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Advanced Prostate Cancer
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Show you my psa if you show me yours.... :P

Look Mom, No prostate, but still have a psa......"really, come on man"???

Retesting, but looks like hormones, bone shots, radiation, and a bra from there.

Whiskey Tango Foxtrot! Sorry, venting....

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good luck...life really IS like a box of chocolates...just some of the chocolates are Godiva Truffles and some are rotten Schraffts. Hoping for Truffles for you...for a long time.

John

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Thanks man, the fight continues.. :) "Never give up, Never give in"!

I never saw a wild thing sorry for itself. A small bird will drop frozen dead from a bough without ever having felt sorry for itself.

-D. H. Lawrence

I'm just P/O'ed lol.... I'm ready for the fight though!! Hooyah, bring it!

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Sorrow , like guilt, are human conditions.I just saw a video of a seal on a small slice of ice getting rangled into the jaws and taken down by the tail by a pac of orcas..The camera caught that look on the seals face.. They take him down by the tail until he drowns. The look in his eyes showed his fate .As one orca pulled him into the deep...felt sorry for him.. nature is cold and precise..our job is to stay on that ice flow and out of the jaws for as long as we can . We are fighting for our manhood and our lifes. My first two years were a nightmare . It was like a bad carnival ride that I couldn’t get off. APC is an assault on all our senses ..none sparred.. you can adjust ..sorry for your PSA ,that sucks, some mercy would be nice in that dept.. peace in your thinking.. stay on the ice!

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Vent on ! There’s no guide book to walk us thru the mess. What is your PSA now? I still think things will get better . But you are correct to realize that this is an ongoing affair with APC.

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A bra ? start baking chocolate chip cookies and wearing a moo -moo. We’ve got to go with the flow.If ya can’t beat em join em. I love woman just never thought that I’d become one. A new way of life brother. I still have some form

Of a prostate.. no balls, but luckily no PSA. Still we all Await a restart of the beast . You are in the early innings of the game with our friend. So am I , with 3&1/2 yrs in . My hope for you is with a little more time you’ll see improvement. Are you riding that bike at all?

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Here and there, not like I normally ride. Not as much. I'm busy tearing up at movies that used to make me laugh....lol.

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I cry whenever I see painful or emotionally pulling events

for others. Our feminine side, compassion for others , ain’t such a bad quality to have. It is a strenght. I cry at bull on TV. Of course it’s their intent , but I cry like a baby just watching some of the heart wrenching back stories on American idol..like the woman sole survivor of a childhood commercial aircraft accident. Singing like an angel with a difiguered face and body from being badly burned in front of millions of people. That’s a triumphant spirit ... one thing that we all share= suffering , in that way are all human and alike. I wouldn’t kid you!

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Yeah, it's like my compassion meter is broke and off the charts...lol. Don't get me wrong, I like to think I was compassionate before, but this.....this is a whole knew degree of compassion. In an odd way, I kind of like it. It lets me know I'm still human.

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You just made me tear up on the subway.

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Geez Rusty, I tear up every time I ride the NYC subway...

Good Luck and Good Health.

j-o-h-n Friday 09/07/2018 6:45 PM EDT

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Boston, actually. I haven't been on the NYC subway since they stopped using tokens.

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I agree!

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to YouGottaBeF.N.KiddingMe Movies that made you laugh? That's weird, cause I laugh when I stare at my living room wall paper.

Good Luck and Good Health.

Friday 09/07/2018 6:42 PM EDT

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That’s easy to please.

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I haven't started wearing the "moo-moo" or a bra yet; however, I am 'baking up a storm'! Chocolate chip cookies, kolaches, banana bread, sour cream pound cake, pistachio cheesecake, brownies, etc. Go figure!

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ronron wanna trade recipes for sour cream pound cake (better if it's made with buttermilk) and cheese cake (craig claiborne)? Probably can be found using google.

Good Luck and Good Health.

j-o-h-n Friday 09/07/2018 6:50 PM EDT

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Wish we were neighbors.

