We have not posted until now, but have gained immeasurable knowledge from this site.
Eric was diagnosed 12/19/2017 (Merry Christmas). His PSA was over 1800, alkaline phos was really high, mets to bones and lymph nodes. He started chemo (taxotere) a few days later, with Lupron shots monthly. Four rounds of chemo later, he started Zytiga and prednisone.
As he was going through chemo, his legs/feet started swelling and aching. He started to elevate his legs at night, and used compression socks. After chemo ended, he was feeling pretty good, started exercising, and even got out on the gold course.
As his legs continued to bother him, he added Lyrica to the drug regime. He also had some spot radiation on one leg. Neither of these seemed to help.
Ten months into this journey, his cancer numbers are EXCELLENT. PSA and testosterone barely detectable, alka phos within normal range. His most recent MRI showed a decrease in the lymph problems. All good.
However, his legs have gotten so bad that he can barely walk. He's using a cane, and finds it very difficult to set / stand. He's doing aqua therapy 1-2 times a week for the last 2 months so still trying to keep active. We tried going off prednisone and this does not seem to help. Had ultrasound on legs - did not show deep vein thrombosis. Had ultrasould on heart - did not show any problems.
We are running out of options and possible answers.
Has anyone else experienced this? Any remedies?