And so it begins......: Hi. Diagnosed... - Advanced Prostate...

Advanced Prostate Cancer

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And so it begins......

MarkYorkshire profile image
16 Replies

Hi. Diagnosed in August 2018. Age 64. See details in my profile. Started Bicalutamide 1st Sept. Now on Prostap 3 (ADT). Sadly our daughter passed away unexpectedly in October. This was a devastating shock following on so soon after my diagnosis. This has affected us both massively and I think the hormone treatment has exacerbated my reaction. I suppose we will eventually come to terms with the loss of our daughter and then we will get on with dealing with my cancer.

Started 7 weeks of Radiotherapy on 12th Nov. Both surgeon and radiologist have said that the affected node is difficult to treat due to its proximity to the rectum. PSA is now 0.25 and T is 0.6. Waiting to see how things look after the radiotherapy. Being treated in Leeds NHS which appears to be a well resourced and on the ball centre.

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MarkYorkshire
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16 Replies
Dayatatime profile image
Dayatatime

I can't even begin to imagine what you are going through. The shock of a cancer diagnosis and losing a child. Having 3 daughters of my own my heart goes out to you.

You came to a great place for advice and there are some very experienced men to share their knowledge. Your strong my friend and wishing you well in your treatment path.

Ron

PartnerRoger profile image
PartnerRoger in reply toDayatatime

My thoughts and prayers are with you.

NPfisherman profile image
NPfisherman

Like you...I am new to the fight....exercise---release of endorphins helps my mood and my fight... some days though....yeah, it's hard...Good luck and keep fighting...may your cancer remain Castration sensitive for many years

Take care,

Dave

Tub111 profile image
Tub111

My heart is so heavy for your loss. No words. And at the same time as diagnosis...you are in our prayers. Wish you improvement during your treatment and hope you and your family find comfort during this season.

Enjoy and embrace the memories of your daughter and keep those through this Christmas and treatment. 🙏

Sheri (wife, caregiver, cheerleader)

Tall_Allen profile image
Tall_Allen

I'm so sorry to hear about your loss. That's something one doesn't get over, and I'm sure the emotional volatility from the ADT makes the grief more intense.

Yes, treating cancer that may have penetrated the rectal wall is challenging. Are they treating the rest of the pelvic lymph nodes as well? Let us know how it goes.

Emmett50 profile image
Emmett50

I’m so sorry that you lost your daughter. May you and your wife find peace in the midst of your grief - not to mention the fear and grief of your diagnosis. There are many remarkable and helpful men on this site. If you share whatever it is that’s happening with treatment or how you’re feeling, there will be people who will share their experiences and what they’ve learned. This site is a place of hope and kindness. May you find that for yourself here! My thoughts and prayers are with you and your loved ones.

- Mary

riichardd profile image
riichardd

I am so sorry to hear of your loss and diagnosis your life must be in turmoil.

I was diagnosed early this year with an aggressive form of PC and I'm currently being treated by the NHS at York District hospital. After doing some research and reading posts on this forum Iv'e decided to go down the route of trying to find a durable remission by using whatever treatment, drug or supplement is available out there to enhance the current standard of care given by the NHS . Please feel free to contact me if you feel like talking to someone "local" in a similar position to yourself.

I wish you all the best and the strength to cope with all that lay before you.

Richard

podsart profile image
podsart

So sorry for your loss and the terrible emotional toll it plus the Pca is taking

When my brother died at a young age, after years of continual suffering, my mother said ( on the way back from the funeral) , that this loss - of a child- was worse than the loss at a relatively young age of my father as well as the loss of almost all of her family during her experience in the Holocaust.

My previous onc said my Pca status was connected to stress levels and insisted on my taking meditation course , also take antidepressants, anti anxiety meds, go to therapy and also hypnotherapy in an attempt to lower the stresses

Wishing you the best of luck and will pray for success for you

Lyubov profile image
Lyubov

So deeply sorry for the devastating loss of your daughter on top of your PCa. My heart truly goes out to you & your wife. Continue to stay close to the people on this site as they will provide support as well as helpful information. Blessings!

monte1111 profile image
monte1111

Sorry. I cannot help you with your cancer issue. I was 62 when I opened the door and the coroner was standing there. Daughter killed by wrong way driver. (He was given 13 years, already out after 5 years, I wish him well.) Wife had weight reduction surgery right before this happened which did not go well and she died 2 years later from the one, two punch. Death certificate said heart attack, but it was really a broken heart. It takes a long time to get over the worse of it. Get professional help if you think you need it. I don't recommend depression drugs, but admit I sat out in the back yard on my lawn chair and Dr. Budweiser was a constant companion. A lot of this time was spent trying to figure out the future of my granddaughter. And we succeeded splendidly. (90% credit to her stepfather and family, 10% to me and wife.) Please celebrate her life. And now focus on your own, others depend on you and you depend on others. Good luck my friend.

Tub111 profile image
Tub111 in reply tomonte1111

Monte1111.... I cannot imagine...god bless you and yours and the wonderful message you send MarkYorkshire. You have a beautiful heart and prayers to your journey.

Sheri (wife, caregiver, cheerleader)

pakb profile image
pakb

I am so sorry for your loss. Cannot imagine the feelings and roller coaster you have been on. You have come to the right place for advice and support❤

strummer profile image
strummer

So sorry for the loss of your precious daughter. You will find a lot of info and support from this group. My husband was diagnosed last month. Take care

j-o-h-n profile image
j-o-h-n

WOW!..........

j-o-h-n Tuesday 12/18/2018 9:51 PM EST

Northcaptain profile image
Northcaptain

Bring me tears just to imagine the terrible events you had to go through. Hope some peace will permeate in your life now that your child is in heaven helping you.

best of all

Oh dear sir. I just looked back on your post. Im

Sorry about your daughter., now APC ., whoa nelly..

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