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I would enjoy that! We could watch 'General Hospital' and 'Days of our lives' while sharing recipes and baking expertise🍪! I assume that you live in AZ since your profile pic is a Saguaro🌵...my favorite cactus. My little (20 year old) 6" tall Saguaro still hasn't done anything since I brought her to Thailand a year ago. She apparently doesn't fancy the ocean climate and a meter of annual rainfall. Even if becoming neighbors is not ever so feasible, perhaps we can meet and 'hang-out' together during my next stateside visit or your next 'road trip' to Thailand 🚗. Regarding your statement, "No balls, but luckily no PSA."...Don't feel bad; I still have them (however, they're just useless weight on the drag strip) and unfortunately still have a PSA! Cheers, Ron

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to LuLu700....moo-moos hmmm. I'll trade you my lululemon baby blue yoga two piece outfit (hardly used) for one of your LuLu700 moo-moos. Sorry for the lulus but sometimes I can't control my stuttering stuttering.

Good Luck and Good Health.

j-o-h-n Friday 09/07/2018 6:34 PM EDT

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I’ve got to get me some of those Lulu pants with a draw string waist . I’m going for comfort. Can’t stand any belt or elastic across the abdominal area. Baby blue is my color. It’s a deal

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I'm developing a nice set of man boobs since I've started on the estradiol gel which may not be such a bad thing in a country that's famous for beautiful 'ladyboys'. The only problem is that I seriously doubt that there is much of a demand for a 75 year old tranny!

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LOLOL too funny...... Yeah, the man boobs are coming my way. Do they look like bigger pecs or do they really looking like boobs? Yeah, I'm worried.

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If you spend the rest of your life laying on your back, they're barely noticeable.

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to adlerman Lying on my stomach works for me.

Good Luck and Good Health.

J-o-h-n Friday 09/07/2018 6:54 PM EDT

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Hahaha!

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I do an exercise to build up my pecs in hopes of disguising my boobies. I lie on a bench on my back and with arms extended bring dumbbells up; it is called 'the fly'. Some people think bench presses do it but they are mostly shoulders and only the very top of the pecs. Good luck. Tall Allen has mentioned that Tamoxifen can be used to prevent gynecomastia. I wish I knew that prior to my ADT treatment -- I didn't get to take tamoxifen.

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Dumbbell flys!

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As 'WSOPeddie' just mentioned, decent pecs may help disguise the boobies somewhat; however, I have been weight training most of my life and those 'adipose little puppies' are becoming a bit obvious on my pecs. The temp in my Thai condo averages ~83º so I never wear a shirt, and when my buddies come over, we all laugh about how cute they're getting, but it's all in jest. No one ever makes fun of them in a way that would make me feel bad. When I go to the gym they are not very noticeable under a loose fitting tank top...same as with the short sleeve button shirts that I always wear when I go out. A small price to pay if hormones buy us some extra time. Since I'm beginning to 'mature', I have become more cognizant of guys that appear to have gynecomastia to a greater extent than I, and they are probably not dealing with PCa. Not to "worry"...if we ever figure out how we can easily post photos on this forum, we might consider starting a 'Beautiful Boobie Pageant'!

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It’s like a little squishy sac around my nipples and it does not really feel good. 3yrs of adt . So far not very noticeable except to self.

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Don’t worry about the boobs ... or anything else until or if it happens ..

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Worth a try!

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YGBKM

Had the same disappointing results five years ago following radical prostatectomy and 40 days of radiation therapy. ADT after that kept psa undetectable. PSA now on the rise again so it’s on to round two of the fight. The message is don’t give up. Yes your life is changing and you will be sympathetic with menopausal women but considering the alternative, worth the fight.

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I'm ready to fight. I'm not looking forward to the incontinence and possible loss of control on the back side. That really scares me. I don't want to be "THAT GUY" who poops himself at the grocery store. I'm about to go through exactly what you went through. They took the dang thing out, along with the lymph nodes. I really thought this was going to be a one shot, get it out, done. Boy was I wrong. Here we go :)

I'm going to smack the shit out of APC with my man boobs if I have to. I'm going to beat this thing :P

My concern is that they were kind of freaking out about my Gleason score and talking about "very aggressive". Ok, well it's still there. My doc is going on vacation next week, but I guess I'll start the hormones then. Fun......

He said I could push the radiation out a few month if I wanted to, but if it's as aggressive as they're talking about. I would rather get the radiation asap. I know it's going to suck, but it's a weapon in my arsenal. I want to use it along with the hormones at the same time.

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My doc had me doing kagel (probably

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Probably spelled wrong) before radiation. Gains better control of incontinance.

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Yeah, i have to figure out and do them as well. I'm not really sure how to do them. I know it's "when you cut off your stream", but doing with out "the stream" is kind of odd. I'll figure it out....lol.

