My father was diagnosed with advanced prostate cancer-gleason 9. He had a bone scan last week that revealed 3 bone mets in his pelvis and his psa is currently at a .998. Doctors were shocked about the mets because his psa is so low. They started him on Lupron and Bicutamude under the brand name Casodex. They also recommended that he get genetic testing done on the prostate tissue from when he has a radical prostatectomy last year (in March 2017). They said if it is genetic then there may be a pill he can take to fix the malfunctioning gene.
Has anyone had any experience with any of this?
Yes, many here have. Wishing you and your dad a warm Welcome. This is a great site to ask questions and seek information. There is a lot of support here. My father was very similar situation. Low PSA with lots of metastasis. I am not sure about what pill or treatment you are talking about. My father however did try Xtandi and failed to stop the metastasis. He then did chemo, and failed. This is only my fathers response, everyone is different. I recommend you start with a medical oncologist that specializes in urologic cancers. That can lead to to the next best treatment or test. Also browse through many of the posts on this site. You will find a wealth of information. I was so afraid when i first posted here, and now i feel so cared about and comfortable asking questions and sometimes even just venting! Sending big hugs to you and you father! Remember to make each day count!! 🙏🏻
Thank you!