prostate removed at age 56, gleason 9... - Advanced Prostate...

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prostate removed at age 56, gleason 9. then did treatment with lutetium

blinqie profile image
9 Replies

prostate removed 3 years ago, gleason 9, age 56, psa started rising after 18

month, went for treatment with lutetium in Germany; treatment delayed the psa growth but not enough, will start hormone treatment in couple of month i guess. psa now 7.5

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blinqie
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Dr_Abby_Normal profile image
Dr_Abby_Normal

RP @ age 54, G9 & 5/54 Lymph Nodes Positive. PSA less than 0.01 for 7 months, PSA 0.04 at 11 months. Unsure of follow up treatment path at the moment.

RyderLake2 profile image
RyderLake2

Hi Blinqie,

Lutetium is one of the options I am considering. I have been told the cancer agency in our area will be doing a couple of Phase One clinical trials of this drug in early 2018. Can I ask how much it cost you to have this treatment done in Germany?

Hi,

How many treatments of lutetium did you receive and what was the cost ? I am considering paying, it is $9600 (aud) per injection over here . There is a triak coming up but no doubt it will be hit and miss if I can get on it.

blinqie profile image
blinqie in reply to

In Germany is was about 10000 euro per treatment , this included all scans (pmsa etc) and 4 days in the hospital (In germany they keep you min 48 hours in secluded ward. Good luck

Alinur profile image
Alinur

Hi

Where in Germany? And how long it was effective.did you have mets?Iam also intetested.

Thanks

blinqie profile image
blinqie in reply toAlinur

I went to Bad Berka , Dr Baum, excellent people. But they offer this in several places in Germany like Heidelberg as well. Yes i have mets in my lympnodes, not the bones

Alinur profile image
Alinur

Thanks blinque,

Did lutetium had any visible effect on your nodes? And how long you were in remission? How many injections are necessary?

blinqie profile image
blinqie in reply toAlinur

i am in remission now for about 9 month and believe without further treatment this will last a further 2 month. yes it had visable effect on my lympf nodes. i did three injections over 7 month. I did experience fairly severe tiredness from 2-10 weeks after each injections. bearable but not easy for worklife

blinqie profile image
blinqie

I had three cycles over 7 month and today after 9 month my psa went down and started to rise again 4 month after the injection. so it worked but not as good as I hoped for. I had good uptake of the lutetium but the result was soso.

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