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It is kegel. Of course there are YouTube videos for that!

youtube.com/results?search_...

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That's the situation we all dread and too many of us are confronted with. We get treatment and our hopes are up, thinking we've beaten this thing. Then our hopes are dashed when we have to resume the fight. Good luck and keep fighting.

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Once Aggressive it requires an agressive response..ASAP , don’t predict bad things for your self.. You might just do better than you think.I awaited my urologist to return from spring break with his kids in order to give me a biopsy.They stalled me for 6weeks and I ended up in in ICU for a week to emerge with bi lateral tubes and a foley for a year and a half . I wouldn’t hesitate ..

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I agree on watching cancer treated both ways my mom had a different cancer but first postponed radiation then chemo then was only allowed mild chemo, then those options were taken. My dad went in aggressive and started treatment asap and it's over 2cyeatsxlater. Its upsetting no mets reduced but they all stayed stable, so I know this road comes with unexpected turns, but I believe waiting on doctor vacations is a waste, and big pharma seems to create a shitload of doctor vacations, so I wouldn't wait for my doc to come home with Mickey mouse ears and a souvenir lol look into targeted radiation and more and more posts and studies seem to be pointing to combination therapies. Use your arsenal, listen to your body, and rock on !!!

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You’ve got to !

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I’m betting that your initial reaction to your PCa diagnosis is much the same as every man in here who has received the same shocking bad news, but from what you wrote you are already dealing with it with a sense of humor and a deep determination to fight the beast with every weapon you’ve got available to you, and there are many.

You’re in a group here who have all been where you are, and are riding the same train as we learn how best to deal with the monster inside us. The word “compassion” was used in a few posts. I have learned to have tons of it for all of the brothers in here.

Venting is good in whatever way we choose to do it, short of becoming a mass murderer. 😎. It’s one of the phases of coping with the rotten hand we’ve been dealt for no apparent reason. With some cancers there is an external causative source (like smoking for lung cancer). Not so for prostate cancer. It strikes at random, and the aggressiveness of it when diagnosed makes no sense to us. I was a Stage 4 with bone metastasis at diagnosis even though my PSA was fairly low (4.65), and other than multiple pee trips at night, I was totally asymptomatic. Go figure. After the initial fear, anger, venting period, which was brief, I turned it around (like you) and braced myself for the battle.

I don’t like that it’s there. I didn’t do anything to put it there. But it’s still there and I can’t change that. The only thing I can change is how I choose to fight it.

The New Reality...Not sure from what you posted what your Stage is, but it sounds like you had RP. If the cancer does not have distant metastasis it may still be curable. If it has metastasized to the bones or visceral organs it’s not curable, but it is treatable for many years. Just be ready to accept a new reality. If you go on ADT you will likely get hot flashes, lose muscle mass and body hair, have emotional changes, and you’ll likely get “moobs” to some degree. But it sure beats the alternative, and you can still have (relatively speaking) a pretty good quality of life. (I golfed Wednesday. I’m golfing today.). The other word I see in here a lot is “attitude.” Our attitude and outlook makes a difference in the progression and outcome.

As far as the PSA, even without a prostate gland, the adrenal glands still produce some PSA, and the prostate cancer cells themselves can produce PSA. Our job is to kill what we can, and keep the others in check.

You’ll be fine. Saying that every day is a gift is not just a trite, stupid cliche for those of us in here. It’s a way of life.

Best wishes to you for success in your treatments (and moobs so minimal you won’t even need a training bra). 😎

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Thank you, great post.

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How high is your PSA? Looks like you are in the same situation I was 20 years ago. Hope the radiation works for you.

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That's kind of the thing, they're not sure, so they're testing again. The first one said below 2, but it seems like there's different scales. I see people talking about a psa of 1000, and that doesn't fit the scales they're giving me. The scoring has to be different, or I'm just not aware. Below 2 doesn't sound like much, but they already took my prostate and lymph nodes, so there shouldn't be any score. When I got scanned in April, it wasn't in the bone, which is great. My doc is telling me the cancer is still there and he's drawling pictures and telling me the cancer is "outside the border". I get what he's saying, but not sure what border he's talking about. It's hard, my wife usually goes with me and is a second set of ears, but she couldn't come this time, because she had a docs appointment herself. When he told me I still had it, it was hard to truly comprehend what he was saying and the treatment. I was still in shock of the crap still being there. I was really hoping it would be gone. Yeah, when they tell you this crap, you go into a kind of shell shock for a few moments, and that's really not the time to lay out the plan. Perhaps he should have given me a few hours and a few beers...lol. I now understand what I have to do. If it is under 2, then I'm pretty sure I can wrap it up at some point. "Beat it", but we'll see. They did another blood draw at the docs office and they're going to check it there as opposed to the lab. I guess they're not trusting the lab who did the test, or understanding their classification. The problem is that I was a Gleason of 8 and the cancer was "very aggressive" as per the doc, so it there, outside the border of the prostate zone, but not in the bone. Perhaps radiation will knock it out? We shall see. :)

