Going to MD Anderson for consult. Trying to line up at least 3 consults while I am there.
Have an appointment with Dr. Subhudi. Now I am looking for a first class immunologist and genetic oncologist since I have the germline ATM gene and Radiotherapy may not be in my future.
Any Dr. name suggestions greatly appreciated.
My oncologist at MD is Paul Corn in the Genitourinary Department. He is absolutely wonderful. Very bright, extremely knowledgeable, and most importantly, very caring. Please see if you can get an appointment with him.
I went to md anderson 1 1/2 years ago, three visits,was tested, I was not told anything new, had to beg for a for report an recom. nothing new,went home met with mo, from what I see there are no magic bullets, i live in nc,i hope you have better luck
Dr. Zarita is my Onc. I like how he explains things. Dr. Chapin if you considering surgery. Dr Choi if Proton Radiation. All of their docs do research and teaching. I think they are all excellent BUT if you are looking for a doc that will want to try your suggestions for new therapies I have not found them to be interested in that. They seem to feel that if you place yourself in their care then you need to be in their care and not offer you medical advice. How you feel about that will determine if this is place for you. The patient load has grown drastically since I started treatment there 6 yrs ago. I find that unless there is something moving in the wrong direction, you will likely see the NP for your doctor. I gauge my visits and my condition on who knocks on the door and enters. I do not feel quality of treatment is an issue but getting a good patient-doctor relationship is hard. You will develop a stronger relationship with the NP. You are constantly evaluated for clinical trials as well, which I happen to like. That is my opinion/observation. Others I’m sure will have differences. I’m still alive and I feel pretty good. That is what matters to me.
Dr. Corn is my oncologist at MD Anderson also. Been there once and going back in sept for MRI. Dr. Corn strikes me as very aggressive in his treatment. He changed my medication to zytiga from casodex which my dr. At KU Med never suggested. Best of luck.
Nothing good comes out of MD Anderson.
I flew to MD Anderson for a 2nd opinion after my Lupron failed. HORRIBLE advice. Overdosed me on Keto and I got jaundice. In addition, that MD Anderson Dr did not warn me about dangerous liver damage with Keto when drinking herbal protein shakes. I asked in writing if herbal protein shakes were OK, and he said it was OK. After my ALT shot thru the roof, I had to stop, take URSODIOL to help my liver recover, and waited to recover from Jaundice. My skin had what looked like a million itching mosquito bites and I looked like spotted hell on every inch of my body. Could not sleep. Put SARNA lotion hourly. Only thing that helped, but it smelled very strong and made me nauseous over time. It was the worst experience in my life. I thought I was going to die. Got thru it, but it was 3 months of suffering.
I saw an oncologist who had most of his experience at MD Anderson. All I can say is that he was another HORRIBLE oncologist. Half of his advice was bad, but I had to keep him because he was better then the others I talked to at Kaiser. Eventually I got OUT of Kaiser and got Medicare PPO "Medicare Supplemental" and found some excellent oncologists at Stanford and UC Davis, and kept another excellent oncologist, just in case I wanted to call him, at City of Hope West Covina.
6 months later, with a good oncologist in California, I went back on Keto at HALF the dose + Urosodiol and I had good results with no liver issues.
How much ketoconzale were you taking? Just curious...
My experience with it in 2004 was during a six month trial were every other week I had doxorubicin 20mg/m2 as a 24 hour pump taking the following orals: ketoconzale, 400 mg 3 times a day for 7 days. The next week was taxotere, 100 mg/m2 in combination with estramustine, 280 mg orally 3 times a day for 7 days.
I did this cycle for six weeks, a week off, the repeat fir a total of three times.
Gourd Dancer
MD Anderson made the mistake of starting the highest dose, 400 3 times per day, no warnings about herbal drinks.
I was under strict orders. No supplements if any kind. I realize that some use ketoconzale different, but my guys research found that it is best used in combination with infusion type drugs. Ketoconzale is known to have prostate cancer cell killing properties causing apoptosis. I took the same dosage but in combination every other week. Most likely the difference. Your dosage was pretty standard. Anyway, good luck fighting this bastard.
GD
Who was you MO there? Did you appreciate him/her?
Sorry to hear that. Keto? As in ketoconozole?
John Arujio. Very bright positive. I stopped going to Houston because of the distance.
Review the Doctor briefs posted on their website. Pretty thorough on what they are doing in research.
GD
As you can see from the responses, be careful. Do your own research and become familiar with best practice guidelines. Not all programs with name reputations offer the best care. Always ask for more information and options. And seek out additional opinions from true experts in the field.
sammamish
Were you able to find a good Immunologist at MD Anderson?
Still looking..no names dropped yet. Immunotherapy still seems like the step child category.
I had an amazing consult with John Araujo there this January. He is really down to earth and caring, more thorough than my local providers. Recommended I go on Metformin and a beta blocker which I am doing (no other doc had mentioned.)
MO at MD Anderson
LITT at MD Anderson
Going to MD Anderson for a consult - Any Advice?
MD
