Any one with Castrate-Resistant MPC who has been treated at MD Anderson?

[HOPEFULSPOUSE]

My husband is considering going there (we are waiting for insurance approval) and would love to hear feedback.

Thank you!

[Tall_Allen]

Eleni Efstathiou is at the leading edge of many of the most promising PC treatments.

[HOPEFULSPOUSE in reply to Tall_Allen]

Thank you so much! Great to hear. Have you been treated by her?

[Tall_Allen in reply to HOPEFULSPOUSE]

No - I only know her by her great reputation, I have spoken to a few patients who have used her. The feedback I've gotten is that it's sometimes hard to meet with her, but that she tailors the treatment to the patient's needs.

[HOPEFULSPOUSE in reply to Tall_Allen]

Thank you again, I really appreciate that feedback.

[Mathes72 in reply to HOPEFULSPOUSE]

I hate to disagree with Tall Allen,I met with Dr E three times,last year,she tested me to death,she was very quick to get out of the office,on my last visit I requested a treatment plan,she did not answer.my wife an I were sitting there looking at each other. After many calls to her office her nurse (very nice) sent me a plan.chemo an xgeve,I was not impressed, only one persons opinion

[HOPEFULSPOUSE in reply to Mathes72]

Oh that's very interesting and good to know. Thank you for that feedback.

[Lawrencee in reply to Mathes72]

I agree. typical md anderson. right hand does not know what left hand is doing.

Dr. E scanned me to death. Wanted to place me on Lupron with no scan results indicating anything. Just a slight psa rise. I walked in the door, but ran for the exit.

[blindsided in reply to Tall_Allen]

I totally agree...met with her last week...she is enrolling me in a clinical trial (if I qualify).

[tomtom9148 in reply to blindsided]

Are you my friend from Valley Hi?

[chascri]

I was treated there from 2006 to 2011. Recommend them highly.

[HOPEFULSPOUSE in reply to chascri]

Oh thank you for this! So good to know.

[Rmanns]

I am in my second clinical trial at MDA and was followed in between for 5 years. I've always been impressed by the organization. Staff are well organized and helpful.

I was not impressed by my follow up care. But the clinical trials have been well planned and organized and I feel like my treatment team is highly knowledgeable

I've not found that a specific provider is critical to thier process. Treatment is provided and overseen by a wider group.

I'd highly recommend them.

[HOPEFULSPOUSE]

Sounds good - thank you so much for the feedback.

[j-o-h-n]

She's Greek.... tell her "YIASOU"....

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 11/05/2018 4:18 PM EST

[Walter_Gould]

I have been treated at MDA for the past 8 years by Dr Armando Zurita. He got me into a cliniccal trial with a drug called Zytiga. My PSA has been undetectable for 7 1/2 years and leisions have either shrunk remarkabally or have disappeared. I would strongly encourage you to make an appointment for a second oppinion and visit MDA. You do not need to be referred by your doctor. You can call them directly with a number on their website. May God Bless You!

[HOPEFULSPOUSE in reply to Walter_Gould]

Thank you so much - encouraging news.

[Cancer-Warrior]

I have been treated at MDA for six years by Dr. Zurita. So far he has done right by me. He has always had my best interests in mind. In the beginning he had me on several phase II trials, one at a time of course. Been on one Phase I. Have had 3 rounds of radiation and doing chemo currently. Now about to start the last standard of care currently available, XOFIGO. All this started back on 12/31/2012 with stage IV cMPC (Prostate, lymph nodes, simanal vessels, with ten bone Mets).

[HOPEFULSPOUSE]

Thanks this is encouraging. They don't accept our insurance but we are in the process of changing it. Is taxotere the chemo you are doing?