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You think alright let’s do this surgery that might take my ability to stand tall away, it’s worth that risk certainly to get the cancer out of your body. But then after surgery it’s like what’s behind door number two? It’s radiation and hormone treatment Johnny and your thinking wait a minute, you said...well no question they can’t know everything until they get under the hood. I know the radiation is usually later so you can first heal inside and that is a gift. The hormone treatment, well I can tell that Nordstrom and their shoe department is my favorite hangout now. And the romantic comedies or romcoms for us insiders have replaced Rambo. Heck I even found myself saying to my wife, gosh honey that steak looks so big why don’t we split that and a salad. The new man, welcome to the club!

Own it, have a good sense of humor and attitude and kick cancers ass! But keep a box of Kleenex near by when you watch 27 Dresses the ending gets me every time. 😊

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LOL....GOLDEN!!!!!

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Lmao. You all need to get together and write a book. Your humor certainly adds years, and Ryan fir sharing it with the community. Still laughing wondering if you have any tips on the new fall line of shoes! Keep on kicking ass..both of you..actually all of you

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In had a similar dx. You can come back for this. God willing. Keep hope and you’ll do well

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One thing you have to realize, the boundaries of prostate are not that well defined. On pictures you always see a definite prostate with well defined borders but that is not the way the prostate really looks when the surgeon cuts into you. Some of the cancer must have been left. So the step is radiation and hope that will kill the rest.

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Everyone on this site will share their knowledge and experience that may be helpful to you for support on this ride.

For me I had PSA of 12 before RP then 39 days of radiation of prostate bed.

But I had started Estrogen patches before radiation and PSA is now .047 and Testosterone is <.1 as patches confuse hormone system to stop production from testes and adrenal glands.

I would suggest a request for GA-68 PSMA PET/CT scan. It is very high definition for PSA of <1 and only sees only prostate cancer cells anywhere in the body. That scan information can be a big bonus in determining therapy options.

Also latest Trials and literature indicates that focused radiation is far superior to shotgun approach for identified cancer tumors from GA-68 PET/CT scan.

FYI wiht Estrogen patches I don't have any night sweats, significantly lower risk of cardiac issues compared to ADT and man boobs I can live with.

You need to be your own advocate on this with reading and thinking cause you care more than anyone else about your health and happiness. If possible take a partner/friend to all clinical appointments as an extra pair of ears and note taker fro future reference. It's a support each of needs and handy to reflect on what has been said when you may be in several degrees of shock and surprise at what Doc and Oncologist is saying.

Best of luck

Peter

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How about? "Show you my psa if you show me your boobs!"

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One good thing about ageing is being able to loose our inhibitions! A humbling lifestyle...

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LOLOLOL

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to YouGottaBeF.N.KiddingMe: I read you 5 x 5. The other day some dude came over to me and said "Hey man you got a nice set of tits". So I hit that son of a bitch with my pocketbook.

Good Luck and Good Health.

j-o-h-n Friday 09/07/2018 6:22 PM EDT

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Swish!

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LOLOL....at least you didn't use the shopping bags...rofl...

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OK you are not zero. How many of our brotheren here have thought that we can live a long time even when not curative. I'm 18 years out now never got to zero. I'm 67 & still very well. PSA 5 months ago was 0.29 & has dropped to 0.27.Six thousand IU of vitamin D every day! Eat healthy no fast food, lots of veggies too.Can't believe I'm still alive ...in 2000 my PSA was 37.5 when first PC was discovered through biopsy. TRUST ME without the PSA test I would be dead long time ago. Digital was normal no hardness.Any Doc that says PSA is not important is blow'n smoke. Everyone needs to address their own situation...just make sure you are not going to make yourself sicker by trying to kill the beast. Good luck My friend.

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My God, I needed that laugh today ty so much. And whiskytangofox trot , do long as you keep dancing, my friend!!!

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