I am trying to determine the longest period of time members of this forum currently on Zytiga have taken it.
I am approaching one year and it remains effective, however I am told it at some point discontinues it effectiveness.
Thankful as PSA remains down on this drug.
Since no one else has replied yet...
I passed the one-year mark with Zytiga this week.
My next PSA test is next week. It will be a real nail-biter.
Everybody is different. Hope yours keeps working too.
Count me in for 2 years and 2 months to date. Effectiveness via PSA shows 7.8 month 1, 5.8 month 2 and 0.03 to 0.05 for 20 months now 0.06 and 0.07 rising. Next result Monday 27th September. Great results but now blitzed by variety of bone tumours, final scans 17 Sept. Such a shame that the most beautiful colours on nuclear bone scans are the tumours! Had 20 tumours when dxd but chemo wiped them out. Many old ones returned and brought their mates to play!
I am off Zytiga now it worked for 3 1/2 year for me. Currently on Xtandi (2 1/2 years).
So far you are the longest on Zytiga.
My reason for asking is the cost of the drug is killing me!
Did your Doctor check out The Patient Access Network for you. They can help with the cost if you qualify, ie. income. You will need a copy of your latest 1040 tax form.
Yes
We cannot get help because my wife still works and we are over income limits for all assistance.
Have you check different drug stores? Independent drug stores are cheaper than the chain drug store. Unless you are limited buy insurance as to where you can go. You might ever consider a Canadian source, but be careful.
Go on the American Cancer Society websites they have links to Cancer advocate groups to help with the costs.
Been there done that!
Apparently if you are retired it does not matter.
Everyone in household has to be retired .
There is an income limit to get assistance and it goes by household income.
We are currently 6000-10,000 a year depending on Medicare and supplemental policy coverage and when “donut hole” kicks in, etc.
Never saw this coming!
I have heard that when cost is an issue some MOs are allowing patients to try the one tablet with a light breakfast regimen that showed some promise in a study at the University of Chicago.
If you are still in need of Zytiga, I have four bottles with a use by date of 08/2020 that I will sell you at a greatly reduced price. I also have a good supply of prednisone to go with the Zytiga. You can contact me at 501-416-6158 or on this site.
I have been off Zytiga since November- and actually have a 500.00 bottle (co pay when not in Medicare donut hole) on my shelf.
Currently on Xtandi-
Zytiga failed in less than a year.
18 months so far, still working.
This month a year ago I started with Zytiga. At this time, the PSA remains stable at 0.17. Next week I have control and hope that everything stays the same.
7 months PSA undetectable
I have a friend in Arizona that has been on Zytiga, Prednisone, Lupron for 4 years now. Before going on Zytiga he was going on a trip to Italy. He was told to enjoy it as this would be his last trip he was going to be able to take. Upon return he was put on Zytiga and is getting around real well.
I started Zytiga, lupron , prednisone on Feb 2nd. My wife and I took a ten day trip to Italy three months later. I got winded a few times but it was do able.
I was at the PCRI annual convention last week, and spoke to several people who have been on Zytiga for the past 3+ years. I just started 2 months ago, and hope it will last for several years to come. So far so good.
I have been on Zytiga over seven years with minor side effects and PSA is still undetectable.
Hi I have been in Zytiga for 15 months with an undetectable PSA. I’m hoping it lasts for many years👍
2 years plus. l read somewhere 18 months is average.
Dad's MO said you can expect it to work for 1 year on average but it ranges between 6 months to 6 years! And of course there are some rare cases where it's still effective after 6 years! He is currently in his 4th month with it and doing well, no side effects except occasional hot flashes and slight fatigue.
On Zytiga since March 2018. First month was augmented by 1-month depot of Firmagon. T has stayed at <2, and PSA last 3 months has stayed at 0.1
Second subject is cost. It would have been hard if I did not get help from by PAN copay. I had considered getting AA from pharmacy(s) in India as they cost less than $500 per month. Fortunately I haven’t had to go that route (yet).
Been on Zytiga for 4 years now, it lowered my PSA to undetectable for the past 3 years and 10 months. I think Todd in Washington is on his 58th month (almost 5 years) of undetectable on Zytiga
That is very encouraging! Thank you for posting.
Could not see your DX?
What stage were you diagnosed, Gleason score, and how many years ago?
I think I am in for Zytiga a lot longer than the year I have been on it!
Has anyone come across any research that explains why Zytiga can remain effective for 7 years for one person but only 1 year for another?
I suggest you contact Janssen Pharmaceuticals, the maker of Zytiga.
Just been taken off Zytiga, worked for 9 months.
Curious....
What was the criteria for taking you off?
I too had same Gleason and same Mets.
I had a very slow decreasing PSA. Started at 68, currently 24. The decline was generally constant but nothing like the usual drop you see men having. I also still have active Mets which showed up on a number of WBMRI's I had over a period of two months.
Just approaching 7 years on Zytiga since dx. PSA@ dx 571, currently immeasurable. Free in the U.K.
what if I stop taking Zytiga?
post radiation. Currently on ADT. PSA slight increase ?
Options after Zytiga-IGRT
Zytiga??
