New here: Diagnosed 9/17 , PSA 14... - Advanced Prostate...

Advanced Prostate Cancer

21,055 members26,260 posts

New here

Bigpike profile image
2 Replies

Diagnosed 9/17 , PSA 147 Gleason 8, bone mets both legs, ribs left shoulder. Treatments: Firmagon then Lupron, Bicalutamide 50 MG daily, Xgeva for bone health. Also, had spot radiation both legs, shoulder, helped with pain. Thinking I need to push harder for Zitiga instead of Bicalutamide. Last PSA 0.1

A complication was 24 months ago I was diagnosed with a tumor on the inside of my spinal cord, after extensive testing the doctors believed that the tumor was sarcoidosis, a granuloma. Was treated with high level of steroids which contained the problem albeit didn't make everything go away. At the height of my problem I was unable to walk but with the steroid use was able to regain significant functionality. I still have some issues with loss of feeling in my hands and feet. Some doctors have ruled out the possibility that this was PC, my oncologist does not rule it out entirely.

Anyone else have possible PC inside spinal cord?

Written by
Bigpike profile image
Bigpike
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Brbnbrn profile image
Brbnbrn

Hi! Do you know what supplements he uses? 😄

Brbnbrn profile image
Brbnbrn

Thank you!

You may also like...

I'm new here, unfortunately. :)

sites at 80 - 100%. PSA was 9.8. Bone scan showed several tumors (both shoulders, scapula, left...

New here and to this disease

score test in Jan. My Gleason's are 9 in 4 areas and 7 in others. I am getting a bone scan and MRI...

New Here

up the tumor and by January 2017 my PSA was 0.2. In July 2017 PSA was up to 2.7 and the tumor...

New here. My story.

because the metastasis has not been confirmed. My Gleason scores were all 9’s and 10’s. My...

New Here

predominantly Gleason 9 (4+5) and a 68.3 PSA at the time I began Lupron injections and daily...