, is it when the hormone therapy (prostrape 3) Lupron, stops responding, ie his PSA starts to raise ? . As you can see, we know very little about APC, but trying to learn from this website I stumbled across. You all seem very knowlegable and would appreciate any info you can give to us at this VERY scary time Although our oncologist is OK hes not very forthcoming with any information, so ive been scanning the internet for answers(Don't know if that's a good thing!) As mentioned before we are using the NHS consultants and treatment at the moment.
Thankyou for taking the time to read this post